Hi Meatie,

How is your mom doing? I don’t have Keytruda info, but I wanted to send my best wishes.

Donna

I’m sorry you are going through this. I also could have written this post, and did actually write a similar one way back when on this board. Around that time I went on Celexa, and it did wonders to stabilize my mood. I’ve also felt therapy was helpful now and then, but the medication helped the most...

Yay! Congrats on the great news. That’s awesome.

Hi! I was also diagnosed at 42. That was 5 1/2 years ago. I was treated at both MSKCC and at NYU. I was on ADAPT long-term, but stopped all treatment when I reached the 5 year mark this past May.

You can see there are quite a few stage 4 long-term survivors here.

Congratulations! It’s great to see your post. All the best to you.

Donna

Sorry that you’re feeling this way. Of course, it’s completely understandable. Back when I felt like that (and I did) I went to therapy and I took an antidepressant. Both of those things helped tremendously. At first, I didn’t understand what an antidepressant could do to help since the fact that I ...

Were you able to get an answer?
I usually request a specific prep from my doctor: Prepopik. I’ve done the Miralax too. I think as long as everything is cleaned out, things should be fine.
Good luck!

I was on the ADAPT protocol for three years. 2000 X/ 400 C. I never got HFS either- I never made the connection with the Celebrex! That’s very interesting.
I went off this past Memorial Day because I’d been NED for some time. I have a scan 11/8.

Best,
Donna

Hello, I’m not usually on the board a lot anymore, but I wanted to chime in because I also thought I was stage III, after I was told the spot on my liver was most likely a hemangioma. I remember finding out after the biopsy that it was cancer, and feeling hopeless and looking for long term survivors...

I know someone who just got an HAI pump installed at MSK a few weeks ago. He asked his onc about the pumps being discontinued. He was told MSK is continuing to offer them as a surgical option to patients. Good luck!

What?? Oh my gosh- I’m shocked. The last post I see on her FB page is on 8/10 asking for prayers for her. She was the first person to respond to me on the board five years ago. We had similar disease paths. Do you know what happened? I feel awful. My condolences to her family. Bev was an enormous su...

Good for you for finding out! I bought a big term policy in my early 30s back when I was a single mom with my eldest son. Then, I was diagnosed with stage 10 years later. I put the policy up for sale as a viatical sale through a broker, and some hedge funds bid on it. I sold it for 65% of face value...

Hello,

I reached five years this past May, currently NED.

Wishing the same for you!

Donna

Hi everyone, I’m not on here too much anymore. I recently gave a speech at a fundraiser for Camp Kesem at Stony Brook University where I mentioned this wonderful forum (and Belle in particular). Have look if you’d like. Camp Kesem is a free camp for kids ages 6-16 who have a parent affected by cance...

Woohoo! Great news!!