I had the same situation. CEA steadily arising for five months with clean scans. Finally, at 6 months the CT still read clear but the PET showed peritoneal mets. I hope this is not your situation. But I would definitely do the PET if for nothing more than peace of mind.

Hope you are doing well. All my best to you.

Complaining about getting old or a "big birthday" coming up that you are not looking forward to. Telling a 35 year old with cancer that you are dreading turning 40, 50, or 60 feels like a slap in the face to me. I want 40 sooooooo badly. My response to these remarks is always "well, i...

Thanks everyone for the responses. I have already had a posterior pelvic exenteration which is a massive surgery so I think there are concerns about how well I would do on HIPEC. My doctors at MDA also seem skeptical that it would be worth it on a cost/benefit analysis. But I will press them on that...

Has anyone here had chemo control peritoneal mets for any duration of time? Unfortunately, I have tiny peritoneal mets and surgery does not appear to be an option. I am wondering if chemo can buy me some time or not?
Thanks in advance for sharing your experiences/history.

I hate that we even have to have this conversation, but I agree that it is helpful. Julie YW, I feel like you are a bit farther along than I am in being able to process this aspect of our common situation. I wish I could get to the point where you are because, intellectually, I feel like you are cor...

Just wanted to update this thread in case this situation ever arises in the future. The answer is that there is no way to prep. I did fleet enemas and still had solid stool in the transverse colon.

Has anyone had their loop ileostomy converted to an end ileostomy?
Thanks!
Natalie

Hi all, Has anyone had a colonoscopy performed with a loop illeostomy? If so, what prep did you do? This is my problem--I was given a loop illeostomy with the hopes that it could be reversed. However, due to scar tissue, radiation damage etc., I am just not a candidate for reversal. I was due for my...

This information is so incredibly helpful! Thank you!!

Thank you both. MUCH clearer to me now. I need layman's language. Thank you for taking the time to respond/explain.

Hi all, I have what is probably a stupid question but I am trying hard to understand/work through this. Are there any promising immunotherapy trials for MSS (Micro satellite stable?) tumors?. I feel like I have been reading promising results for MSI tumors, but nothing really for MSS. Is that at all...

So so very happy for you getting this news. And really appreciate you sharing it. It is encouraging to know that it can happen! Enjoy it!!!

Great news!! Very happy for you and thanks for sharing your wonderful results!

Thanks Grousman. My BP has been normal. I don't have the print out from labs yet- just saw that it said "protein 300". They are having me collect my urine for 24 hours to do another test. My concern is that I had a kidney autotransplant in January (they moved my right kidney to the left si...