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by zx10guy
Fri Dec 06, 2019 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan interpretation
Replies: 3
Views: 191

Re: CT scan interpretation

It varies. The first oncologist I had would look through all the scans (CT and PET). Because he did this in front of me and explained the different things he was looking at, I got some knowledge where I would look at my own scans now. I definitely don't have the experience and training as doctors an...
by zx10guy
Sat Nov 30, 2019 1:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 35
Views: 1457

Re: Please help, input needed

I have to interject something about scans. CT scans are also able to pick up lesions and tumor locations along with any affected lymph nodes. Having an MRI just produces a different picture and image of any suspicious location. The common scan method used for surveillance is a CT scan. Usually an MR...
by zx10guy
Fri Nov 29, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 35
Views: 1457

Re: Please help, input needed

As others have stated, don't get ahead of things by imagining the worst case scenario. Until you get the scans, no one can say what is going on. To get a scan done sooner, you can contact your doctor and get a STAT order. If that is done, you get pushed to the head of the line. I'm sure your doctor ...
by zx10guy
Tue Nov 19, 2019 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 13
Views: 686

Re: Baseline CEA levels

That's the same article I referenced in my thread about my crazy CEA numbers. To contribute to this thread, my CEA when first diagnosed was 13.9. It dropped to just above normal for 4 years (depending on if my blood work was done under the Siemans Bayer assay method or the Roche). It jumped to a hi...
by zx10guy
Mon Nov 18, 2019 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 13
Views: 686

Re: Baseline CEA levels

Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgk...
by zx10guy
Sun Nov 10, 2019 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

CEA can apparently spike for a number of non cancer related reasons. A friend of mine has been cancer free for 7 years but her CEA was always up and down. She has some lung infections due to damage from radiation, which her docs at Dana Farber think could be the cause. They have stopped monitoring ...
by zx10guy
Sun Nov 10, 2019 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

The search is on for a superior testing method based on individual tumor DNA, which is the way to go. I found this quote from Dr. Axel Grothey, a well known oncologist at the Mayo Clinic: “ Dr. Grothey says he considers CEA to be a valuable surveillance test, but that research into better tests is ...
by zx10guy
Sun Nov 10, 2019 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

Hi , I understand your stress very well, when my mother’s CEA spiked to 40 just three months after finishing chemo, your post saved me from nervous breakdown ! Now I hope I can help you to calm down.my mom was diagnosed with stage 3b rectal cancer(recto sigmoid junction ) in July 2017.After first s...
by zx10guy
Sun Nov 10, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans
Replies: 19
Views: 1104

Re: 5 year scans

I too always get my scan reports way before my oncologist lets me know the results. At the scan facility I use, I always schedule my appointments in the morning. By doing this, I've always been able to get my scan results by the afternoon....some times sooner. The MRI I had done recently was a bit a...
by zx10guy
Thu Nov 07, 2019 11:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

Here's a link to the medical article talking about that Taiwanese woman who had extreme spikes with her CEA numbers yet did not develop any signs of cancer after 5 years of monitoring: https://academic.oup.com/jjco/article/36/12/811/874390 It appears you can also download the article in PDF format f...
by zx10guy
Thu Nov 07, 2019 10:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

I don't think you mentioned any thoracic scans. have they looked at you lungs? You really have been through the wringer. I hope things stabilize. Yes. All my CTs with my current oncologist are chest, abdomen, and pelvis CTs. The MRI I had done did not look at my thorax/chest. The PET I had done wen...
by zx10guy
Thu Nov 07, 2019 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

Thanks Claudine. I don't know what my doctor thinks now with my recent CEA being as high as it is. He did bring up all the stress I've been under and that could be a contributor to why it's so high. But before my CEA shot up to 26 and beyond, he felt my then high CEA was not cancer related. He said ...
by zx10guy
Thu Nov 07, 2019 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA - What would you do?
Replies: 28
Views: 1621

Re: Rising CEA - What would you do?

Do you have the actual radiology report? If not, you need to get it. It'll tell you what the uptake value is of that spot called SUV. If you don't have the previous PET report, I would also get that too. Yes, I have the actual report. I 'm not brave enough to look at the actual scans though. When I...
by zx10guy
Thu Nov 07, 2019 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA - What would you do?
Replies: 28
Views: 1621

Re: Rising CEA - What would you do?

The original site is actually the recto-sigmoid area, and it's very scar-tissued due to radiation. Not sure how easy it will be to surgically remove. @NHMike, they don't know the size because it was a PET scan and it only shows uptake. I think she said the uptake was a bit higher than my PET a year...
by zx10guy
Thu Nov 07, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 20
Views: 867

Re: My recent significant CEA jump.

Thanks for posting this. My CEA keeps going up (see my other thread) and they think they see recurrence at my original surgical site, but my colonoscopy a month ago was clear so I still wonder. I have been working in a stressful job, although that's not near the amount of stress you've experienced....

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