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by Ehut
Tue Sep 10, 2019 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 37
Views: 1546

Re: Those of you in Japan - PSK Mushrooms

Ehut , Did you take the PSK and Modified Citrus Pectin throughout chemo? We had chemo orientation today and were told to reduce antioxidant intake while on chemo. The explanation was that antioxidants strengthen the cell walls, and that’s the opposite purpose of chemo. So antioxidants would benefit...
by Ehut
Mon Aug 19, 2019 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 37
Views: 1546

Re: Those of you in Japan - PSK Mushrooms

I used PSK for 2 years after my chemo ended. I bought them here: https://mushroomscience.com/coriolus-super-strength/
by Ehut
Wed Aug 07, 2019 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2221

Re: How crucial is the HAI pump?

Sadly, I believe many oncologists just go through the motions when the tumors are inoperable and don't pursue aggressive treatment like I think they should in some cases. Fortunately I was operable and didn't need the pump, but if I were in your situation, I would DEFINITELY pursue one.
by Ehut
Thu Apr 18, 2019 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 2373

Re: Reversals Any positives?

Hi Ehut - thanks for sharing ! How do you mean your system works better than before surgery ? Do you mean life has returned to normal for you without any LARS ? How about the toilet runs and all ? By "better", I mean that I am more regular and my bathroom breaks are usually very fast. The...
by Ehut
Wed Apr 17, 2019 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 2373

Re: Reversals Any positives?

The first week was pretty rough for me. It felt like I was passing razor blades until I discovered Metamucil (psyllium husk fiber) which kind of acted like training wheels for my system. Total game changer for me. It took several months for things to fully stabilize but things have been good ever si...
by Ehut
Wed Mar 13, 2019 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 744

Re: Colonoscopy coming up....gastroenterologist or surgeon?

I have had my surgeon perform my last 2 colonoscopies. I figure he's familiar with my new anatomy, and he does a lot of colonoscopies, so I feel confident he knows what he's doing. It probably doesn't matter much though.
by Ehut
Wed Feb 13, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another NED question: PUMP v. NO PUMP?
Replies: 32
Views: 2487

Re: Another NED question: PUMP v. NO PUMP?

NED for 6.5 years, no pump. 6 liver tumors originally.
by Ehut
Thu Feb 07, 2019 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any younger men post rectal surgery?
Replies: 13
Views: 1502

Re: Any younger men post rectal surgery?

Just so you are aware, Oxaliplatin (the "OX" in FOLFOX) destroys the germ line cells in testicles and will likely cause infertility at least temporarily. In my case it lasted over 2 years before coming back. I was treated at Mayo in Rochester with radiation and surgery (chemo was done clos...
by Ehut
Tue Feb 05, 2019 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified - 3cm polyp
Replies: 16
Views: 2041

Re: Terrified - 3cm polyp

I had a similar polyp found and was told by phone by some non-doctor at the office that the polyp was "negative". The GI doctor told me to come back in 2 years for a follow up colonoscopy. Just over a year later I was diagnosed stage IV. After my Mayo care team reviewed the original pathol...
by Ehut
Tue Jan 22, 2019 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short course radiation & surgery scheduled—questions
Replies: 10
Views: 836

Re: Short course radiation & surgery scheduled—questions

I had short course radiation from Mon-Friday the week before my surgery on a Tuesday. No recurrence at any location and it has been almost 7 years.
by Ehut
Thu Jan 03, 2019 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32782

Re: My CRC with liver mets journey

I used to take Coriolus Versicolor PSK from mushroomscience.com. Is that not as good as the stuff you get from Asia? I don't need it anymore, but just wondering.
by Ehut
Wed Dec 12, 2018 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 1531

Re: Radiation on mets

I asked about radiation to the liver mets when I was first diagnosed, and the answer was that radiation to the liver usually does more harm than good. I'm guessing because it harms healthy liver tissue, further reducing liver function. I don't know if that is still true, particularly with proton bea...
by Ehut
Sun Nov 25, 2018 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 10965

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

For those of you who are 7+ years out from a Stage 4 diagnosis. Are any of you NOT receiving treatment from a top 5 cancer hospital? I went to Mayo in Rochester, so I consider that a "top 5" hospital. I have low confidence in local hospitals based on experiences with family members. For i...
by Ehut
Fri Nov 23, 2018 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 10965

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

I was 35 at the time of stage IV DX with a 20 month old daughter. At the time I managed to stay positive, yet deep down expected the worst. Next week will mark 7 years since diagnosis, over 6 of which have been NED. My doctors now tell me I am most likely cured, but I still remain vigilant. We added...
by Ehut
Fri Nov 16, 2018 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 36
Views: 5399

Re: Stage 4 - liver mets disappeared

I don't think I would want to be on a long term chemo regimen if there's no sign of active disease. I would probably opt for stopping chemo and want VERY close surveillance. If something comes back in the liver, then go for the surgery and more chemo. Just my uneducated opinion.

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