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by teachpdx
Mon Oct 28, 2019 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tired of rectal pain, considering ostomy; Any thoughts?
Replies: 2
Views: 244

Re: Tired of rectal pain, considering ostomy; Any thoughts?

I don't have any suggestions for you but you have my sympathy. Sorry that you're in such pain. Peace, Kristi
by teachpdx
Sun Oct 06, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any prepping and scoping buddies out there ?
Replies: 25
Views: 1492

Re: Any prepping and scoping buddies out there ?

I'm in need of mine and need to schedule. Used Suprep last time & won't be doing that again.

Best wishes for a gentle clean out and a clean out...come.

Peace, Kristi
by teachpdx
Fri Sep 27, 2019 2:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and Water
Replies: 15
Views: 1412

Re: LAR Syndrome and Water

I like water and drink as much as I can, but there can be issues with water around eating. The more water I drink around a meal the waterier my poop becomes and that's no good because it can cause clustering or looser stool which is another problem. So I try and drink my water inbetween meals. Soup ...
by teachpdx
Fri Sep 06, 2019 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 1069

Re: O/T : I wish Brownbagger were here

Thanks CRguy. I miss him too, think of him often and miss his garden pictures. I also miss his picture of Einstein on a bike. I'm back to biking myself & wish I could share with him.

Gone butt not forgotten. Peace Brownbagger.
by teachpdx
Sat Aug 24, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post cancer fatigue
Replies: 9
Views: 643

Re: Post cancer fatigue

Sadysue, thanks for posting. We're about the same time out and it's taken me this long to figure out that fatigue was a big issue. Peace to you on your journey - I know how much it sucks. Feel free to PM me if you want to chat.
by teachpdx
Fri Aug 23, 2019 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post cancer fatigue
Replies: 9
Views: 643

Post cancer fatigue

I was just wondering how many survivors here suffer from post cancer fatigue. I keep thinking I'll get better, and I do exercise, but then a day will hit and I can't get off the couch. Hard to explain to non-survivors.
by teachpdx
Mon Aug 12, 2019 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: jpouch rectal pains
Replies: 2
Views: 484

Re: jpouch rectal pains

I had a lot of pain post surgery, etc that lasted for years. I had an adhesion that took about 3 years to go away - with a great deal of diligence on my part. Just recently getting to the point where I can sit for extended periods of time without pain - almost 7 years out. All I can say is to stick ...
by teachpdx
Wed Jul 31, 2019 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool Issues After Surgery?
Replies: 2
Views: 477

Re: Stool Issues After Surgery?

Sorry to be the bearer of bad news, but you're in a marathon and you will have a new normal that may take YEARS to establish. Try some Imodium and maybe keep a food log so you can see whst your triggers are. Also, please consider adding a signature so people have more info when responding. Have pati...
by teachpdx
Fri Jul 12, 2019 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 4355

Re: CLUSTERINGGGGGGGGG!!!!!!!

The "pat pat" happens a lot easier if you have a bidet (the kind that attach to your toilet). I swear by my biffy and you have no bottle waste. It's: gently wipe, water, pat/wipe, rinse and repeat if necessary.
by teachpdx
Thu Apr 11, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: xeloda
Replies: 4
Views: 658

Re: xeloda

Sounds like Hand and Foot syndrome from Xeloda. I had it really bad. Very different from neuropathy from oxilplatin. My feet got very hot and red like you're talking about. I would contact your dr re. your symptoms. I had soft cushy (high pile) wool rugs that I could step on for softness. High pile ...
by teachpdx
Wed Mar 13, 2019 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 5610

Re: Vaginal stenosis - an issue for women with rectal cancer

My issue has been with the width not the depth. I gave birth to a 12 lb child so when I used the dilators they seemed to do nothing. I've been celibate (not by choice) since my treatment, but the vaginal opening is very tight and if anything tried to get in there I'm pretty sure I would tear. Not lo...
by teachpdx
Wed Mar 13, 2019 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Risk/Benefit analysis of radiation for Women with Rectal Cancer?
Replies: 1
Views: 389

Re: Risk/Benefit analysis of radiation for Women with Rectal Cancer?

Boxhill, I totally concur with you. My sex life is pretty much over (not that I have one anyway). It would be way too painful and the tissue is so compromised that with the slightest amount of friction I can have tears. I went to a gynecologist (female) after my treatments to see if she could help m...
by teachpdx
Fri Mar 08, 2019 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Describing LAR surgery
Replies: 4
Views: 522

Describing LAR surgery

So I was trying to discuss LAR (rectum removal) with classmates in a Master Gardening class & I described the rectum as a drawstring. So after surgery it is replaced with a snap closure. Anyone else have some other analogies?
by teachpdx
Mon Feb 04, 2019 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coffee...yes or no?
Replies: 17
Views: 2061

Re: Coffee...yes or no?

My coffee consumption is based on it being a vise and nothing else - and I protect this with my whole being. I love coffee and since my surgery consumption of it can cause me to cluster more and recently painful indigestion. I've fixed it with a few tweeks. No more than one cup of coffee on an empty...

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