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by zx10guy
Mon Feb 17, 2020 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High CEA, normal colonoscopy, need advise.
Replies: 5
Views: 372

Re: High CEA, normal colonoscopy, need advise.

Not much more to add from the others. I too had H. Pylori and was treated. Not sure if the MRI you had was just focused on your upper abdomen. But you may want to request a CT scan of your chest down to your pelvis. Other than that, your GI doc has a good plan laid out for you. In regards to your CE...
by zx10guy
Tue Feb 11, 2020 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Huge High Grade Dysplasia Polyp
Replies: 9
Views: 1242

Re: Huge High Grade Dysplasia Polyp

I had a polyp with high grade dysplasia. What you have to understand is high grade dysplasia is precancerous but the last stage before cells turn into cancer. While it's not great, it's not bad news either. But with this in mind, there could still be cancer within the polyp because the biopsies are ...
by zx10guy
Sat Feb 01, 2020 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member thoughts on being "cured"
Replies: 8
Views: 1265

Re: New member thoughts on being "cured"

I agree with the others on the topic of using the word "cured". I appreciate doctors being very optimistic as this is really needed for cancer patients who are in an extremely vulnerable situation. But I feel it was irresponsible for your doctor to use "cured" with you; especiall...
by zx10guy
Sat Feb 01, 2020 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cure for all cancers with the same treatment?
Replies: 3
Views: 1087

Re: Cure for all cancers with the same treatment?

Not to be a grinch, but I only get some what excited if a new treatment reaches phase 2 clinical trials. If a treatment is in phase 1 trials, then maybe there's some hope. Until then, any magic bullet is only just some pipe dream. There have been tons of promising "cures" in the news to on...
by zx10guy
Sat Dec 21, 2019 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does CEA fluctuate in healthy individuals
Replies: 19
Views: 2091

Re: Does CEA fluctuate in healthy individuals

No worries. It's just one of the things you have to just try to relax on. Your CEA number is fantastic taking into account from my understanding you are NED. There are many who would kill for that number. I know for me it would be awesome since before my weird CEA elevation, I've always been on the ...
by zx10guy
Fri Dec 20, 2019 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does CEA fluctuate in healthy individuals
Replies: 19
Views: 2091

Re: Does CEA fluctuate in healthy individuals

Normally this is the case that people should have very low levels of CEA. But there are exceptions. And so far I'm one of them. But it seems you're intent on trying to prove a point so I've said my peace.
by zx10guy
Fri Dec 20, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does CEA fluctuate in healthy individuals
Replies: 19
Views: 2091

Re: Does CEA fluctuate in healthy individuals

You need to ask what the normal range for the lab your doctor uses is. This will also give you an indication on the assay method that particular lab is using. As I said typically for the Bayer Siemens test normal for a non smoker is 3 and below. For the Roche test, normal is about 5 and below. Your ...
by zx10guy
Fri Dec 20, 2019 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does CEA fluctuate in healthy individuals
Replies: 19
Views: 2091

Re: Does CEA fluctuate in healthy individuals

My doc said he doesn't treat on a number alone. And that's what CEA is a number. Yes the absolute value and the trend (if it's climbing and how significantly) is important. But he said definitively, he doesn't put anyone on chemo just because their CEA is high. He has to see physical evidence of can...
by zx10guy
Fri Dec 20, 2019 1:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does CEA fluctuate in healthy individuals
Replies: 19
Views: 2091

Re: Does CEA fluctuate in healthy individuals

As radnyc has stated, there needs to be a better test than CEA. There are people who have low CEA numbers but have very advanced disease progression. And then you have those with higher than normal CEA with no evidence of disease found. Ranges of what is normal depends on the lab itself and the type...
by zx10guy
Sat Dec 14, 2019 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 3445

Re: My recent significant CEA jump.

Yes. It said skull base on the order but it actually did include my head. It was also discussed in the scan report by the radiologist as being clear. That was the only variable of where I hadn't had a scan done. But the PET/CT has now ruled that part out.
by zx10guy
Thu Dec 12, 2019 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 3445

Re: My recent significant CEA jump.

Thank you both. Yes, this CEA mess I'm in is has been very tiresome. It's similar to you walking a desert and you see water in sight. But every time you think you're close, the water keeps moving. My follow up scans have always been clear and you would think that would be reason for celebration. But...
by zx10guy
Wed Dec 11, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 3445

Re: My recent significant CEA jump.

So here's an update on my situation. Had my follow up with my doc on Monday. Had blood work done and a chat with him about my situation. He still doesn't know why my CEA is so far out of whack. Again says it could be stress related. But he's not sure. I just got my blood work results today. CEA is d...
by zx10guy
Fri Dec 06, 2019 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan interpretation
Replies: 3
Views: 921

Re: CT scan interpretation

It varies. The first oncologist I had would look through all the scans (CT and PET). Because he did this in front of me and explained the different things he was looking at, I got some knowledge where I would look at my own scans now. I definitely don't have the experience and training as doctors an...
by zx10guy
Sat Nov 30, 2019 1:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 45
Views: 6143

Re: Please help, input needed

I have to interject something about scans. CT scans are also able to pick up lesions and tumor locations along with any affected lymph nodes. Having an MRI just produces a different picture and image of any suspicious location. The common scan method used for surveillance is a CT scan. Usually an MR...
by zx10guy
Fri Nov 29, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 45
Views: 6143

Re: Please help, input needed

As others have stated, don't get ahead of things by imagining the worst case scenario. Until you get the scans, no one can say what is going on. To get a scan done sooner, you can contact your doctor and get a STAT order. If that is done, you get pushed to the head of the line. I'm sure your doctor ...

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