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by takemeom
Tue Apr 04, 2017 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial drug - Selinixor (KPT 330)
Replies: 21
Views: 7250

Re: Trial drug - Selinixor (KPT 330)

yes i have found sarah canon to be very helpful, but
i don't think i can commit to flying there every week with a connection in charlotte
i could miss an appointment
i am trying yale, and trying to get someone in florida to make me an appointment
it is very confusing as i find a trial, then its filled
by takemeom
Mon Mar 20, 2017 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial drug - Selinixor (KPT 330)
Replies: 21
Views: 7250

Re: Trial drug - Selinixor (KPT 330)

Yes I think that was one of the trials, it was an immunology trial. Now I am learning about trials, very complicated. I thought my doc was researching, but it seems they are not, and want me on lonsurf Lonsurf seems like a general chemo drug, which I have had enough of Right now I am detoxing from t...
by takemeom
Sun Mar 12, 2017 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial drug - Selinixor (KPT 330)
Replies: 21
Views: 7250

Re: Trial drug - Selinixor (KPT 330)

ramg, hope the Lonsurf gives you good results to get you out of the present situation. It's very logic from your doctor to recommend that now. BUT the trial he's proposing you is immunotherapy (that you haven't had until now), a very good combination. The drug is PDR001 (not PDR101). It's just the ...
by takemeom
Wed Jan 25, 2017 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan and Vectibix
Replies: 5
Views: 1353

Re: Irinotecan and Vectibix

are you there
what did you do?
im 13 tx into vectibix and my doc wants to add irenotecan, even though it has all shrunk to nothing, i said to wait for another pet scan
?
by takemeom
Sun Dec 18, 2016 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Mets?
Replies: 22
Views: 4649

Re: Lung Mets?

Hello Yes I am on vectibix only, along with antibiotics prophylactically, which I am glad someone suggested (not my doc) My biggest complaint is my eyebrow, eyelashes and general facial hair is growing very rapidly...the eyes hurt. I am reading that its vectibix for life, or until it doesn't work an...
by takemeom
Sun Dec 18, 2016 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotechan & Vectibix, how long, what next?
Replies: 8
Views: 2701

Re: Irinotechan & Vectibix, how long, what next?

hello vectibix people
who is still alive ?
These postings are from 2012
I am presently 10 rounds into vectibix....is it for life?
by takemeom
Sun Oct 09, 2016 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 10758

Re: Xeloda VS 5-FU

I was on xeloda for two complete cycles (4months each) and i had the most awful hand foot syndrome i had to keep going off it,
during the 3rd and 4th cycles cracked chapped hands and feet
until i had to be off it for a month to get normal and when i went back on it it didn't work to stop cancer
by takemeom
Sun Oct 09, 2016 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Mets?
Replies: 22
Views: 4649

Re: Lung Mets?

I have multiple lung mets and am on my 4th round of vectibix
my cea is 16 from 34 and they say the mets are also shrinking
i have had no side effects
by takemeom
Sun Sep 11, 2016 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting vectibix tomorrow,side effects are scary
Replies: 10
Views: 2739

Re: starting vectibix tomorrow,side effects are scary

where is the up to date stuff?
i started vectibix and am on round 2 i would love to speak to some survivors
2016 news please
by takemeom
Sat Sep 10, 2016 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: R.I.P Dad
Replies: 28
Views: 5361

Re: R.I.P Dad

nice that you had quality time together
may his memory be as a blessing
by takemeom
Sat Sep 10, 2016 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Power of Stage IV Cancer Hope
Replies: 6
Views: 1441

Re: The Power of Stage IV Cancer Hope

what do you have a monopoly on the internet with colon cancer?
this is really suspicious
no body else gets to post
no body else gets a response
not nice
by takemeom
Fri Aug 19, 2016 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience with Vectibix?
Replies: 14
Views: 4275

Re: Does anyone have experience with Vectibix?

Nobody ever answered my post regarding vectibix over a year ago
Is anybody alive after treatment???
I took Xeloda it stopped working now vectibix is back in play
Anyone?
by takemeom
Fri Jul 15, 2016 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: vectibix
Replies: 8
Views: 1594

vectibix

i haven't gotten any answers as to how effective vectibix is on stage iv, with lung lesions,
also have interstitial infiltrate and septal thickening
by takemeom
Sat Jan 31, 2015 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience with Vectibix?
Replies: 14
Views: 4275

Re: Does anyone have experience with Vectibix?

I am going to the cancer tx center of America in Atlanta
The are saying vectibix for metastatic ca in lymph
My doc in Gainesville at Shands says Xeloda
Who is alive out there who took it?
by takemeom
Thu Mar 07, 2013 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: rectal muscle control - radiation
Replies: 18
Views: 4734

Re: rectal muscle control - radiation

i have had peripheral neuropathy, they dropped the oxiliplatin after tx8, but it has gotten progressively worse, i read 5 months after tx it peaks. i also have adhesions where the sigmoid colon was, with tightness and pain, am seeing a great physical therapist also acupuncture and massage weekly thr...

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