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by Phuong
Sat Dec 08, 2018 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Panel Discussion- Early Onset vs. Older Patients
Replies: 3
Views: 410

Re: Panel Discussion- Early Onset vs. Older Patients

Thanks Horizon. Fight won out over flight. In the immortal words of Belle, "Don't retreat. Reload!"
by Phuong
Sat Dec 08, 2018 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Panel Discussion- Early Onset vs. Older Patients
Replies: 3
Views: 410

Panel Discussion- Early Onset vs. Older Patients

I was very excited to participate in a panel discussion at USC Norris Comprehensive Cancer Center on Doctor/Patient communication. One of the topic questions asked by Dr. Afsaneh Barzi related to being seen/treated through the lens of an older patient even though I fall into the early onset patient ...
by Phuong
Wed Nov 28, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Using a vaginal dilator after radiation
Replies: 8
Views: 892

Re: Using a vaginal dilator after radiation

These are the ones my PT recommended. Much less painful than the hard plastic ones. They're firm but flexible, so it allows you to Get better stretches. https://www.soulsource.com/collections/silicone-vaginal-dilators I had to change physical therapists, and both used "Slippery Stuff" lubr...
by Phuong
Tue Nov 20, 2018 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange new side effects with FOLFIRINOX
Replies: 6
Views: 412

Re: Strange new side effects with FOLFIRINOX

For the nosebleeds, my NP recommended using a q-tip at night before bed to swipe a little Vaseline in your nose. Hope that helps.
by Phuong
Tue Nov 20, 2018 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wedge resection vs. full lobe removal?
Replies: 8
Views: 551

Re: Wedge resection vs. full lobe removal?

martd wrote:The liver will regenerate, most likely even grow back to it's original size.

Just to clarify, the liver will regrow with a resection, but not with a lobectomy. With the lobectomy, whatever remains will grow to about 2/3 of your full liver. Still plenty of liver to have normal function.
by Phuong
Tue Nov 20, 2018 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Job Hunting After Treatment?
Replies: 3
Views: 348

Re: Job Hunting After Treatment?

Cancer and Careers is a great resource. You should check them out. https://www.cancerandcareers.org/enBTW, definitely a no on mentioning cancer. Look at it this way - if he had diabetes, so you feel like you owe it to them to tell them? Nope.
by Phuong
Sun Nov 18, 2018 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 27
Views: 4493

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

It's been 11 years for me. I've run the gamut as far as treatments go. While I have active disease, I have years in between of NED. I continue to be active and live a full life and continue to celebrate milestones with my family. Yes there are crappy days, but it is doable. So go after this disease ...
by Phuong
Thu Nov 15, 2018 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 959

Re: Study - Sensitive Topics

Thanks for these thoughtful answers. If there is anyone else that would like to chime in but would rather not post, please PM me. The more answers I have, the better position I will be to share and the better the questions on the survey will be. Much appreciated!
by Phuong
Thu Nov 15, 2018 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 486

Re: Yoga to Poop

NHMike wrote:I do a few Yoga poses regularly (Warrior I, II, Tree Pose, Child's Pose, Plank, Side Plank) and a few additional ones when I have the time. Sometimes pain from the reversal, though, limit what I can do.


Good to know. I'll share the feedback so that they can consider adding adjustments.
by Phuong
Mon Nov 12, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 486

Yoga to Poop

Hello my fabulous family! The following guide was recently shared with us and you all know we are ALWAYS on the lookout for things that may help with constipation. Some of this looks like fun, and some of it looks like it might require a bit more coordination. So find your level and I hope it helps!...
by Phuong
Wed Nov 07, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 1650

Re: Almost 6 years

Congratulations Kiwi! It was meant to be.
by Phuong
Wed Nov 07, 2018 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extra stoma supplies
Replies: 4
Views: 451

Re: Extra stoma supplies

I like to donate to Ostomy 2-1-1. It's a nonprofit run by Deb Fox. Donations can be mailed to her at the address below. She can provide you a receipt for your tax deductible donation (I think it's $50/pound).
Ostomy 2-1-1
c/o Olivet Baptist Church
1201 NW 10th St
Oklahoma City, OK 73106
by Phuong
Sat Nov 03, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 1456

Re: Foods to avoid during chemotherapy

I did Isagenix shakes with a big fat scoop of ice cream blended in for extra calories. Also, hydration is super important. I used H2ORS and still do. It was developed with chemo patients in mind. You should be able to contact them for samples.

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