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by texazgal
Wed Dec 02, 2020 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is Liver Biopsy absolutely necessary?
Replies: 9
Views: 1063

Re: Is Liver Biopsy absolutely necessary?

For what it's worth, I'm 75 and had a liver needle biopsy last March. I was quite concerned about doing it, but it turned out not to be a big ordeal. I was awake and aware for it. They used a local anesthetic on the skin and I really didn't feel it. After a few hours(to watch for bleeding) I was abl...
by texazgal
Wed Jul 29, 2020 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has Anyone Any Experience With The Joe Tippens Protocol?
Replies: 14
Views: 3555

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

I have used just the fenben when not doing chemo. For about 9 weeks. Can't say it did anything for me. Just started on Keytruda and
If that fails, I'll try it again. If you do Facebook, there is a large group of users on https://www.facebook.com/groups/429159131252194/ you could join.
by texazgal
Tue Jul 07, 2020 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice on colostomy
Replies: 4
Views: 1276

Re: Need advice on colostomy

I also agree with Lee, get the anus sewn up. My surgeons did mine at the time of colectomy, and didn't tell me about it. Don't know if I would have agreed to it had I known, but after all the issues people have with leakage and smell, this is the way to go. Recovery was long and rather painful. You'...
by texazgal
Wed Jul 01, 2020 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Girlfriend wants to come to appointments
Replies: 13
Views: 2077

Re: Girlfriend wants to come to appointments

Gina's right, I really doubt she'd be allowed in on appt. My husband can't even come into the building when I go for chemo. And it is getting pretty hot here in Texas. Maybe you could record the appt, for her to hear later. And maybe she would have input you could use for future appts.
by texazgal
Wed Jul 01, 2020 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Numb and numberer
Replies: 10
Views: 1459

Re: Numb and numberer

https://cbcn.ca/en/blog/our-stories/side-effects-neuropathy My daughter found this link with some OTC supplements that may help with neuropathy. I've done 4 rounds of Folfox and have the hand problem only instead of numb when I touch cold things it's like an electric shock. It may progress to numb a...
by texazgal
Fri Jun 05, 2020 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 2784

Re: Update (treatments & CEA)

Hi, as you can see Monimoms cea numbers compared to yours, cea is not a good marker for you. Those are mostly normal readings. My ceas are pretty small too, considering I had colorectal cancer in 2004 and am now fighting esophageal cancer stage 111. In fact, I sit here with a 5Fu pump on now, and ha...
by texazgal
Mon Jan 20, 2020 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Parastomal hernia
Replies: 9
Views: 1074

Re: Parastomal hernia

I also developed a hernia post op. Probably due to having a 7 mo grandaughter who needed carrying around.lol. Anyway, my surgeon looked at it and didn't recommend repair. The only problem is that with my last colonoscopy, it impeded the camera and doc was only able to scope the first 5 inches or so....
by texazgal
Mon Jan 20, 2020 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Barbie Butt question?
Replies: 3
Views: 891

Re: Barbie Butt question?

I had this surgery in 2004, so it's been a while, but I remember most of the experience. I awoke with a permanent ostomy and barbie butt. There were 2 vac drains in in the butt cheeks which I had for about 4 days. They were low enough to not interfere with sitting. I won't lie, it was pretty painful...
by texazgal
Wed Jan 08, 2020 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COMING OUT!!!!!
Replies: 6
Views: 1283

Re: COMING OUT!!!!!

"Bad writer"? I don't think so....... Love it, and congratulations on your attitude. May you keep on keeping on till you're an old man and ready to go. :)
by texazgal
Wed Dec 11, 2019 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 42
Views: 8185

Re: What is radiation/chemo treatment actually like?

I recently finished 28 rounds of radiation and 5 chemo infusions. 15 years after dealing with colorectal cancer I had the luck? to develop esophageal cancer. So the chemo might not be what is used for colon c and the radiation is in a different area, but the experience would be about the same. It wa...
by texazgal
Wed Nov 27, 2019 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My hair is falling out.
Replies: 30
Views: 4890

Re: My hair is falling out.

I just noticed this thread. Back in May it was not an issue for me. I never had chemo for the colorectal cancer, just surgery. Then, in June of this year, I had very bad news(didn't know how bad it was at first). During an endoscopy/colonoscopy a mass was found in my esophagus and it was stage IV. S...
by texazgal
Sun Sep 29, 2019 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My 2157 day journey ended today
Replies: 14
Views: 2389

Re: My 2157 day journey ended today

Congratulations on making 5 years! Now I'm going to be a Debbie Downer and say "you can Never trust cancer to stay gone". I am 15 years since my rectal cancer surgery and thought I had a clear run ahead, but no, not to be. In May of this year, I had a colonoscopy and endoscopy scheduled at...
by texazgal
Fri Jun 14, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive Cologuard testing?
Replies: 6
Views: 1688

Re: Positive Cologuard testing?

Green Tea:

Thanks for posting that link. I forwarded it to my youngest brother who tested positive for cancer recently and he just got back to me with a "that was a much better explaination than the Dr gave him. He is getting a scope the 27th June. Hoping he isn't going to join this club.:(

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