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by zx10guy
Wed Jul 11, 2018 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 12
Views: 497

Re: CEA false positives?

I don't know about false positives but CEA is a very useful alarm for a range of cancers. Last year over an 8 month period my CEA went from 4 to 6.2. My onc at the time sent me off for a PET scan. Result after an EBUS biopsy was Stage 3A NSCLung Cancer. I am now in remission from this but reflect t...
by zx10guy
Wed Jul 11, 2018 12:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 12
Views: 497

Re: CEA false positives?

So far haven't found anyone on the forums remotely close to what I'm going through. Last year went in for my 3 month routine checkup. Had one in December with a clear scan and CEA at around 5.4 if I recall correctly. I've always been on the high side so that number hasn't been alarming. March thing...
by zx10guy
Tue Jul 10, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 12
Views: 497

Re: CEA false positives?

So far haven't found anyone on the forums remotely close to what I'm going through. Last year went in for my 3 month routine checkup. Had one in December with a clear scan and CEA at around 5.4 if I recall correctly. I've always been on the high side so that number hasn't been alarming. March things...
by zx10guy
Sun Jun 17, 2018 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Passing of a true hero
Replies: 2
Views: 656

Passing of a true hero

Officer Ramon, you are what we as first responders aspire to be. You will be missed.

https://www.wfmynews2.com/article/news/ ... -565037185
by zx10guy
Wed Jun 13, 2018 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help! I’m scared!
Replies: 5
Views: 343

Re: Help! I’m scared!

You'll be fine. I have the rare distinction of first having a left hemicolectomy and then a few years later having a right hemicolectomy. So I'm currently functioning with only half of my original colon. Haven't had any dietary changes. Bowel habits are pretty normal but there are times I have to ur...
by zx10guy
Wed Jun 13, 2018 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1083

Re: Got both good news and scary news (HAI pump)

Something minor to add here. The gall bladder is not an organ. It's just a storage sack for bile that is produced by the liver. Bile aids in digestion of lipids/fats as it helps dissolve lipids/fats into solution. People do have a pretty normal life after having their gall bladder removed. But you m...
by zx10guy
Tue May 22, 2018 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of pet scan
Replies: 3
Views: 311

Re: Scared of pet scan

Here's my story when I was first diagnosed. Found the primary during a colonoscopy due to bleeding I've had. CT scan was ordered which also found the primary but also two lesions in my liver. At this point we didn't know if it was metastatic spread. These lesions were 3cm in size so not that small. ...
by zx10guy
Fri May 04, 2018 1:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 1171

Re: CEA increasing trend

Your dad's CEA is still within normal limits. Wait to see what the results of the CT scan are. My situation with CEA is worse than your dad's. I went from 5.2 to 15.6 in 3 months. My CEA has averaged around 14-15 for the past year with one reading spiking to 20. Just had a CT done yesterday which ca...
by zx10guy
Thu May 03, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 730
Views: 177854

Re: For Stage III's: NED for how long now?

Had my scan today and just picked up the radiology report. NED. So this will be 5.5 years out from when I was first diagnosed Stage 3b descending colon and coming up on 2 years since being diagnosed Stage 0 appendicial cancer. Now I'll have to see where my CEA is which has been averaging around 14-1...
by zx10guy
Tue Apr 24, 2018 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update CEA & CT Scan Results - Advice/Feedback Needed
Replies: 6
Views: 1066

Re: Update CEA & CT Scan Results - Advice/Feedback Needed

We've been tracking my elevated CEA levels for the past year. It went from 5.2/5.4 ish to 15.6 in 3 months and has stayed in the 15 range throughout last year. We've done everything except open me up to do exploratory; CEA tests, CT w/contrast scans, PET scan, MRI, small bowel capsule endoscopy, upp...
by zx10guy
Sun Apr 08, 2018 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fertility Post FOLFOX
Replies: 5
Views: 580

Re: Fertility Post FOLFOX

My oncologist also said the limited number of studies on the subject said wait 2 years. He said waiting one year was probably good enough. My wife didn't want to wait the full year. So she got pregnant 7 months after I had stopped chemo. I was worried to death during the checkups about any abnormali...
by zx10guy
Mon Mar 05, 2018 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy without sedation, should I?
Replies: 13
Views: 1752

Re: Colonoscopy without sedation, should I?

I have had it done twice. What started me doing this has been issues in my personal life with my wife. That is another story. I won't lie to you. It is uncomfortable especially when you're pumped full of air and they have to press on your abdomen some times to help the scope snake around some bends ...
by zx10guy
Fri Mar 02, 2018 5:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety
Replies: 19
Views: 1776

Re: Scanxiety

There's no reason you have to wait all weekend for the report. Depending on when you have your scan done, you can most certainly get the results the same day. All you have to do is call the radiology office a couple hours after having the scan done and ask if the radiology report is ready. This is t...
by zx10guy
Mon Feb 12, 2018 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cause of colon cancer discovered
Replies: 37
Views: 3208

Re: Cause of colon cancer discovered

Did anyone catch where the sampling they did was only on those with established genetics which would lean towards a higher risk of colon cancer? They only looked at those with FAP. While the theory sounds good, I would hesitate to make a broad correlation across all population sets of those that do ...
by zx10guy
Wed Feb 07, 2018 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick question about colonoscopy
Replies: 8
Views: 922

Re: Quick question about colonoscopy

As someone who has gone through the last 2 colonoscopies awake, I can say chances are real good the doc will catch any abnormalities. While awake, I was watching the same monitor my doctor was watching. He talked through various things he saw. The first colonoscopy I did awake resulted in finding th...

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