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by teachpdx
Thu Aug 02, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom's ileostomy reversal 07/24/18
Replies: 7
Views: 403

Re: Mom's ileostomy reversal 07/24/18

I highly suggest getting a bidet seat/attachment. I have a "Biffy" that has saved my ass. Wiping is so painful and no wipe is as gentle as water. Some of the models heat the water. Barriers help, butt then when you go you now have slippery poop/barrier which is even MORE difficult to deal ...
by teachpdx
Fri Jul 20, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Excited about a root canal!
Replies: 3
Views: 217

Re: Excited about a root canal!

I think I cracked a tooth (upper end molar) on an apple peel of all things and I'm looking forward to getting it capped. I understand being happy. Enjoy eating!
by teachpdx
Tue Jun 12, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12th cancer birthday on june 6
Replies: 7
Views: 615

Re: 12th cancer birthday on june 6

Helen, thank you for sharing. Surviving is such a difficult journey butt we are mostly thankful to be able to be on the journey.

I'm in my sixth year of and only just beginning to share my struggle with others - they often assume you're good to go after treatment...

Peace to you in your journey.
by teachpdx
Mon May 28, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member with Xeloda question for Stage II
Replies: 18
Views: 1059

Re: New member with Xeloda question for Stage II

I had a bad case of HFS. It was so painful to touch and walk. I wore cotton gloves to protect my hands and soft wool socks on my feet. Lotions did nothing for my HFS & in fact made my feet feel hotter. Everyone experiences chemo differently. My HFS (neuropathy - dr's words) took 3 years to go aw...
by teachpdx
Wed May 23, 2018 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 6
Views: 515

Re: I declined Oxaliplatin

Boxhill, as I mentioned in my post I have not done research. My point in posting was to let people know that they can decline a treatment.
by teachpdx
Tue May 22, 2018 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 6
Views: 515

Re: I declined Oxaliplatin

Glad to be of help. I guess then the efficacy is related to Lynch. I hate to see people suffer if it's not necessary.
by teachpdx
Tue May 22, 2018 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 6
Views: 515

I declined Oxaliplatin

HI Folks, I was reading a post on length of neuropathy after being on Oxaliplatin. I had two thoughts: One - I feel bad for those with the long term side effects. Two - I'm happy I declined taking it. I had a difficult time with Xeloda and HFS. After my surgery and during "mop up" time I h...
by teachpdx
Wed May 09, 2018 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ten years and I missed it!
Replies: 17
Views: 1350

Re: Ten years and I missed it!

I'm so happy for you! I just passed my 6 year mark and I look forward to missing one. Good to hear from survivors.
by teachpdx
Thu Apr 12, 2018 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SO FRUSTRATED! - I hate these 'mega' medical groups
Replies: 12
Views: 1234

Re: SO FRUSTRATED! - I hate these 'mega' medical groups

I've come to the conclusion it's up to us to take care of ourselves. If we don't advocate for ourselves we are at their mercy and many times not a good outcome. It sucks, but basically "buyer beware".
by teachpdx
Fri Mar 23, 2018 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 18
Views: 3915

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018

So sad to hear of her passing but not unexpected. I also followed her blog and felt inspired by her and felt she had a great gift.

RIP warrior.
by teachpdx
Fri Mar 02, 2018 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GABAPENTIN
Replies: 6
Views: 888

Re: GABAPENTIN

When I took it it made my neuropathy worse so I went off it. I am apt to have the weird side effects. My neuropathy was from HFS.
by teachpdx
Tue Feb 27, 2018 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to you do to keep up your strength?
Replies: 11
Views: 1095

Re: What to you do to keep up your strength?

CR you are such a poet - love reading your posts. When it comes to energy, I have found that what I think is NECESSARY has changed dramatically the last five years. I literally recycled a pot I cooked rice in to cook soup in this evening! You might find this funny or gross, butt I've never done that...
by teachpdx
Tue Feb 27, 2018 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to Board - Xeloda and Side Effects
Replies: 21
Views: 2033

Re: New to Board - Xeloda and Side Effects

I second the recommendation of Ativan. Ask your onc for a prescription. It's a "two-fer" drug -- it helps the nausea AND the anxiety. Take a dose right before bedtime and it will also help you sleep. Getting diagnosed with cancer is a life-changing event. Sometimes the mind has trouble pr...
by teachpdx
Wed Jan 31, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news...and I'm at my lowest
Replies: 18
Views: 1910

Re: Good news...and I'm at my lowest

Hey Sealdog, I pretty much went through same treatment as you, plus I'm Lynch, and I had such a bad reaction to post Xeloda (only 1-1/2 cycle instead of 6) that I quit early. Onc said people with Lynch less apt to have metastases but more apt to new primary. Also said post efficacy was only 10% &...

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