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by ab123
Mon Nov 27, 2017 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years cancer anniversary - NED!
Replies: 10
Views: 1286

5 years cancer anniversary - NED!

Today is exactly 5 years since my LAR surgery for stage IIIC CRC. I've mostly adapted to the increase in bathroom visits by now (usually fine if I eat right), and almost forgotten that my feet feel different ever since the Oxaliplatin. On the whole I'm back to normal and have been for years now. To ...
by ab123
Thu Sep 07, 2017 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1169
Views: 99588

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, I don't check the board here much anymore - almost 5 years out from 3C rectal - and NED ever since. I was also treated at BWH and DFCI - and I found the team excellent. I did what sounds like the exact same chemorad schedule as you at BWH (down on the LL2 with the Varian Trubeam - if they s...
by ab123
Wed Feb 01, 2017 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy without meds?
Replies: 16
Views: 2176

Re: Colonoscopy without meds?

Update on this thread: I had another colonoscopy this week (about 2 years later) without drugs and again, it really didn't hurt. Yes it was uncomfortable for a couple minutes when they inflated the colon a bit on the way in, but not very bad. You just need to breathe deeply a couple times - it's jus...
by ab123
Tue Nov 01, 2016 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4th cycles done but I cried
Replies: 34
Views: 4141

Re: 4th cycles done but I cried

Way to go. It's a long trip but you're making it through. So many of us have made it through and survived. You will too. Stay strong.
by ab123
Tue Nov 01, 2016 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Living without a rectum
Replies: 14
Views: 1837

Re: Living without a rectum

Like Colace? I did early-on after the ileostomy take-down, but not lately - haven't needed it. But yeah it works and I can't recall any side effects. Definitely something to try.
by ab123
Mon Oct 31, 2016 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Living without a rectum
Replies: 14
Views: 1837

Re: Living without a rectum

I've tried Metamucil pills but even if I take like 20 of them they basically don't work. The mix is totally different for me and it works.
by ab123
Sun Oct 30, 2016 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Living without a rectum
Replies: 14
Views: 1837

Re: Living without a rectum

No rectum here. I do alright by taking a couple tablespoons of Metamucil before bed and drinking plenty of water throughout the day. I have found that my body has improved over time, so don't lose hope. Experiment with different foods or perhaps walking after eating, which helps me.
by ab123
Fri Oct 28, 2016 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump vs Pills
Replies: 13
Views: 1399

Re: Pump vs Pills

I wasn't given a choice to take pills, so my experience was with the pump. I used this thing that was a HUGE lifesaver in terms of living with the pump comfortably: http://poppypocket.net/ I slept with it on and was able to roll around without getting caught up in the tubing, and it also made it eas...
by ab123
Fri Oct 28, 2016 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about colorectal cancer surgery (preparation and recovery)
Replies: 15
Views: 1287

Re: Question about colorectal cancer surgery (preparation and recovery)

My experience was pretty much the same as BrownBagger's in terms of the overall timeline. I nearly had to go right back to the hospital once they let me go home from pain and vomiting. Over the phone, the doc suggested I quit the oral opiate painkiller (hydromorphone I think) and switch to Advil. Th...
by ab123
Thu Oct 27, 2016 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another Newbie here - Stage IIIC questions on treatment
Replies: 32
Views: 4721

Re: Another Newbie here - Stage IIIC questions on treatment

Dana-Farber in Boston let me disconnect myself. They gave me a little kit and showed me how to do it. I disconnected and flushed the port all by myself in the bathroom at work. Ask your onc or chemo nurse about it.
by ab123
Fri Oct 21, 2016 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help for my husband diagnosed 9/16/16 Stage III?
Replies: 29
Views: 3732

Re: Help for my husband diagnosed 9/16/16 Stage III?

One more thing to add. It's often said that chemo is poison and that the way it works is to knock down the whole system and hope that the cancer is weaker than the body. But this is not true! In this case the FOLFOX regimen consists of several drugs - 5 Fluorouracil, Oxaliplatin, and Folinic acid. R...
by ab123
Fri Oct 21, 2016 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question...Cancer and privacy vs openness
Replies: 33
Views: 2924

Re: Question...Cancer and privacy vs openness

I went the open route and it worked for me. I immediately told friends and family, including my young children (5 and 7 at the time). The kids drew pictures of x-wing fighters shooting the death star after I described radiation treatment. I initially did this because my mother's brother died when he...
by ab123
Fri Oct 21, 2016 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help for my husband diagnosed 9/16/16 Stage III?
Replies: 29
Views: 3732

Re: Help for my husband diagnosed 9/16/16 Stage III?

I'm a 3Cer 4 years out. I did everything they recommended as you can see in my sig - chemo+rad followed by surgery followed by more chemo. None of it was particularly pleasant, but it wasn't too terribly bad either - and now it's just a fading memory and I'm cured. I was able to work mostly do every...
by ab123
Thu May 19, 2016 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Survey on bad habits
Replies: 34
Views: 3495

Re: Survey on bad habits

The data about smoking causing cancer is extremely compelling, BUTT, that's on average across the whole population. There's no telling for an individual. Statistics don't tell much about what will happen to a particular person, or really help answer "why me?". There are just too many rando...
by ab123
Fri Apr 29, 2016 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer- Staging question? Follow Mop up Chemo??
Replies: 15
Views: 2093

Re: Rectal cancer- Staging question? Follow Mop up Chemo??

I had a similar diagnosis. It's normal to take out a good deal of the lower colon along with the rectum. The way my surgeon described it, there's kind of a minimum take - once you cut the nerves and blood vessels to the rectum, the lower 10-inches of colon have to come out too regardless of whether ...

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