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by kellywin
Wed Sep 12, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13136

Re: Bev G

So terribly sad to hear this. Bev provided much support to everyone here. Thoughts and prayers for her friends & family, and everyone here who was close to Bev.
by kellywin
Mon Jun 18, 2018 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 3507

Re: Taste Change Advice

I agree that things are going to probably change from day to day and/or infusion to infusion. At times, I couldn't even stand the taste of water, I tried different bottled waters trying to find ones that tastes "less worse" than others. One thing that I could eat that helped me keep down o...
by kellywin
Mon Jun 18, 2018 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pizza
Replies: 21
Views: 3859

Re: Pizza

Haha and I work at McDonalds (well used to cannot do my physical role anymore) so know what you mean. There is something appealing about eating junk food when we know it is not a healthy diet. Steve PS-I had better add that my McDonalds is one of the best places to work! True! With a great team tha...
by kellywin
Mon Jun 18, 2018 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Using a vaginal dilator after radiation
Replies: 3
Views: 433

Re: Using a vaginal dilator after radiation

Go see a really good gynecologist about your options. Are you using any vaginal pills and creams? You should be using those with the dilators. Also, they make ones that you keep in the refrigerator called "cool cones", it's supposed to feel better. Personally, I didn't use those, but I can...
by kellywin
Mon Jun 18, 2018 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Here 2 Weeks In....Razorblades have started
Replies: 9
Views: 965

Re: New Here 2 Weeks In....Razorblades have started

Marc (GilletteMan) - I feel terrible reading your post and laughing, it's so sad that it's funny because I vividly remember it just as you've described, (minus the Penis issues, I've got the opposite :D BUTT believe me, the shit that radiation does to a woman is no day at the beach either, like a fl...
by kellywin
Mon Jun 18, 2018 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Losing the will to live
Replies: 16
Views: 4897

Re: Losing the will to live

First, I want to say I'm so sorry for what you are going through. I hope this doesn't come out wrong, but I'm not sure I'd want my mom to be on Xelox at her age. It's absolutely rough and I was 40. The thought of going through it at an older age is terrifying. The chemo is absolute hell in so many w...
by kellywin
Mon Jun 18, 2018 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 31
Views: 5804

Re: Better news, Neuropathy & questions

Spot on Liver/Hemangioma: I also had a spot on my liver that they wanted to "watch" it was really hard to wait through chemo/radiation to see if the spot changed so that they could rule out a met - turned out to be a hemangioma (no idea how to spell that right). Basically, they're watching...
by kellywin
Thu Jun 14, 2018 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 16
Views: 4186

Re: Just diagnosed with rectal cancer and terrified

Welcome Jessica, We know what you're experiencing. It's absolutely terrifying. I had the same thing, bleeding. Rectal and colon cancers are tough because there are little to no symptoms, so don't go kicking yourself for thinking you missed something. I never in a million years thought younger people...
by kellywin
Tue Jun 12, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 8186

Re: Feeling really sad and in need of support

Hi VeggieLvr, Please don't ever feel bad about posting a topic that is sad or not upbeat. There's nothing happy or fantastic about a cancer diagnosis or treatment. It's sucks. All of it. This is such a hard time. I echo some of the other's comments about switching to Xeloda instead of the pump, you ...
by kellywin
Tue Jun 12, 2018 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2- no follow up care???
Replies: 16
Views: 4080

Re: Stage 2- no follow up care???

I echo what others have said. Stage II is kind of a grey area for treatment, but he should at least be referred to an Oncologist to talk about options.
by kellywin
Tue Jun 12, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 737
Views: 235040

Re: For Stage III's: NED for how long now?

I feel like it's time for me to add to this thread :D . It's been 5 years! Was diagnosed at 40, stage IIIC as you can see by my signature. Had my latest CT scan in April and still all clear. I do have to have another colonoscopy soon, BUTT happy to be here and give some positivity to all of you newl...
by kellywin
Thu Aug 17, 2017 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 117
Views: 26155

Re: BrownBagger ....... I don't know what to say

I have no words, reading this right now I am at a loss. My only thoughts are 'Eric, you will be deeply missed' and that statement just isn't adequate.

...such a loss...
by kellywin
Wed Jul 19, 2017 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on XELOX and working?
Replies: 20
Views: 5402

Re: Anyone on XELOX and working?

As I'm sure you've seen, everyone has different experiences. I worked full time (for the most part) throughout treatment. With Xelox being every 3 weeks, I think (personally) that's easier than Folfox (every other week) as you have more time in between to feel like yourself. For me, each infusion I ...
by kellywin
Mon Jul 10, 2017 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect?
Replies: 24
Views: 6838

Re: What to expect?

So sorry that you had to join, but welcome. My GI doctor told me to get a CT scan of my pelvis area. Then my oncologist had me get a CT scan of my chest area in addition to an MRI of the pelvis. All with and without contrast. I am on a high deductible insurance plan, and those three tests cost me ov...
by kellywin
Mon Jul 10, 2017 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very concerned 31/yo female
Replies: 10
Views: 2083

Re: Very concerned 31/yo female

I know how scared you are. Make sure you get that colonoscopy. With a history of bleeding - it should be a no brainer. I'm sure the chances that it's hemorrhoids or a fissure is way more likely, but you want to rule out anything else. Most times these cancers are slow growing and you can't change th...

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