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by stevieb
Tue Jan 08, 2019 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have ablation that worked?
Replies: 9
Views: 2016

Re: Anyone have ablation that worked?

I've had 5 lung cryoablations of the past 3 years and no local reoccurrence yet.
by stevieb
Sun Nov 11, 2018 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 2557

Re: Almost 6 years

It will be six years for me in December. I am on my way to MDA today for scans to see if I am still NED! Congrats to you!!!!
by stevieb
Thu Oct 11, 2018 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 4422

Re: ADAPT and Celebrex - What happened?

I really don’t have much side effects. The only thing that I get is a stool that somewhat burns, almost like a virus, when on the Xeloda. Other than that, I feel pretty normal. It was not part of a trial but I had my local onc call Dr Lin and get the protocol for me to follow and my onc at MDA neith...
by stevieb
Mon Oct 08, 2018 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 43
Views: 18601

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

So happy for you zephyr! Hope all does well and a speedy recovery. Which Dr. did your surgery?
by stevieb
Mon Oct 08, 2018 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 4422

Re: ADAPT and Celebrex - What happened?

I have had one new lung nodule pop up since starting ADAPT almost 2 years ago. I had a cryoablation last month for that 6mm nodule and will continue on ADAPT indefinitely for now. Doing well and living an (almost) normal life. NED again!
by stevieb
Wed Oct 03, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 51
Views: 20913

Re: Bev G

She was such a help when I was first diagnosed. She will be missed greatly on this board. Thank you Bev!
by stevieb
Wed Oct 03, 2018 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?
Replies: 4
Views: 627

Re: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?

I tried every cream possible, nothing helped and it is extremely painful (I considered getting a permanent colostomy if I had too!). MDA did a botox injection to the muscles surrounding the rectum and got immediate relief and been good ever since.
by stevieb
Fri Aug 17, 2018 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 26
Views: 8448

Re: Any Stage 4 long term survivors/cured ?

I am currently 5.5 years since diagnosis of Stage IV to liver and lungs. After chemo, surgeries (6), cryoablations, and maintenance chemo I was NED for 15 months. Just found a small spot on my lower left lung and have another cryoablation scheduled Sept. 5th to take care of that one. Been living a n...
by stevieb
Fri Aug 17, 2018 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal fissure post reversal
Replies: 10
Views: 1636

Re: Rectal fissure post reversal

I had a botox injection into the muscles around the fissue done at MDA when I had my fissure. Pain went away almost instantly and haven't had any since. They put you to sleep for the injection.
by stevieb
Thu May 17, 2018 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5.5 years stage IV, now one year NED
Replies: 12
Views: 1609

Re: 5.5 years stage IV, now one year NED

You can research the protocol online and ask your onc to follow it or try calling the Fred Hutch Cancer Center and see if anyone will give you a contact number / email for him.
by stevieb
Thu May 17, 2018 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5.5 years stage IV, now one year NED
Replies: 12
Views: 1609

5.5 years stage IV, now one year NED

My most recent scan this week came back NED again. That will make it one year since my last lung cryablation. I am so thankful and post this to give hope to others. I am still on maintenance Xeloda, Celebrex, and Avastin but live a pretty normal life now!

Best wishes,

Stephen
by stevieb
Sun May 13, 2018 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 1261

Re: Still NED, 4.5 years after lung recurrence

Absolutely wonderful news!!! I sit at MDAnderson right now waiting for my Ct scan and hoping for one year NED!!!!
by stevieb
Thu Feb 15, 2018 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 months NED after 5 years stage IV
Replies: 15
Views: 3619

9 months NED after 5 years stage IV

I received my third consecutive clear scan this past Monday. That makes 9 months NED! This is the longest run of NED that I have had in the past 5+ years (since diagnosis). I will continue on Adapt with Avastin for three more months and scan again in May. This is really incredible news! Thanks for a...
by stevieb
Mon Dec 04, 2017 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years Stage IVB and NED again last 6 months!!
Replies: 8
Views: 1193

5 years Stage IVB and NED again last 6 months!!

My most recent scan in November revealed that I am still NED after a lung cryoablation in May!! I am currently on ADAPT and doing well and living an almost normal life. Best wishes to all!!!
by stevieb
Mon Dec 04, 2017 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung surgery advice
Replies: 15
Views: 2673

Re: Lung surgery advice

I had to go to London (Dr. Ladas) because no doctor in the US would do surgery, had too many nodules. Dr. Ladas removed 12 bilateral lung nodules during my two surgeries with him. Gotcha. Doctor mentioned my husband is pushing the limit with 5 nodules, so makes sense. Do you know if having surgery ...

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