Were you able to get an answer?
I usually request a specific prep from my doctor: Prepopik. I’ve done the Miralax too. I think as long as everything is cleaned out, things should be fine.
Good luck!

I was on the ADAPT protocol for three years. 2000 X/ 400 C. I never got HFS either- I never made the connection with the Celebrex! That’s very interesting.
I went off this past Memorial Day because I’d been NED for some time. I have a scan 11/8.

Best,
Donna

Hello, I’m not usually on the board a lot anymore, but I wanted to chime in because I also thought I was stage III, after I was told the spot on my liver was most likely a hemangioma. I remember finding out after the biopsy that it was cancer, and feeling hopeless and looking for long term survivors...

I know someone who just got an HAI pump installed at MSK a few weeks ago. He asked his onc about the pumps being discontinued. He was told MSK is continuing to offer them as a surgical option to patients. Good luck!

What?? Oh my gosh- I’m shocked. The last post I see on her FB page is on 8/10 asking for prayers for her. She was the first person to respond to me on the board five years ago. We had similar disease paths. Do you know what happened? I feel awful. My condolences to her family. Bev was an enormous su...

Good for you for finding out! I bought a big term policy in my early 30s back when I was a single mom with my eldest son. Then, I was diagnosed with stage 10 years later. I put the policy up for sale as a viatical sale through a broker, and some hedge funds bid on it. I sold it for 65% of face value...

Hello,

I reached five years this past May, currently NED.

Wishing the same for you!

Donna

Hi everyone, I’m not on here too much anymore. I recently gave a speech at a fundraiser for Camp Kesem at Stony Brook University where I mentioned this wonderful forum (and Belle in particular). Have look if you’d like. Camp Kesem is a free camp for kids ages 6-16 who have a parent affected by cance...

Woohoo! Great news!!

Good luck to your dad. I hope he handles the chemo well. I also had my colon and liver surgery before chemo. I did 12 rounds of FOLFOX after my liver resection. You can see by my signature I have been NED since 2013. I am not MSI high, so immunology was never discussed. My marker went up initially a...

Great news. I've been thinking about you, hoping everything was okay. I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it a...

I'm sorry to hear the prep made you so sick. Which one was it? If you use Prepopik, it's very little to drink. I have refused to drink any of the "litely" preps because they nauseate me.

Hope everything was good with your colonoscopy.

Donna

Hello, friends. I've been having some issues with scar tissue, so I had a recent CT scan. I didn't get contrast through an IV, but I did drink a solution before the scan. At my regular hospital where I get my scans, the drink is a thick, berry-flavored drink, and I tolerate it fine. This one was cle...

I once had a terminology incident with someone when she admonished me for saying I had colon cancer and not "colorectal cancer." I use the term colorectal when I'm speaking in general, but I say colon cancer when I'm speaking of my specific case. Her point was that people don't want to say...

Yay! That's great news.