Hi! I was also diagnosed at 42. That was 5 1/2 years ago. I was treated at both MSKCC and at NYU. I was on ADAPT long-term, but stopped all treatment when I reached the 5 year mark this past May.

You can see there are quite a few stage 4 long-term survivors here.

Congratulations! It’s great to see your post. All the best to you.

Donna

Sorry that you’re feeling this way. Of course, it’s completely understandable. Back when I felt like that (and I did) I went to therapy and I took an antidepressant. Both of those things helped tremendously. At first, I didn’t understand what an antidepressant could do to help since the fact that I ...

Were you able to get an answer?
I usually request a specific prep from my doctor: Prepopik. I’ve done the Miralax too. I think as long as everything is cleaned out, things should be fine.
Good luck!

I was on the ADAPT protocol for three years. 2000 X/ 400 C. I never got HFS either- I never made the connection with the Celebrex! That’s very interesting.
I went off this past Memorial Day because I’d been NED for some time. I have a scan 11/8.

Best,
Donna

Hello, I’m not usually on the board a lot anymore, but I wanted to chime in because I also thought I was stage III, after I was told the spot on my liver was most likely a hemangioma. I remember finding out after the biopsy that it was cancer, and feeling hopeless and looking for long term survivors...

I know someone who just got an HAI pump installed at MSK a few weeks ago. He asked his onc about the pumps being discontinued. He was told MSK is continuing to offer them as a surgical option to patients. Good luck!

What?? Oh my gosh- I’m shocked. The last post I see on her FB page is on 8/10 asking for prayers for her. She was the first person to respond to me on the board five years ago. We had similar disease paths. Do you know what happened? I feel awful. My condolences to her family. Bev was an enormous su...

Good for you for finding out! I bought a big term policy in my early 30s back when I was a single mom with my eldest son. Then, I was diagnosed with stage 10 years later. I put the policy up for sale as a viatical sale through a broker, and some hedge funds bid on it. I sold it for 65% of face value...

Hello,

I reached five years this past May, currently NED.

Wishing the same for you!

Donna

Hi everyone, I’m not on here too much anymore. I recently gave a speech at a fundraiser for Camp Kesem at Stony Brook University where I mentioned this wonderful forum (and Belle in particular). Have look if you’d like. Camp Kesem is a free camp for kids ages 6-16 who have a parent affected by cance...

Woohoo! Great news!!

Good luck to your dad. I hope he handles the chemo well. I also had my colon and liver surgery before chemo. I did 12 rounds of FOLFOX after my liver resection. You can see by my signature I have been NED since 2013. I am not MSI high, so immunology was never discussed. My marker went up initially a...

Great news. I've been thinking about you, hoping everything was okay. I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it a...

I'm sorry to hear the prep made you so sick. Which one was it? If you use Prepopik, it's very little to drink. I have refused to drink any of the "litely" preps because they nauseate me.

Hope everything was good with your colonoscopy.

Donna