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by teachpdx
Fri Sep 06, 2019 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 844

Re: O/T : I wish Brownbagger were here

Thanks CRguy. I miss him too, think of him often and miss his garden pictures. I also miss his picture of Einstein on a bike. I'm back to biking myself & wish I could share with him.

Gone butt not forgotten. Peace Brownbagger.
by teachpdx
Sat Aug 24, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post cancer fatigue
Replies: 9
Views: 490

Re: Post cancer fatigue

Sadysue, thanks for posting. We're about the same time out and it's taken me this long to figure out that fatigue was a big issue. Peace to you on your journey - I know how much it sucks. Feel free to PM me if you want to chat.
by teachpdx
Fri Aug 23, 2019 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post cancer fatigue
Replies: 9
Views: 490

Post cancer fatigue

I was just wondering how many survivors here suffer from post cancer fatigue. I keep thinking I'll get better, and I do exercise, but then a day will hit and I can't get off the couch. Hard to explain to non-survivors.
by teachpdx
Mon Aug 12, 2019 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: jpouch rectal pains
Replies: 2
Views: 375

Re: jpouch rectal pains

I had a lot of pain post surgery, etc that lasted for years. I had an adhesion that took about 3 years to go away - with a great deal of diligence on my part. Just recently getting to the point where I can sit for extended periods of time without pain - almost 7 years out. All I can say is to stick ...
by teachpdx
Wed Jul 31, 2019 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool Issues After Surgery?
Replies: 2
Views: 380

Re: Stool Issues After Surgery?

Sorry to be the bearer of bad news, but you're in a marathon and you will have a new normal that may take YEARS to establish. Try some Imodium and maybe keep a food log so you can see whst your triggers are. Also, please consider adding a signature so people have more info when responding. Have pati...
by teachpdx
Fri Jul 12, 2019 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 56
Views: 3903

Re: CLUSTERINGGGGGGGGG!!!!!!!

The "pat pat" happens a lot easier if you have a bidet (the kind that attach to your toilet). I swear by my biffy and you have no bottle waste. It's: gently wipe, water, pat/wipe, rinse and repeat if necessary.
by teachpdx
Thu Apr 11, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: xeloda
Replies: 4
Views: 609

Re: xeloda

Sounds like Hand and Foot syndrome from Xeloda. I had it really bad. Very different from neuropathy from oxilplatin. My feet got very hot and red like you're talking about. I would contact your dr re. your symptoms. I had soft cushy (high pile) wool rugs that I could step on for softness. High pile ...
by teachpdx
Wed Mar 13, 2019 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 5382

Re: Vaginal stenosis - an issue for women with rectal cancer

My issue has been with the width not the depth. I gave birth to a 12 lb child so when I used the dilators they seemed to do nothing. I've been celibate (not by choice) since my treatment, but the vaginal opening is very tight and if anything tried to get in there I'm pretty sure I would tear. Not lo...
by teachpdx
Wed Mar 13, 2019 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Risk/Benefit analysis of radiation for Women with Rectal Cancer?
Replies: 1
Views: 359

Re: Risk/Benefit analysis of radiation for Women with Rectal Cancer?

Boxhill, I totally concur with you. My sex life is pretty much over (not that I have one anyway). It would be way too painful and the tissue is so compromised that with the slightest amount of friction I can have tears. I went to a gynecologist (female) after my treatments to see if she could help m...
by teachpdx
Fri Mar 08, 2019 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Describing LAR surgery
Replies: 4
Views: 480

Describing LAR surgery

So I was trying to discuss LAR (rectum removal) with classmates in a Master Gardening class & I described the rectum as a drawstring. So after surgery it is replaced with a snap closure. Anyone else have some other analogies?
by teachpdx
Mon Feb 04, 2019 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coffee...yes or no?
Replies: 17
Views: 1956

Re: Coffee...yes or no?

My coffee consumption is based on it being a vise and nothing else - and I protect this with my whole being. I love coffee and since my surgery consumption of it can cause me to cluster more and recently painful indigestion. I've fixed it with a few tweeks. No more than one cup of coffee on an empty...
by teachpdx
Wed Dec 12, 2018 10:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fingertip and toe numbness from Cape or Oxaly?
Replies: 4
Views: 811

Re: Fingertip and toe numbness from Cape or Oxaly?

I never took Oxaly, but I had a bad case of HFS & still have issues with cold hands/feet. If my hands get cold I need an external source to get warm again. Sometimes walk around with my hands tucked under my armpits. I get the not liking your feet hot so I would suggest testing cold sources on m...
by teachpdx
Wed Dec 12, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation Xeloda Side Effects Question
Replies: 5
Views: 958

Re: Radiation Xeloda Side Effects Question

I'm sorry I didn't see your post earlier - not on so much anymore.

Sorry for the loss of your mother. Feel free to PM if it might give you some comfort.

Peace,

Kristi
by teachpdx
Mon Nov 05, 2018 4:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 1372

Re: Study - Sensitive Topics

As a non practicing lesbian, when I was finished with treatment I remember the doc telling me it was ok to resume sexual relations (assuming I WAS having that) and all I could think was a penis MIGHT go up there butt that lesbian sex was going to be next to impossible. So ask away!
by teachpdx
Mon Oct 22, 2018 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 14
Views: 1887

Re: Isolation

Hi Dan. This is a difficult journey and not for the faint of heart. Making peace with your situation can be very helpful... if you hang onto anger it's pretty difficult to move forward. We all need to mourn the person we were before and figuring out who our new us is a process that takes time. Be ki...

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