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by laneylou
Thu Dec 25, 2014 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2014 member update -- for all of us--please post!
Replies: 64
Views: 10981

Re: 2014 member update -- for all of us--please post!

Doing fine, all things considered. Slowly starting to recover from the 2-year odyssey of radiation/chemo/surgeries/blood clot and stent placement and 2 tries at IVC filter removal/piriformis syndrome (from radiation and/or steroid-induced proximal muscle atrophy) and sciatic nerve injury, just start...
by laneylou
Thu Sep 25, 2014 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: September Scan Buddies
Replies: 78
Views: 7353

Re: September Scan Buddies

YAY RANGER YAY KIWI YAY YAY YAY!!! Awesome news!!!
by laneylou
Thu Sep 18, 2014 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ugh. In hospital with pevic abscess - updated 9/21/14
Replies: 50
Views: 5009

Re: Ugh. In hospital with pevic abscess

Ugh is right... that suuuuuucks! So sorry you are dealing with all that mess but at least it sounds like your team's on top of it. :?
by laneylou
Fri Sep 12, 2014 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: News...Some bad, some good.
Replies: 60
Views: 6346

Re: News...Some bad, some good.

She is just glowing - truly beautiful to see!!

Sending prayers and best wishes for the lovely couple and your whole family.
by laneylou
Fri Sep 12, 2014 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: September Scan Buddies
Replies: 78
Views: 7353

Re: September Scan Buddies

Just finished at the onc. CEA not back yet but CT was whistle clean - no thingies to watch, just the boring gallstone and post-surgical/radiation tissue changes that were there last time. This was my 2 year scan so it was kind of a big one. :D :D :D So happy and relieved! Gonna party tonight 8) Pray...
by laneylou
Wed Sep 10, 2014 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: September Scan Buddies
Replies: 78
Views: 7353

Re: September Scan Buddies

Ranger - I am scanning tomorrow (and chanting my mantra of "don't cry before you're hit" that I picked up on CClub), and clicked on your blog - the "Dance Card" one certainly brought a smile to my face. Good or bad when I get results on Friday I will be thinking "EFF YOU can...
by laneylou
Mon Jul 21, 2014 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone else with VitaminB deficiency?
Replies: 8
Views: 1034

Re: Anyone else with VitaminB deficiency?

Technically speaking I don't have B12 deficiency, but my levels dropped quite a bit from a level that was done pre-diagnosis (from 600-ish to barely 200-ish). The levels were done post-treatment because I developed a wicked case of sciatic neuropathy that turned out to be due to piriformis syndrome ...
by laneylou
Fri Jul 11, 2014 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise with a port
Replies: 26
Views: 12488

Re: Exercise with a port

I did rehab with a PT during chemo (proximal weakness from the Decadron steroid) and my PT not only didn't mention any restrictions, she had me doing exercises lifting weight above my head. Not much weight, but still.

I'd ask the doctor who placed the port and see what he/she says.
by laneylou
Wed Jun 11, 2014 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Had DaVinci Sigmoid Colectomy (Update)
Replies: 8
Views: 1722

Re: Just Had DaVinci Sigmoid Colectomy (Update)

Hi there, I also had a T3N0 tumor and have had primary Raynaud's since childhood. I totally understand your reluctance about Xeloda and the HFS. I did Xeloda 5 days/week for about a month as part of the pre-surgery chemoradiation (as I was staged T3 pre-surgery based on ultrasound results). I didn't...
by laneylou
Sun Jun 08, 2014 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Length of your temp ileostomy?
Replies: 22
Views: 2413

Re: Length of your temp ileostomy?

Hi Seasnail, Don't give up on the ileostomy situation just yet - it took me a good 2 months to get into a groove. Like your DH I had a very bad experience in the hospital (and the ostomy nurses were totally unhelpful) - thank God for home health care nurses with a clue!!! Also finding my "bombp...
by laneylou
Sun May 25, 2014 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metamucil and CT with contrast
Replies: 5
Views: 1253

Re: Metamucil and CT with contrast

Seconding what Lee said - especially if you've had an ileostomy reversal/J pouch for rectal cancer or if you have any urgency issues related to colon resection, beware the oral contrast! I got a nasty surprise at my first post-treatment scan (4 months out from reversal) -- a little after drinking th...
by laneylou
Fri May 02, 2014 9:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Here: stage 2a treatment options?
Replies: 22
Views: 3892

Re: New Here: stage 2a treatment options?

AmyW, I'm glad you're doing well! I have to tell you, I laughed out loud at the "putting people in a room" comment. What is it about surgeons and oncologists and their fixation about kidnapping cancer survivors and sticking them in rooms? :)
by laneylou
Fri May 02, 2014 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad when the doctor's staff don't get it
Replies: 20
Views: 3266

Re: Sad when the doctor's staff don't get it

When I went for my post-treatment scope one of the women on the office staff at my GI's was just horrible. I had to cancel because my driver fell through for that day (I had nobody to take me home), and when I called I got a nasty, condescending lecture about chickening out, and how the prep wasn't ...
by laneylou
Tue Apr 15, 2014 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Urinary issues?--radiation
Replies: 14
Views: 1364

Re: Urinary issues?--radiation

I had something similar. Right at the end of radiation, I started feeling like I couldn't quite empty my bladder all the way, and then I'd notice just a little bit of leakage (a few drops or so), usually within about a half hour of a trip to the bathroom. In my case, it went away (I can't remember e...
by laneylou
Tue Apr 08, 2014 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4 years ago.......
Replies: 3
Views: 750

Re: 4 years ago.......

I am so happy for you! My diagnosis anniversary is coming up too, April 10th (2 years). :)

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