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by kiwiinoz
Tue Jun 02, 2020 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got diagnosed - advice appreciated
Replies: 22
Views: 2419

Re: Just got diagnosed - advice appreciated

I think you make your decisions based on your mental state and your personality. I love to be in control of my life (hard in the COVID-19 world) and with cancer that, for me was not possible. I found that I could control my diet and my exercise. I felt at the very least I could give myself a better ...
by kiwiinoz
Wed Apr 15, 2020 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello, I'm new here
Replies: 22
Views: 2381

Re: Hello, I'm new here

Hey Burnt Out Zen Sounds like you have a pretty good attitude to it all. I kind of looked at chemo a necessary evil I had to go through and for me, it made the down times a little easier. I got smashed about round 6 / 7 and ended up vomitting for 2 days, and had to have fluids, but I found that afte...
by kiwiinoz
Wed Apr 08, 2020 9:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 73083

Re: My CRC with liver mets journey

I also had an autoimmune condition going into my cancer diagnosis. As I was trying to understand how this cancer could have possibly happened since I don't have the typical risk factors (I'm under 50 years old, active/not overweight or anything and in general, have good habits as it relates to nutr...
by kiwiinoz
Thu Apr 02, 2020 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I will always be grateful I found Colon Talk
Replies: 12
Views: 2037

Re: I will always be grateful I found Colon Talk

Hi Mike I think we all agree that Colon Talk provides a safe haven for a great variety of different folk. What we all want from this environment is different for us all, and it differs as we pass through different stages. I too have a great recollection of Eric and his passing really shocked me. I k...
by kiwiinoz
Wed Mar 18, 2020 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 189
Views: 61220

Re: Rectal cancer stage IV

Hi Claudia, Running has taken a bit of a back seat over the last 12 months. It was 6 years since diagnosis so about time for my personal life to be a bit more of a focus. I had trips planned to Japan in May and Italy in June, which I have cancelled though. I still run about 4 x a week about 40-50 km...
by kiwiinoz
Wed Mar 18, 2020 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 12816

Re: Scary times . . .

Lee, death toll in Italy from the Coronavirus was 427 yesterday (18MAR) so this is not some little virus. Granted it seems to prey more on the immune compromised or those with other health issues but we tend to love in societies that value and try to look after those people. In Italy funerals are ba...
by kiwiinoz
Wed Mar 18, 2020 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 189
Views: 61220

Re: Rectal cancer stage IV

Loved the news, and loved the photos. Are you starting to think of cancer less now?
Do you run around those fields when it is not snowing? You live in a very beautiful place.
by kiwiinoz
Tue Mar 10, 2020 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 1199

Re: Almost made 5 years and now have a recurrence

Hi Dionca, Sorry to hear of the recurrence. What you have is a metachronous lung recurrence, meaning it has happened some time after the initial diagnosis, as compared to what I had being a synchronous lung tumour. That is good for you as the outcomes of metachronous are much better :D Ok, I'm tryin...
by kiwiinoz
Thu Mar 05, 2020 9:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 for 4 years, looking for advice
Replies: 17
Views: 2758

Re: Stage 4 for 4 years, looking for advice

Hi Michelle, When I was diagnosed I already had a lung lesion but I read as much as I could and came to the conclusion that there was no evidence to suggest that chemo improved the outcomes post VATS. After my LAR I got some more scans and was a suitable candidate for VATS and talked to my oncologis...
by kiwiinoz
Thu Mar 05, 2020 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another clear CT!
Replies: 15
Views: 1217

Re: Another clear CT!

Congrats Amy
by kiwiinoz
Thu Jan 09, 2020 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Way Way Way off topic but
Replies: 0
Views: 1879

Way Way Way off topic but

Hi Guys As some of you may recall I moved house to an old terrace in NOV 2018 (130 year old long & narrow old brick house where the walls on the sides are connected to the neighbours house). I found some flying ants as I called them in DEC 2018 and got the pest control guys out to look at the pl...
by kiwiinoz
Mon Jan 06, 2020 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3247

Re: 7 Year cancerversary

HI Julie I run with Mrs Kiwi and I guess it depends a bit on what she wants to do this year. We did 3 marathons last year, Sydney, Melbourne and Auckland. Sydney & Auckland are fun as you run over the car only bridge (which they close to cars of course) at the start of the run so that keeps you ...
by kiwiinoz
Sun Jan 05, 2020 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung recurrence update- good news
Replies: 29
Views: 7310

Re: Lung recurrence update- good news

Hi Beccashocked, I'm new to this board - looks like I'll need a lobectomy for a central left lower lobe nodule. Which lobe did you have removed if I may ask? I've heard that lower lobe resections may have more impact on lung function than upper lobectomy because of greater oxygen transfer in lower ...
by kiwiinoz
Sun Jan 05, 2020 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Toast to 2020!
Replies: 10
Views: 1130

Re: A Toast to 2020!

Great toast Julie, this will be 10 years right, and I bet you thought you would never see this time.
Super stoked to be able to read this and share it with you, and I'll certainly have a toast to you!
by kiwiinoz
Mon Dec 30, 2019 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3247

Re: 7 Year cancerversary

Hi Julie I just logged back on and noticed you are a competitive runner. What sort of running do you do? What do you focus on? What sort of training plans do you use? Do you have a running coach, or do it yourself? Garmin, Suunto? I have lots of questions. Run solo, groups? 2019 was not a good year ...

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