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by beary22071
Mon Sep 17, 2012 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastic Liver Mets - Reoccurence almost 96% sure?
Replies: 14
Views: 2707

Re: Metastic Liver Mets - Reoccurence almost 96% sure?

I had a liver resection in 2008 and so far it has not reoccured there. It did however spread to my lungs but never back to the liver. I hope everything works out for you. I loved my liver surgeon. My resection was also a duel one and he removed my gall bladder too.
by beary22071
Mon Sep 17, 2012 8:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Painful, Painful Fingers
Replies: 24
Views: 2225

Re: Painful, Painful Fingers

While i was on erbitux I experienced that as well. I would put aquaphor on and wear cotton gloves to bed at night and it did seem to help me. Just a suggestion to try. Hope it helps.
by beary22071
Mon Sep 17, 2012 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan update.
Replies: 2
Views: 624

CT scan update.

I got my ct results and my brain scan was clean. But the lung mets have grown in size and grew new ones too. 2 months ago she said my body needed a break fro the oxy and tried giving avastin only and in that 2 months I went from 4 lung mets less than a cm to about 40 less than a cm and many new ones...
by beary22071
Thu Sep 13, 2012 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: coughing with lung mets??
Replies: 4
Views: 979

coughing with lung mets??

Let me start by saying friday will be 5 years since my first surgery. It has been a long haul. I did oxi/leucovorin/fu. After I finished that round I had a PET showing tumors in my liver. In July of 2008 I had a liver resection and gall bladder removed. I then started avastin/camptosar/5fu. After th...
by beary22071
Sun Jul 29, 2012 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: thinking of asking to be taken off oxi
Replies: 41
Views: 4207

Re: thinking of asking to be taken off oxi

I know how you feel about the symptoms. I just finished my second round of oxi/5fu/lucavoran/ avastin. I was able to recieve all 12 rounds this time and it has worked for me. I am stage 4 and was diagnosed in sept 2007. But I was willing to try anything as I still have 2 children at home. I am now o...
by beary22071
Mon Jan 30, 2012 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Oxy and Avastin at the same time??
Replies: 7
Views: 1226

Re: Has anyone had Oxy and Avastin at the same time??

Thanks for the information. Last time I had Avastin was 3 years ago and I do remember the 90, 60 and then 30 to infuse not sure if she will do that again since it has been so long.
by beary22071
Mon Jan 30, 2012 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Oxy and Avastin at the same time??
Replies: 7
Views: 1226

Has anyone had Oxy and Avastin at the same time??

The last stuff she gave me didn't work. I just had a CT scan and it showed no lore showing up but a couple nodules in my lungs got bigger. So Thursday she is starting oxy and avastin together and the 5FU pump at home. I have had Oxy ad I have had Avastin but not together. I was wondering if anyone h...
by beary22071
Tue Dec 13, 2011 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Don't count on a drug trial as your last option
Replies: 2
Views: 670

Don't count on a drug trial as your last option

I was hoping to get into a drug trial after lung nodule activity showed on my last PET scan. Had an appointment at The Cancer Center at University Hospital and asked them before I come up if not have a normal white count and having to get neupogen shots to keep it up would matter and they told me no...
by beary22071
Thu Dec 01, 2011 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Mitoxatrone??
Replies: 2
Views: 602

Re: Has anyone had Mitoxatrone??

Thanks. I knew it wasn't an approved colon cancer drug that's why my insurance won't cover it. But I am willing to try anything my onc suggests. If this doesn't work then she wants to put me back on the oxy regimend and I remember how nasty that stuff was so I am praying this one will help. Just don...
by beary22071
Thu Dec 01, 2011 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nausea Medications
Replies: 28
Views: 3569

Re: Nausea Medications

I was very nauseous as well so I know how he feels and I hope he is better soon. Emend is what worked the best for me amd I tried them all. I would suggest trying that because it really worked for me. I had Zofran years ago before I was diagnosed when I was pregnant and it worked great then, but whe...
by beary22071
Thu Dec 01, 2011 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: periods
Replies: 26
Views: 1966

Re: periods

I wish my periods would have stopped in fact when I was on the Avastin regimend I had to start taking the pill cause everytime I got chemo I had my period. That sucked every two weeks :roll: Since I started taking the pill they have been back to normal.
by beary22071
Thu Dec 01, 2011 12:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Mitoxatrone??
Replies: 2
Views: 602

Has anyone had Mitoxatrone??

My PET scan in October showed activity on the lung nodules in my lungs. In August 2010 a CT scan showed lung nodules but the PET scans never showed activity until October of 2011. I had been on Erbitux and Camptosar. After they showed up she wanted me to try a drug trial but because my white count w...
by beary22071
Thu Sep 16, 2010 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET results in Chemo for life
Replies: 3
Views: 743

PET results in Chemo for life

Went to doctor today and she said the spots on my lungs from ct scan did not light up on my PET scan. There was lymph node activity by my thyroid and in my periaortic. She said I will be back on chemo for the rest of my life. 4 weeks on 2 weeks off. I start erbitux tomorrow again. Then thursday I wi...
by beary22071
Mon Sep 13, 2010 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: May be getting kicked out of NEDville
Replies: 10
Views: 1307

Re: May be getting kicked out of NEDville

Sorry to hear that. I was just recently kicked out of nedville as well. Going for my pet scan today. Had a ct 2 weeks ago and it showed spots on my lungs too. This really sucks. All I can say is keep fighting and praying.
by beary22071
Sun Sep 12, 2010 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nedville didn't last long ct scan showed
Replies: 9
Views: 1540

Re: Nedville didn't last long ct scan showed

Thanks all I will keep you posted as to what she wants to do after my PET. Kathryn in MN I did get the shot at the end on oxy when my counts did would not come back up. When I was on the avastin I had to get the shots after every treatment. My white count would not stay up. I hated those shots they ...

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