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by DBF
Mon Oct 15, 2018 5:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 3109

Re: ADAPT and Celebrex - What happened?

I was on the ADAPT protocol for three years. 2000 X/ 400 C. I never got HFS either- I never made the connection with the Celebrex! That’s very interesting.
I went off this past Memorial Day because I’d been NED for some time. I have a scan 11/8.

Best,
Donna
by DBF
Sat Oct 13, 2018 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 31
Views: 1446

Re: Stage 4 to NED- Please tell us

Hello, I’m not usually on the board a lot anymore, but I wanted to chime in because I also thought I was stage III, after I was told the spot on my liver was most likely a hemangioma. I remember finding out after the biopsy that it was cancer, and feeling hopeless and looking for long term survivors...
by DBF
Mon Sep 17, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 690

Re: Hai pumps?

I know someone who just got an HAI pump installed at MSK a few weeks ago. He asked his onc about the pumps being discontinued. He was told MSK is continuing to offer them as a surgical option to patients. Good luck!
by DBF
Thu Sep 06, 2018 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13118

Re: Bev G

What?? Oh my gosh- I’m shocked. The last post I see on her FB page is on 8/10 asking for prayers for her. She was the first person to respond to me on the board five years ago. We had similar disease paths. Do you know what happened? I feel awful. My condolences to her family. Bev was an enormous su...
by DBF
Fri Aug 31, 2018 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life ins. policy...critical illness rider
Replies: 5
Views: 613

Re: Life ins. policy...critical illness rider

Good for you for finding out! I bought a big term policy in my early 30s back when I was a single mom with my eldest son. Then, I was diagnosed with stage 10 years later. I put the policy up for sale as a viatical sale through a broker, and some hedge funds bid on it. I sold it for 65% of face value...
by DBF
Fri Aug 24, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 6231

Re: Any Stage 4 long term survivors/cured ?

Hello,

I reached five years this past May, currently NED.

Wishing the same for you!

Donna
by DBF
Fri May 04, 2018 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Video and other stuff :)
Replies: 6
Views: 661

Video and other stuff :)

Hi everyone, I’m not on here too much anymore. I recently gave a speech at a fundraiser for Camp Kesem at Stony Brook University where I mentioned this wonderful forum (and Belle in particular). Have look if you’d like. Camp Kesem is a free camp for kids ages 6-16 who have a parent affected by cance...
by DBF
Mon Feb 05, 2018 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4a, chemo to start after removal of partial colon+liver met.
Replies: 9
Views: 1216

Re: Stage 4a, chemo to start after removal of partial colon+liver met.

Good luck to your dad. I hope he handles the chemo well. I also had my colon and liver surgery before chemo. I did 12 rounds of FOLFOX after my liver resection. You can see by my signature I have been NED since 2013. I am not MSI high, so immunology was never discussed. My marker went up initially a...
by DBF
Mon Nov 27, 2017 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa
Replies: 14
Views: 1812

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Great news. I've been thinking about you, hoping everything was okay. I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it a...
by DBF
Wed Jun 28, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PREP GETS HARDER TO TOLERATE
Replies: 16
Views: 4087

Re: PREP GETS HARDER TO TOLERATE

I'm sorry to hear the prep made you so sick. Which one was it? If you use Prepopik, it's very little to drink. I have refused to drink any of the "litely" preps because they nauseate me.

Hope everything was good with your colonoscopy.

Donna
by DBF
Sun Jun 04, 2017 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post CT scan pains
Replies: 2
Views: 512

Post CT scan pains

Hello, friends. I've been having some issues with scar tissue, so I had a recent CT scan. I didn't get contrast through an IV, but I did drink a solution before the scan. At my regular hospital where I get my scans, the drink is a thick, berry-flavored drink, and I tolerate it fine. This one was cle...
by DBF
Sun Mar 26, 2017 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant - colon vs rectal cancer
Replies: 34
Views: 6046

Re: Rant - colon vs rectal cancer

I once had a terminology incident with someone when she admonished me for saying I had colon cancer and not "colorectal cancer." I use the term colorectal when I'm speaking in general, but I say colon cancer when I'm speaking of my specific case. Her point was that people don't want to say...
by DBF
Wed Mar 08, 2017 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 16 Months Remission
Replies: 9
Views: 1610

Re: 16 Months Remission

Yay! That's great news. :D
by DBF
Thu Dec 29, 2016 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curing cancer with carrots
Replies: 64
Views: 7767

Re: Curing cancer with carrots

Aw, seeing this post pop up made me smile, thinking of Kenny and his "Come to think of it, I've never seen a rabbit in the infusion center" comment way back when.

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