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by DBF
Fri May 04, 2018 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Video and other stuff :)
Replies: 6
Views: 524

Video and other stuff :)

Hi everyone, I’m not on here too much anymore. I recently gave a speech at a fundraiser for Camp Kesem at Stony Brook University where I mentioned this wonderful forum (and Belle in particular). Have look if you’d like. Camp Kesem is a free camp for kids ages 6-16 who have a parent affected by cance...
by DBF
Mon Feb 05, 2018 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4a, chemo to start after removal of partial colon+liver met.
Replies: 9
Views: 1042

Re: Stage 4a, chemo to start after removal of partial colon+liver met.

Good luck to your dad. I hope he handles the chemo well. I also had my colon and liver surgery before chemo. I did 12 rounds of FOLFOX after my liver resection. You can see by my signature I have been NED since 2013. I am not MSI high, so immunology was never discussed. My marker went up initially a...
by DBF
Mon Nov 27, 2017 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa
Replies: 14
Views: 1593

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Great news. I've been thinking about you, hoping everything was okay. I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it a...
by DBF
Wed Jun 28, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PREP GETS HARDER TO TOLERATE
Replies: 16
Views: 3945

Re: PREP GETS HARDER TO TOLERATE

I'm sorry to hear the prep made you so sick. Which one was it? If you use Prepopik, it's very little to drink. I have refused to drink any of the "litely" preps because they nauseate me.

Hope everything was good with your colonoscopy.

Donna
by DBF
Sun Jun 04, 2017 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post CT scan pains
Replies: 2
Views: 480

Post CT scan pains

Hello, friends. I've been having some issues with scar tissue, so I had a recent CT scan. I didn't get contrast through an IV, but I did drink a solution before the scan. At my regular hospital where I get my scans, the drink is a thick, berry-flavored drink, and I tolerate it fine. This one was cle...
by DBF
Sun Mar 26, 2017 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant - colon vs rectal cancer
Replies: 34
Views: 5463

Re: Rant - colon vs rectal cancer

I once had a terminology incident with someone when she admonished me for saying I had colon cancer and not "colorectal cancer." I use the term colorectal when I'm speaking in general, but I say colon cancer when I'm speaking of my specific case. Her point was that people don't want to say...
by DBF
Wed Mar 08, 2017 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 16 Months Remission
Replies: 9
Views: 1502

Re: 16 Months Remission

Yay! That's great news. :D
by DBF
Thu Dec 29, 2016 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curing cancer with carrots
Replies: 64
Views: 7159

Re: Curing cancer with carrots

Aw, seeing this post pop up made me smile, thinking of Kenny and his "Come to think of it, I've never seen a rabbit in the infusion center" comment way back when.
by DBF
Tue Nov 15, 2016 11:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Greetings from a lurker since May 2016
Replies: 8
Views: 908

Re: Greetings from a lurker since May 2016

Petra,
Congratulations on the birth of a healthy baby! I'm sorry you have to deal with cancer when you have a newborn. Sending you lots of warmth and best wishes.
Donna
by DBF
Tue Oct 25, 2016 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Insurance Accelerated Death Benefit Rider
Replies: 11
Views: 1344

Re: Life Insurance Accelerated Death Benefit Rider

I did a viatical settlement with one of my term policies. If you'd like to discuss it feel free to PM me. I had a letter from my onc that outlined life expectancy in a general way. If I outlive the term, I'm going to have a big party. :wink:
by DBF
Sun Aug 14, 2016 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It came to me this afternoon....I hate
Replies: 30
Views: 4971

Re: It came to me this afternoon....I hate

Regan, I am so sorry for your loss.
by DBF
Wed Mar 23, 2016 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin D3, What is your daily dose?
Replies: 30
Views: 1894

Re: Vitamin D3, What is your daily dose?

I take 50,000 1x/week. I haven't had my level checked in a while. Probably time to request that.
by DBF
Sun Mar 20, 2016 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effects calf cramping and painfully tight
Replies: 23
Views: 2120

Re: Side effects calf cramping and painfully tight

Ugh, sorry you're experiencing this.

I had muscle cramps- especially in my calves- on folfox. I remember it being awful walking down stairs. My hands camped up too. The muscle cramping was the main reason I turned to marijuana. It helped me a lot.
by DBF
Sun Feb 21, 2016 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Survival stories
Replies: 31
Views: 5676

Re: Stage 4 Survival stories

When I was first diagnosed, I looked all over for stories of stage 4 long-term survivors. The ones I found I kept in my head- those who were NED and those who were doing fairly well and were stable on chemo. I think it's natural to look for concrete examples that give you hope. That first year, canc...

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