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by teachpdx
Wed Jan 31, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news...and I'm at my lowest
Replies: 18
Views: 1262

Re: Good news...and I'm at my lowest

Hey Sealdog, I pretty much went through same treatment as you, plus I'm Lynch, and I had such a bad reaction to post Xeloda (only 1-1/2 cycle instead of 6) that I quit early. Onc said people with Lynch less apt to have metastases but more apt to new primary. Also said post efficacy was only 10% &...
by teachpdx
Tue Jan 23, 2018 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What's In a Name
Replies: 11
Views: 709

Re: What's In a Name

I'm five years out and I've just become comfortable saying I'm a cancer survivor. Usually comes up in relation to something else and it's usually an explainer.

Technically if you're here you're a survivor. Best of luck on your journey & your new you. Kristi
by teachpdx
Mon Jan 22, 2018 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 31
Views: 1157

Re: Female Pains AFTER radiation, No Doc will Listen...

I also have an urgent bladder these days. I wear a pad when I'm working (as substitute teacher) because I usually pee a bit AFTER I've already peed, especially when sitting down afterwards. Try to make sure I get it all but sometimes I forget and sometimes... I also can get an urgent need to pee and...
by teachpdx
Wed Jan 17, 2018 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 53
Views: 16722

Re: Low Anterior Resection Syndrome: Do you have it?

Her exam was through my vagina. I had damage to my vagina during my LAR. My surgeon accidentally punched a hole in it while scraping my rectum off of it. So I have issues in both openings. I'm so sorry - that really sucks. I feel like recovery from rectal cancer does not receive near as much attent...
by teachpdx
Wed Jan 17, 2018 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 31
Views: 1157

Re: Female Pains AFTER radiation, No Doc will Listen...

I was not given any advice on putting anything on afterwards. Plenty of notes in waiting room for breast cancer radiation patients. The problem with salves is they say you should be salve free when receiving radiation. Try getting that stuff off - especially on delicate tissues. A bit of a catch-22....
by teachpdx
Tue Jan 16, 2018 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 53
Views: 16722

Re: Low Anterior Resection Syndrome: Do you have it?

Anne, has your PT suggested going through your vagina to get to pelvic floor muscles? I actually delayed my reversal for the pelvic floor PT because it was so effective. Also I don't think any type of PT can go through the anus - the tissue is too compromised. Any exam etc causes me to bleed. Too mu...
by teachpdx
Tue Jan 16, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phantom rectum pain
Replies: 4
Views: 484

Re: Phantom rectum pain

Hi Karen, I've pretty much have come to the conclusion that it's the levator ani muscle - smallish muscle that slings around the rectum. Without the rectum for support and having a rather wide pelvic opening (gave vaginal birth to 12lb child) I think it's too much for this muscle and there's a thres...
by teachpdx
Tue Jan 16, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 31
Views: 1157

Re: Female Pains AFTER radiation, No Doc will Listen...

Sorry for your discomfort. I had lots of pain after my surgery, but not before. You have my sympathy re lack of sympathy/understanding on what radiation does to delicate pelvic tissue. My advise is to not give up with looking for answers. I know easier said than done, especially when in so much pain...
by teachpdx
Mon Dec 18, 2017 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phantom rectum pain
Replies: 4
Views: 484

Phantom rectum pain

I'm not sure if this is what's going on, but I'm five years out and still in pain. I've been through PT and with their help was able to release an adhesion 4 years post surgery. My quality of life kinda sucks. I've got my bowels under control - it's the pain in my ass. Not a sharp pain but a throbbi...
by teachpdx
Tue Dec 12, 2017 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supplements to help/resolve LARS clustering
Replies: 8
Views: 449

Re: Supplements to help/resolve LARS clustering

You are very new to this process and it will take awhile for your body to adjust. I don't think supplements are the holy grail at this point. MD Anderson has website with info on how to manage your diet post LAR, bowel surgery. Keeping a food journal can be helpful as well as Immodium (if approved) ...
by teachpdx
Tue Nov 07, 2017 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 20% co pay for colonscopy on Medicare?
Replies: 3
Views: 392

Re: 20% co pay for colonscopy on Medicare?

Thanks Betsy. I got things figured out. Turns out it should have been included with biannual care. Called provider & they took care of it.

Just figuring how to work with medicare and turns out going to provider should be first step and Unitedcare last.
by teachpdx
Mon Nov 06, 2017 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 20% co pay for colonscopy on Medicare?
Replies: 3
Views: 392

20% co pay for colonscopy on Medicare?

I was hit with a $400 co pay for my colonoscopy on Medicare's UnitedCare. I thought it was covered every two years for high risk and was told that it's a high risk procedure for cancer survivors (same colonoscopy) and considered outpatient surgery and therefore I was subject to a 20% copay. Just wou...
by teachpdx
Mon Oct 30, 2017 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Digestive issues after rectal cancer treatment
Replies: 22
Views: 1821

Re: Digestive issues after rectal cancer treatment

Hi KCP. I'm 5+ years post ileostomy reversal and have done a great deal to manage my bowels. I also have increased my carb intake to about double. I can eat veggies but best if eaten with potatoes - seems to be best carb for binding. MD Anderson has a program that's worth looking into. Things that I...
by teachpdx
Mon Aug 28, 2017 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years post LAR
Replies: 6
Views: 1678

5 years post LAR

Today marks the 5 year anniversary of my surgery for rectal cancer that forever changed my anatomy. With presurgery chemo and radiation my body had a lot to adjust to. The process has taken 5 years. After 3 years I could walk without pain. Rehabbing myself - working specific muscle groups when runni...
by teachpdx
Sat Aug 05, 2017 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T ... please indulge me for a sec !
Replies: 13
Views: 1308

Re: O/T ... please indulge me for a sec !

Damned you CR - you made me cry. I don't cry much these days and hearing about BB really sent me for a loop and I cried, and then got off my ass and did something because I COULD. I NEVER forget those who have gone. I don't delete their numbers off of my caller ID. I don't delete their voicemail. Ev...

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