Search found 621 matches

Go to advanced search

by teachpdx
Thu Apr 11, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: xeloda
Replies: 4
Views: 278

Re: xeloda

Sounds like Hand and Foot syndrome from Xeloda. I had it really bad. Very different from neuropathy from oxilplatin. My feet got very hot and red like you're talking about. I would contact your dr re. your symptoms. I had soft cushy (high pile) wool rugs that I could step on for softness. High pile ...
by teachpdx
Wed Mar 13, 2019 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2526

Re: Vaginal stenosis - an issue for women with rectal cancer

My issue has been with the width not the depth. I gave birth to a 12 lb child so when I used the dilators they seemed to do nothing. I've been celibate (not by choice) since my treatment, but the vaginal opening is very tight and if anything tried to get in there I'm pretty sure I would tear. Not lo...
by teachpdx
Wed Mar 13, 2019 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Risk/Benefit analysis of radiation for Women with Rectal Cancer?
Replies: 1
Views: 206

Re: Risk/Benefit analysis of radiation for Women with Rectal Cancer?

Boxhill, I totally concur with you. My sex life is pretty much over (not that I have one anyway). It would be way too painful and the tissue is so compromised that with the slightest amount of friction I can have tears. I went to a gynecologist (female) after my treatments to see if she could help m...
by teachpdx
Fri Mar 08, 2019 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Describing LAR surgery
Replies: 4
Views: 292

Describing LAR surgery

So I was trying to discuss LAR (rectum removal) with classmates in a Master Gardening class & I described the rectum as a drawstring. So after surgery it is replaced with a snap closure. Anyone else have some other analogies?
by teachpdx
Mon Feb 04, 2019 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coffee...yes or no?
Replies: 17
Views: 1445

Re: Coffee...yes or no?

My coffee consumption is based on it being a vise and nothing else - and I protect this with my whole being. I love coffee and since my surgery consumption of it can cause me to cluster more and recently painful indigestion. I've fixed it with a few tweeks. No more than one cup of coffee on an empty...
by teachpdx
Wed Dec 12, 2018 10:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fingertip and toe numbness from Cape or Oxaly?
Replies: 4
Views: 684

Re: Fingertip and toe numbness from Cape or Oxaly?

I never took Oxaly, but I had a bad case of HFS & still have issues with cold hands/feet. If my hands get cold I need an external source to get warm again. Sometimes walk around with my hands tucked under my armpits. I get the not liking your feet hot so I would suggest testing cold sources on m...
by teachpdx
Wed Dec 12, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation Xeloda Side Effects Question
Replies: 5
Views: 800

Re: Radiation Xeloda Side Effects Question

I'm sorry I didn't see your post earlier - not on so much anymore.

Sorry for the loss of your mother. Feel free to PM if it might give you some comfort.

Peace,

Kristi
by teachpdx
Mon Nov 05, 2018 4:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 1169

Re: Study - Sensitive Topics

As a non practicing lesbian, when I was finished with treatment I remember the doc telling me it was ok to resume sexual relations (assuming I WAS having that) and all I could think was a penis MIGHT go up there butt that lesbian sex was going to be next to impossible. So ask away!
by teachpdx
Mon Oct 22, 2018 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 14
Views: 1580

Re: Isolation

Hi Dan. This is a difficult journey and not for the faint of heart. Making peace with your situation can be very helpful... if you hang onto anger it's pretty difficult to move forward. We all need to mourn the person we were before and figuring out who our new us is a process that takes time. Be ki...
by teachpdx
Mon Oct 01, 2018 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trauma informed care
Replies: 1
Views: 587

Trauma informed care

So after getting triggered from last weeks hearings and having an unpleasant dental experience I was wondering if anyone had experienced Trauma Informed Care while getting treatment.

I had some very negative experiences during treatment and was wondering if other people experienced more sensitivity.
by teachpdx
Sun Sep 09, 2018 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 51
Views: 20361

Re: Bev G

I too am saddened by her passing. She was so supportive to so many here and had a great attitude. She will be sorely missed.

RIP dear Bev. Love & peace to your family and friends.
by teachpdx
Thu Aug 02, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom's ileostomy reversal 07/24/18
Replies: 7
Views: 953

Re: Mom's ileostomy reversal 07/24/18

I highly suggest getting a bidet seat/attachment. I have a "Biffy" that has saved my ass. Wiping is so painful and no wipe is as gentle as water. Some of the models heat the water. Barriers help, butt then when you go you now have slippery poop/barrier which is even MORE difficult to deal ...
by teachpdx
Fri Jul 20, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Excited about a root canal!
Replies: 3
Views: 528

Re: Excited about a root canal!

I think I cracked a tooth (upper end molar) on an apple peel of all things and I'm looking forward to getting it capped. I understand being happy. Enjoy eating!
by teachpdx
Tue Jun 12, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12th cancer birthday on june 6
Replies: 7
Views: 1160

Re: 12th cancer birthday on june 6

Helen, thank you for sharing. Surviving is such a difficult journey butt we are mostly thankful to be able to be on the journey.

I'm in my sixth year of and only just beginning to share my struggle with others - they often assume you're good to go after treatment...

Peace to you in your journey.
by teachpdx
Mon May 28, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member with Xeloda question for Stage II
Replies: 18
Views: 4461

Re: New member with Xeloda question for Stage II

I had a bad case of HFS. It was so painful to touch and walk. I wore cotton gloves to protect my hands and soft wool socks on my feet. Lotions did nothing for my HFS & in fact made my feet feel hotter. Everyone experiences chemo differently. My HFS (neuropathy - dr's words) took 3 years to go aw...

Go to advanced search