Search found 230 matches

Go to advanced search

by Ehut
Tue Jan 05, 2021 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 1666

Re: Oxaliplatin Dosage - Call Off

FOLFOX was replaced with FOLFIRI for me at cycle 6 or 7 due to an allergic reaction to the Oxaliplatin. You may want to look into FOLFIRI (Irinotecan instead of Oxaliplatin). My Onc said the 5FU does about 90% of the work anyway, so removing/replacing it shouldn't make a huge difference.
by Ehut
Thu Dec 17, 2020 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 going to yearly surveillance!
Replies: 17
Views: 1559

Re: Stage 4 going to yearly surveillance!

Congrats, that's great news. Sounds like your journey was similar to mine, and I also was treated primarily at Mayo. They really know how to handle cases like ours. Dave Hi Ehut, Question for you. I see in his notes that he is planning to do yearly scans for two more years and then will be done. Is...
by Ehut
Wed Dec 16, 2020 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 going to yearly surveillance!
Replies: 17
Views: 1559

Re: Stage 4 going to yearly surveillance!

Congrats, that's great news. Sounds like your journey was similar to mine, and I also was treated primarily at Mayo. They really know how to handle cases like ours.

Dave
by Ehut
Wed Dec 09, 2020 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 year clear from stage IV
Replies: 22
Views: 3660

Re: 1 year clear from stage IV

Congratulations! I remember the anxiety for every CT scan that slowly eased after each one. I hope you continue to get good reports and join the long term survivor club!
by Ehut
Tue Dec 01, 2020 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 year stage IV cancerversary
Replies: 10
Views: 2391

9 year stage IV cancerversary

I usually post for my annual cancerversary, so here is this year's post. It's been 9 years since that fateful day (12/1/11). I remember the flurry of activity for testing, staging, scans, and treatment in late 2011 and most of 2012. I was well aware of the long term survival statistics at the time, ...
by Ehut
Fri Nov 13, 2020 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Diagnosis with Liver Resection curious about "Maintenance"
Replies: 1
Views: 471

Re: Stage 4 Diagnosis with Liver Resection curious about "Maintenance"

After my surgery, I had 8 follow up "mop up" chemo sessions and that has been it other than close surveillance for a few years. My oncologist offered maintenance chemo, but I declined. Still here 8 years later with no recurrence.
by Ehut
Fri Nov 13, 2020 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 in 2011 still NED in 2020
Replies: 15
Views: 2764

Re: Stage 4 in 2011 still NED in 2020

Congrats! I'm only a couple months behind you.
by Ehut
Fri Nov 06, 2020 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Stable = cured ?
Replies: 4
Views: 954

Re: Stage 4 Stable = cured ?

My Mayo care team recommended CT surveillance for colon cancer for 5 years, rectal 6 or 7. I had my last CT at 6 years (8 years now) and don't plan for more. I still have an annual CEA test and colonoscopies every 5 years.
by Ehut
Fri Nov 06, 2020 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Male Fertility after Chemo
Replies: 10
Views: 1109

Re: Male Fertility after Chemo

I don't see radiation in your plans, but if you do end up having that done, make sure your radiation oncologist knows that fertility is important to you, and hopefully they can accommodate. In my case, they shifted the beam slightly and gave me a gonadal shield to help protect the jewels.
by Ehut
Mon Nov 02, 2020 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Male Fertility after Chemo
Replies: 10
Views: 1109

Re: Male Fertility after Chemo

I was infertile after chemo and radiation treatment, although not sure which was more to blame. Sperm slowly returned after a few years, and I'm happy to report we had 2 additional kiddos since, without medical assistance. I had banked before treatment just in case, but we didn't need it.
by Ehut
Mon Feb 17, 2020 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Huge High Grade Dysplasia Polyp
Replies: 9
Views: 2020

Re: Huge High Grade Dysplasia Polyp

I had a large polyp, but bulb shaped and was removed during colonoscopy, biopsy showed negative for cancer. The GI doctor recommended a follow up colonoscopy in 2 years, but I was diagnosed stage IV only 14 months later. Bottom line: whatever procedure you have to remove it, insist on follow up colo...
by Ehut
Sat Jan 25, 2020 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cure for all cancers with the same treatment?
Replies: 3
Views: 1474

Cure for all cancers with the same treatment?

I stumbled across this article today and thought it might give hope to some people here. Very early stages of research, but it sounds promising. https://www.dailywire.com/news/british-scientist-may-have-found-cure-for-cancer-by-accident?utm_source=facebook&utm_medium=social&utm_campaign=bens...
by Ehut
Wed Dec 04, 2019 10:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3374

Re: 7 Year cancerversary

Congrats Kiwi on another year of freedom! It's great to see others that appear to have beaten the terrible prognosis. Hoping you have many more cancerversaries to celebrate!
by Ehut
Tue Dec 03, 2019 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2758

Re: 8 year cancerversary

Thanks for refreshing my memory of my first post all those years ago. I have since stopped taking all of the supplements except for the baby aspirin. I've had two follow up colonoscopies since I was NED and no polyps have been found. I sometimes wonder if my poor diet and more alcohol consumption (...
by Ehut
Tue Dec 03, 2019 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 2758

Re: 8 year cancerversary

You are an inspiration and your very first post is one everyone here needs to read through: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=40315&p=288270#p288270 I came here grasping for any hope I could find, and researched the supplements you told us you were taking way back...

Go to advanced search