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by tchan8888
Wed Apr 19, 2017 4:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still here tchan8888
Replies: 9
Views: 2197

Still here tchan8888

On pembro clinical trial since 11/15. Seems that it has stopped working. Stayed away from board because it is so hard to read about people who I met on board since 2012 are gone. Struggling mentally and emotionally. Will ask onc about next steps given growth of lymph node tumors. Depressed thinking ...
by tchan8888
Mon Jul 25, 2016 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial Update - Pembrozilumab
Replies: 5
Views: 921

Clinical Trial Update - Pembrozilumab

Hello All, It has been awhile since I have posted. Have tried to take a mental and emotional break since some of the pas sings earlier this year. The trial is going well. About a 42 percent reduction in lymph node tumor size. Am handling the treatment, which is so much easier than FOLFOX and FOLFIRI...
by tchan8888
Sat Mar 05, 2016 6:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda question
Replies: 15
Views: 3327

Re: Keytruda question

Michelle, Less side effects than FOLFOX and FOLFIRI. Fatigue on infusion day and feel better by Day 2. Infusion is short and no bottle, which makes a big psychological difference for me. Some constipation. Very manageable for me, but I also handled the chemo pretty well until neuropathy set in. Bles...
by tchan8888
Fri Mar 04, 2016 4:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda question
Replies: 15
Views: 3327

Re: Keytruda question

I am on this trial. Every 3 weeks. 200 mg.

Blessings,

Tom
by tchan8888
Sun Feb 14, 2016 8:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our beloved Skypuppy
Replies: 55
Views: 8957

Re: Our beloved Skypuppy

This is so hard to deal with. Am very saddened. Skypup meant so much to so many.
by tchan8888
Thu Feb 11, 2016 4:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update tchan8888: Pembrozilumab Clinical Trial
Replies: 11
Views: 2352

Update tchan8888: Pembrozilumab Clinical Trial

Hello Everyone, Just wanted to give a brief update. Had my first scan after 3 treatments. The lymph node tumors were very responsive. Was advised that many people do not see an immediate response to this immunotherapy regimen. Noticeable shrinkage in swelling of lymph nodes in my neck. As for side e...
by tchan8888
Mon Feb 01, 2016 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have distant lymph node spread only with no organ involvement
Replies: 13
Views: 2575

Re: I have distant lymph node spread only with no organ involvement

I have the same condition. Multiple distant
LN tumors in neck, abdomen, and underarm.

First Line: FOLFIRI 28x
Second Line: FOLFOX and Avastin 8x, but significant neuropathy
Current: Clinical trial for pembrozilumab 3 treatments so far

Blessings,

Tom
by tchan8888
Tue Dec 22, 2015 3:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: missing you, tchan8888
Replies: 10
Views: 2799

Re: missing you, tchan8888

OSM,

Have not moved. Am at UC San Francisco. They were given slots and I received one. Am unaware of any geographic regions. This trial just opened up in November.

Will let you know after first scan in February.

Blessings,

Tom
by tchan8888
Wed Dec 16, 2015 1:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: missing you, tchan8888
Replies: 10
Views: 2799

Re: missing you, tchan8888

I am still around, just have been lurking and not posting. Have not been in the mood to participate. Overall, hit my 3 year anniversary. First line (FOLFIRI) no longer effective and Second Line (FOLFOX) had to stop because of neuropathy. Thank God was accepted for pembrolizumab clinical trial. First...
by tchan8888
Sun Aug 02, 2015 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Helen Needs Our Good Wishes
Replies: 27
Views: 3521

Re: Helen Needs Our Good Wishes

OMG .... Helen, please stay strong .... You are an inspiration to all ....
by tchan8888
Mon May 11, 2015 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really??!!?? UNEXPECTED GOOD NEWS!
Replies: 185
Views: 18782

Re: Really??!!??

Peace and blessings for you Bev ....
by tchan8888
Tue Apr 21, 2015 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT had rough week
Replies: 70
Views: 5103

Re: OT had rough week

That's a rough week. Praying for a quick recovery and peace. I personally know that cancer is a journey that brings out the best and worst in a spouse. I think my wife is at the end of her ability to manage the stress and would not be surprised if she left. She has already told me to find a place of...
by tchan8888
Tue Apr 21, 2015 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tchann8888.... Tom? Feel like checking in?
Replies: 6
Views: 1562

Re: Tchann8888.... Tom? Feel like checking in?

Hi Team, Thank you so much for the prompting Regan! I really appreciate all of your thoughts and well wishes. Have been traveling a lot for work. Tokyo, Hong Kong, Macau and Walldorf. Although I am not doing the same thing as before, I have been training the new people on our team and sharing my exp...

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