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by Ehut
Sat Nov 02, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Infusion with Oxaliplatin makes itching and redness
Replies: 2
Views: 183

Re: Infusion with Oxaliplatin makes itching and redness

Yes, it is common to develop an allergic reaction to oxaliplatin. The same thing happened to me at my 7th or 8th cycle, except they didn't send me to the ER. They put me on benadryl and monitored me closely until it cleared up. I switched to FOLFIRI for the remaining cycles.
by Ehut
Thu Oct 31, 2019 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets and resection - looking for others' experiences!
Replies: 16
Views: 604

Re: Liver mets and resection - looking for others' experiences!

I had 6 liver tumors, and the largest was 2.5 cm IIRC. Fortunately I was resectable at time of diagnosis, but still went through neo adjuvant chemo and short course radiation before surgery. My left half of liver was removed and 2 wedge resections were done on the right side. Around 60% of the live...
by Ehut
Thu Oct 31, 2019 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance question: Are colonoscopies considered preventative?
Replies: 4
Views: 174

Re: Insurance question: Are colonoscopies considered preventative?

Thanks for the responses. From my net searches it appears that there are two categories of colonoscopy: screening/preventive and diagnostic/medical. I asked my insurance company and am waiting for their response, but I believe we are subject to the diagnostic/medial category.
by Ehut
Thu Oct 31, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance question: Are colonoscopies considered preventative?
Replies: 4
Views: 174

Insurance question: Are colonoscopies considered preventative?

It's open enrollment at my company this week for my health insurance coverage next year. My boss's boss said that colonoscopies are considered preventative and should be completely covered by our insurance plan with $0 out of pocket (apparently his have been). My question is whether this applies to ...
by Ehut
Mon Oct 28, 2019 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets and resection - looking for others' experiences!
Replies: 16
Views: 604

Re: Liver mets and resection - looking for others' experiences!

I had 6 liver tumors, and the largest was 2.5 cm IIRC. Fortunately I was resectable at time of diagnosis, but still went through neo adjuvant chemo and short course radiation before surgery. My left half of liver was removed and 2 wedge resections were done on the right side. Around 60% of the liver...
by Ehut
Fri Oct 04, 2019 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at Mayo Clinic MN
Replies: 3
Views: 751

Re: Treatment at Mayo Clinic MN

I was treated there in 2011-12 with surgery and radiation, and they consulted with my local oncologist for my chemo regimen. I had an extremely positive experience there and highly recommend them. My results speak for themselves.
by Ehut
Tue Sep 10, 2019 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3747

Re: Those of you in Japan - PSK Mushrooms

Ehut , Did you take the PSK and Modified Citrus Pectin throughout chemo? We had chemo orientation today and were told to reduce antioxidant intake while on chemo. The explanation was that antioxidants strengthen the cell walls, and that’s the opposite purpose of chemo. So antioxidants would benefit...
by Ehut
Mon Aug 19, 2019 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 3747

Re: Those of you in Japan - PSK Mushrooms

I used PSK for 2 years after my chemo ended. I bought them here: https://mushroomscience.com/coriolus-super-strength/
by Ehut
Wed Aug 07, 2019 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2685

Re: How crucial is the HAI pump?

Sadly, I believe many oncologists just go through the motions when the tumors are inoperable and don't pursue aggressive treatment like I think they should in some cases. Fortunately I was operable and didn't need the pump, but if I were in your situation, I would DEFINITELY pursue one.
by Ehut
Thu Apr 18, 2019 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 2523

Re: Reversals Any positives?

Hi Ehut - thanks for sharing ! How do you mean your system works better than before surgery ? Do you mean life has returned to normal for you without any LARS ? How about the toilet runs and all ? By "better", I mean that I am more regular and my bathroom breaks are usually very fast. The...
by Ehut
Wed Apr 17, 2019 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 2523

Re: Reversals Any positives?

The first week was pretty rough for me. It felt like I was passing razor blades until I discovered Metamucil (psyllium husk fiber) which kind of acted like training wheels for my system. Total game changer for me. It took several months for things to fully stabilize but things have been good ever si...
by Ehut
Wed Mar 13, 2019 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 788

Re: Colonoscopy coming up....gastroenterologist or surgeon?

I have had my surgeon perform my last 2 colonoscopies. I figure he's familiar with my new anatomy, and he does a lot of colonoscopies, so I feel confident he knows what he's doing. It probably doesn't matter much though.
by Ehut
Wed Feb 13, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another NED question: PUMP v. NO PUMP?
Replies: 32
Views: 2665

Re: Another NED question: PUMP v. NO PUMP?

NED for 6.5 years, no pump. 6 liver tumors originally.
by Ehut
Thu Feb 07, 2019 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any younger men post rectal surgery?
Replies: 13
Views: 1578

Re: Any younger men post rectal surgery?

Just so you are aware, Oxaliplatin (the "OX" in FOLFOX) destroys the germ line cells in testicles and will likely cause infertility at least temporarily. In my case it lasted over 2 years before coming back. I was treated at Mayo in Rochester with radiation and surgery (chemo was done clos...
by Ehut
Tue Feb 05, 2019 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified - 3cm polyp
Replies: 16
Views: 2121

Re: Terrified - 3cm polyp

I had a similar polyp found and was told by phone by some non-doctor at the office that the polyp was "negative". The GI doctor told me to come back in 2 years for a follow up colonoscopy. Just over a year later I was diagnosed stage IV. After my Mayo care team reviewed the original pathol...

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