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by kiwiinoz
Thu Dec 07, 2017 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccuring Digestive issues
Replies: 13
Views: 328

Re: Reoccuring Digestive issues

Hey Joe, Just like Laura suggests it sounds possibly like adhesions or something causing a blockage. I have had 5 years of similar issues, although not quite as severe. Scans don't really show adhesions, and every time I had a scan I would simply be told I had severe fecal impaction. He could try a ...
by kiwiinoz
Thu Dec 07, 2017 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1935

Re: New on the forum

There you go Claudia On your feet, eating, things will start to improve from there. Amazing what a difference a week or two will make physically and mentally. Small digestible chunks and you can grind it away. I am 4 weeks after open surgery for adhesions and I can't exercise or run (I love running)...
by kiwiinoz
Wed Dec 06, 2017 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1935

Re: New on the forum

I always try to view the setbacks as just one more step to the end goal
Recover
Get your strength back
Undergo chemo (maybe)
Ascertain what is happening with the spot on your lung
Get a plan for that
Remain NED

This is just a blip on the road to that

Kiwi
by kiwiinoz
Wed Dec 06, 2017 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years ago
Replies: 8
Views: 260

Re: 5 years ago

Hi Susie

I see my Oncologist in February 2018 which will be 5 years from last resection. I expect him not to mention the cured word and to keep me on some sort of surveillance

Kiwi
by kiwiinoz
Wed Dec 06, 2017 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 551

Re: Adhesion surgery for blockages

Julie No idea where you live but riding a horse into town to get the mail sounds fairly rural. Even more rural and raw than where I grew up in NZ. I started running again on the weekend and will get into some trail runs next year. Who knows, I may even post some pictures if I can get some done. Keep...
by kiwiinoz
Wed Dec 06, 2017 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years ago
Replies: 8
Views: 260

5 years ago

Hi All I have officially reached my 5 year mark from diagnosis on 05 December and am pleased to say, that despite a negative diagnosis I am still here and doing well. Life has changed from thinking about cancer to being at work and struggling to keep work going and having to deal with day to day pre...
by kiwiinoz
Thu Nov 16, 2017 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 551

Re: Adhesion surgery for blockages

Hi Julie Let's say that the compacted fecal matter has been working its way out of me and I was amazed that I had that much in there. I feel so much better and lighter now so yes, there is always a positive in each cloud if you chose to look at it. Mrs Kiwi really is the one that needs the glute act...
by kiwiinoz
Thu Nov 16, 2017 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Just found out I have stage 3
Replies: 20
Views: 1038

Re: New here. Just found out I have stage 3

Been in the same place with a worse diagnosis and felt like the world was falling around my ears. I am still here, doing well and almost at the 5 year mark. There is hope and you just need to deal with each issue, one at a time. I found if I looked at the bigger picture it got too overwhelming so I ...
by kiwiinoz
Thu Nov 16, 2017 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 2146

Re: Tom marsilje

Wow, that was actually very unexpected and is a sad loss.
Hope you have relief from the pain now Tom
by kiwiinoz
Mon Nov 13, 2017 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 551

Re: Adhesion surgery for blockages

Hi Karen To run to catch the sunrise is something I always enjoy. Sunrise is about 5:45AM so it starts to get light just after 5:00-5:15AM at the moment so I have to do 4:30AM runs. I did 2 marathons, one in Sydney in September, and one in Melbourne in October, and the one in October left me with an...
by kiwiinoz
Mon Nov 13, 2017 1:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 10
Views: 551

Adhesion surgery for blockages

Hi Guys Don't you love CRC, the gift that keeps on giving. After 4 years, 11 months and 1 day from diagnosis, and after having blockages about every 6 months, causing many more CT scans that I needed, I had the worst blockage I have had yet. I have always been fortunate, if that is the correct word,...
by kiwiinoz
Sun Oct 29, 2017 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary Lung Met - Looking for Positive Experiences
Replies: 19
Views: 936

Re: Solitary Lung Met - Looking for Positive Experiences

I'll join the group again, and raise my hand too. Diagnosed with 1 met in my right lung, had it removed by VATS, did 6 months of full on FOLFOX. There are doubts to the effectiveness of chemo for this situation but I figured I had nothing to lose and a lot to gain, and I am still around and currentl...
by kiwiinoz
Wed Oct 25, 2017 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1935

Re: New on the forum

Hi Claudia

I was diagnosed at Stage IV T3N0M1 with a metastasis in my right lung.
I am coming up to 5 years from diagnosis and am currently NED (No Evidence of Disease) so I am suggesting that there is hope.

Kiwi
by kiwiinoz
Sun Oct 22, 2017 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 37
Views: 4461

Re: Any Stage IV long term survivors here?

Hi James I had to google NH to work out it was New Hampshire. Gee, it must get really cold there. In Sydney, where I live, it gets to 5 degrees C (41 degrees F) in the mornings when I run in the middle of winter on a really cold morning. How cold does it get when you run? I understand the keeping yo...

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