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by DBF
Thu Dec 06, 2018 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 27
Views: 4493

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

Hi! I was also diagnosed at 42. That was 5 1/2 years ago. I was treated at both MSKCC and at NYU. I was on ADAPT long-term, but stopped all treatment when I reached the 5 year mark this past May.

You can see there are quite a few stage 4 long-term survivors here. :)
by DBF
Thu Dec 06, 2018 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 YEARS AGO
Replies: 7
Views: 512

Re: 9 YEARS AGO

Congratulations! It’s great to see your post. All the best to you.

Donna
by DBF
Thu Dec 06, 2018 7:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im mentally breaking
Replies: 21
Views: 1253

Re: Im mentally breaking

Sorry that you’re feeling this way. Of course, it’s completely understandable. Back when I felt like that (and I did) I went to therapy and I took an antidepressant. Both of those things helped tremendously. At first, I didn’t understand what an antidepressant could do to help since the fact that I ...
by DBF
Mon Nov 12, 2018 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy prep question
Replies: 10
Views: 724

Re: Colonoscopy prep question

Were you able to get an answer?
I usually request a specific prep from my doctor: Prepopik. I’ve done the Miralax too. I think as long as everything is cleaned out, things should be fine.
Good luck!
by DBF
Mon Oct 15, 2018 5:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 3777

Re: ADAPT and Celebrex - What happened?

I was on the ADAPT protocol for three years. 2000 X/ 400 C. I never got HFS either- I never made the connection with the Celebrex! That’s very interesting.
I went off this past Memorial Day because I’d been NED for some time. I have a scan 11/8.

Best,
Donna
by DBF
Sat Oct 13, 2018 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 5119

Re: Stage 4 to NED- Please tell us

Hello, I’m not usually on the board a lot anymore, but I wanted to chime in because I also thought I was stage III, after I was told the spot on my liver was most likely a hemangioma. I remember finding out after the biopsy that it was cancer, and feeling hopeless and looking for long term survivors...
by DBF
Mon Sep 17, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 966

Re: Hai pumps?

I know someone who just got an HAI pump installed at MSK a few weeks ago. He asked his onc about the pumps being discontinued. He was told MSK is continuing to offer them as a surgical option to patients. Good luck!
by DBF
Thu Sep 06, 2018 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 51
Views: 18994

Re: Bev G

What?? Oh my gosh- I’m shocked. The last post I see on her FB page is on 8/10 asking for prayers for her. She was the first person to respond to me on the board five years ago. We had similar disease paths. Do you know what happened? I feel awful. My condolences to her family. Bev was an enormous su...
by DBF
Fri Aug 31, 2018 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life ins. policy...critical illness rider
Replies: 5
Views: 749

Re: Life ins. policy...critical illness rider

Good for you for finding out! I bought a big term policy in my early 30s back when I was a single mom with my eldest son. Then, I was diagnosed with stage 10 years later. I put the policy up for sale as a viatical sale through a broker, and some hedge funds bid on it. I sold it for 65% of face value...
by DBF
Fri Aug 24, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 6736

Re: Any Stage 4 long term survivors/cured ?

Hello,

I reached five years this past May, currently NED.

Wishing the same for you!

Donna
by DBF
Fri May 04, 2018 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Video and other stuff :)
Replies: 6
Views: 762

Video and other stuff :)

Hi everyone, I’m not on here too much anymore. I recently gave a speech at a fundraiser for Camp Kesem at Stony Brook University where I mentioned this wonderful forum (and Belle in particular). Have look if you’d like. Camp Kesem is a free camp for kids ages 6-16 who have a parent affected by cance...
by DBF
Mon Feb 05, 2018 6:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4a, chemo to start after removal of partial colon+liver met.
Replies: 9
Views: 1369

Re: Stage 4a, chemo to start after removal of partial colon+liver met.

Good luck to your dad. I hope he handles the chemo well. I also had my colon and liver surgery before chemo. I did 12 rounds of FOLFOX after my liver resection. You can see by my signature I have been NED since 2013. I am not MSI high, so immunology was never discussed. My marker went up initially a...
by DBF
Mon Nov 27, 2017 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa
Replies: 14
Views: 2100

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Great news. I've been thinking about you, hoping everything was okay. I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it a...
by DBF
Wed Jun 28, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PREP GETS HARDER TO TOLERATE
Replies: 16
Views: 4209

Re: PREP GETS HARDER TO TOLERATE

I'm sorry to hear the prep made you so sick. Which one was it? If you use Prepopik, it's very little to drink. I have refused to drink any of the "litely" preps because they nauseate me.

Hope everything was good with your colonoscopy.

Donna

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