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by Ehut
Wed Dec 12, 2018 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 3
Views: 237

Re: Radiation on mets

I asked about radiation to the liver mets when I was first diagnosed, and the answer was that radiation to the liver usually does more harm than good. I'm guessing because it harms healthy liver tissue, further reducing liver function. I don't know if that is still true, particularly with proton bea...
by Ehut
Sun Nov 25, 2018 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 24
Views: 1828

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

For those of you who are 7+ years out from a Stage 4 diagnosis. Are any of you NOT receiving treatment from a top 5 cancer hospital? I went to Mayo in Rochester, so I consider that a "top 5" hospital. I have low confidence in local hospitals based on experiences with family members. For i...
by Ehut
Fri Nov 23, 2018 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 24
Views: 1828

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

I was 35 at the time of stage IV DX with a 20 month old daughter. At the time I managed to stay positive, yet deep down expected the worst. Next week will mark 7 years since diagnosis, over 6 of which have been NED. My doctors now tell me I am most likely cured, but I still remain vigilant. We added...
by Ehut
Fri Nov 16, 2018 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 16
Views: 1000

Re: Stage 4 - liver mets disappeared

I don't think I would want to be on a long term chemo regimen if there's no sign of active disease. I would probably opt for stopping chemo and want VERY close surveillance. If something comes back in the liver, then go for the surgery and more chemo. Just my uneducated opinion.
by Ehut
Sat Nov 10, 2018 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input & comments sought on stage IV treatment plan
Replies: 16
Views: 923

Re: Input & comments sought on stage IV treatment plan

Mine were simultaneous, and they did open surgery instead of laparoscopic to shorten the time under anaesthesia (was still 8 hours). The recovery was pretty rough but at least I didn't need another surgery. They also set up a temporary loop ileostomy which I had reversed in a small surgery 7 months ...
by Ehut
Fri Nov 09, 2018 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input & comments sought on stage IV treatment plan
Replies: 16
Views: 923

Re: Input & comments sought on stage IV treatment plan

Since your liver is operable as-is, I think the HAI is less critical. My DX was similar to yours and I was treated at Mayo in Rochester 6.5 years ago. They did a synchronous resection (liver+rectum) during the same surgery. Also, they gave me the choice between short course and standard course radia...
by Ehut
Fri Oct 26, 2018 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed 36 yo male with stage IV
Replies: 14
Views: 1464

Re: Newly diagnosed 36 yo male with stage IV

Welcome to the club that no one wants to be a member of. I was age 35 with a very similar diagnosis as you, except a couple more liver tumors. It sounds like your liver is operable, which is VERY good news for you. Definitely find a competent cancer center with experienced doctors, because I believe...
by Ehut
Wed Oct 24, 2018 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 23
Views: 1435

Re: Time from dx to first treatment?

DX on 12/1/11
First chemo 12/18/11
Short course radiation late February '12
Surgery 3/6/12
Chemo resumed May '12
by Ehut
Tue Oct 23, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgical changes. Reoccurrence?
Replies: 16
Views: 1038

Re: Post surgical changes. Reoccurrence?

I had a note about "post surgical changes" in a CT scan about year after surgery. My surgeon ordered a PET scan and fortunately it turned out to be non-malignant. I would definitely ask your doctor whether it merits further investigation.
by Ehut
Fri Oct 12, 2018 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4702

Re: Stage 4 to NED- Please tell us

Another long term (6+ years) stage IV survivor here. It sounds like the disease in the liver is limited in your case, so hopefully resectable. If it's not resectable, I would try to find a center that offers HAI to hopefully get it to that state. So as has been true of every step along the way so f...
by Ehut
Wed Oct 10, 2018 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4702

Re: Stage 4 to NED- Please tell us

Another long term (6+ years) stage IV survivor here. It sounds like the disease in the liver is limited in your case, so hopefully resectable. If it's not resectable, I would try to find a center that offers HAI to hopefully get it to that state.
by Ehut
Wed Oct 10, 2018 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 589

Re: Stoma Reversal

Probably the biggest factor in the recovery is how much rectum is remaining, and the more the better. Your signature says it was in the sigmoid, so hopefully the rectum is mostly intact. Mine was at the rectosigmoid junction, and about half of my rectum was removed. The first week was very difficult...
by Ehut
Thu Sep 27, 2018 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Polyp at 35...
Replies: 6
Views: 748

Re: Polyp at 35...

Not to scare you, but your story sounds eerily similar to my story. I had a 30 mm sigmoid polyp found during a colonoscopy, ordered after I reported blood in the stool. The GI doctor said I should have a repeat colonoscopy in 2 years. The GI office never called me with results of the pathology repor...
by Ehut
Sun Aug 12, 2018 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 6627

Re: Any Stage 4 long term survivors/cured ?

I have been clear for over 6 years now. My oncologist and surgeon say I don't need any more scans, just annual CEA monitoring. I was stage 4 with 6 mets to my liver. I don't think I will be comfortable with the term "cured" until I hit 10 years.
by Ehut
Thu Jul 26, 2018 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short course radiation? 3D or IMRT?
Replies: 4
Views: 388

Re: Short course radiation? 3D or IMRT?

The reason I chose short course was so they could do surgery sooner since my liver had responded fairly well to the pre-surgery chemo. If the cancer was not metastatic, then I would have probably done the standard course chemo-radiation.

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