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by stevieb
Wed Jun 24, 2020 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7.5 years stage 4B; now NED for 21 months!
Replies: 8
Views: 1201

Re: 7.5 years stage 4B; now NED for 21 months!

My tumor had KRAS mutation G12D.

Hey Sophy!! I’m still in ADAPT also. Hopefully, for 3 more months and then I can get off if it!!
by stevieb
Wed Jun 24, 2020 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7.5 years stage 4B; now NED for 21 months!
Replies: 8
Views: 1201

7.5 years stage 4B; now NED for 21 months!

I am here to give hope to those of you battling! I am now 21 months NED since having a lung met cryoablated in Sept of 2018 and was 17 months NED before that from Stage IV colorectal cancer. I know I always looked for inspiring posts when I was newly diagnosed and I don’t come here often anymore. St...
by stevieb
Sun Dec 08, 2019 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2653

Re: 8 year cancerversary

Congratulations!!
by stevieb
Sun Dec 08, 2019 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3262

Re: 7 Year cancerversary

Congratulations!
by stevieb
Sun Dec 08, 2019 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4451

Re: 10 Years and Counting

Congratulations and wishes of many more to come!!!
by stevieb
Tue Jan 08, 2019 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have ablation that worked?
Replies: 9
Views: 2369

Re: Anyone have ablation that worked?

I've had 5 lung cryoablations of the past 3 years and no local reoccurrence yet.
by stevieb
Sun Nov 11, 2018 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 3791

Re: Almost 6 years

It will be six years for me in December. I am on my way to MDA today for scans to see if I am still NED! Congrats to you!!!!
by stevieb
Thu Oct 11, 2018 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 5748

Re: ADAPT and Celebrex - What happened?

I really don’t have much side effects. The only thing that I get is a stool that somewhat burns, almost like a virus, when on the Xeloda. Other than that, I feel pretty normal. It was not part of a trial but I had my local onc call Dr Lin and get the protocol for me to follow and my onc at MDA neith...
by stevieb
Mon Oct 08, 2018 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 45
Views: 21287

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

So happy for you zephyr! Hope all does well and a speedy recovery. Which Dr. did your surgery?
by stevieb
Mon Oct 08, 2018 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 20
Views: 5748

Re: ADAPT and Celebrex - What happened?

I have had one new lung nodule pop up since starting ADAPT almost 2 years ago. I had a cryoablation last month for that 6mm nodule and will continue on ADAPT indefinitely for now. Doing well and living an (almost) normal life. NED again!
by stevieb
Wed Oct 03, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 51
Views: 23302

Re: Bev G

She was such a help when I was first diagnosed. She will be missed greatly on this board. Thank you Bev!
by stevieb
Wed Oct 03, 2018 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?
Replies: 4
Views: 1009

Re: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?

I tried every cream possible, nothing helped and it is extremely painful (I considered getting a permanent colostomy if I had too!). MDA did a botox injection to the muscles surrounding the rectum and got immediate relief and been good ever since.
by stevieb
Fri Aug 17, 2018 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 26
Views: 9910

Re: Any Stage 4 long term survivors/cured ?

I am currently 5.5 years since diagnosis of Stage IV to liver and lungs. After chemo, surgeries (6), cryoablations, and maintenance chemo I was NED for 15 months. Just found a small spot on my lower left lung and have another cryoablation scheduled Sept. 5th to take care of that one. Been living a n...
by stevieb
Fri Aug 17, 2018 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal fissure post reversal
Replies: 10
Views: 2231

Re: Rectal fissure post reversal

I had a botox injection into the muscles around the fissue done at MDA when I had my fissure. Pain went away almost instantly and haven't had any since. They put you to sleep for the injection.
by stevieb
Thu May 17, 2018 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5.5 years stage IV, now one year NED
Replies: 12
Views: 2212

Re: 5.5 years stage IV, now one year NED

You can research the protocol online and ask your onc to follow it or try calling the Fred Hutch Cancer Center and see if anyone will give you a contact number / email for him.

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