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by Ehut
Thu Apr 19, 2018 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan result
Replies: 8
Views: 1667

Re: PET scan result

Hello SoConfused, So sorry to hear that you are dealing with a possible recurrence, especially so far out from the original diagnosis. I was diagnosed in 2011, so it is a bit jolting to see that recurrence is still possible when things are going well for so long. Hopefully your situation turns out t...
by Ehut
Sat Apr 07, 2018 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fertility Post FOLFOX
Replies: 5
Views: 542

Re: Fertility Post FOLFOX

I was told to wait 2 years post chemo/radiation before attempting to conceive. However, it took around 3 years for my counts to come back to normal. They were ZERO for over a year after treatment ended. FYI, we conceived a baby around year 4.
by Ehut
Sat Apr 07, 2018 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 44
Views: 9991

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

mypinkheaven wrote:AllieG33 and Roscoe were both talking about getting metastatic tumors treated with proton radiation therapy.


I was talking specifically about Mayo clinic since that is where I got my treatment.
by Ehut
Fri Apr 06, 2018 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 44
Views: 9991

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

When I visited the Mayo Clinic in Rochester, Minnesota last year, they offered proton beam therapy. It was advertised as less harmful to surrounding tissues. Just letting people know of another medical facility that offers it. I just wonder if they would be willing to treat metastatic tumors in the...
by Ehut
Fri Mar 02, 2018 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 9026

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I took several supplements after chemo ended: modified citrus pectin, coriolus versicolor PSK, Cimetidine, and Aspirin. Ehut, This is a rare combination! I have heard of Citrus Pectin, PSK and Aspirin. Can you share what are the exact benefits of Cimetidine? My Onc don't believe in supplements, so ...
by Ehut
Wed Feb 28, 2018 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 9026

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

My response might be different than some... I was stage IV with 6 liver mets, diagnosed in late 2011, with chemo, radiation, surgery, and more chemo ending in 2012. I have been NED ever since surgery, which was almost exactly 6 years ago. I took several supplements after chemo ended: modified citrus...
by Ehut
Tue Oct 03, 2017 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 years NED, stage 4
Replies: 26
Views: 2527

Re: 7 years NED, stage 4

I've gotten conflicting messages about how long to continue scans. My local oncologist recommended no more scans after 4 years (relying on stable and low CEA numbers), and an oncologist at Mayo (my original onc at Mayo retired) recommended this year's scan be the last (5 years). But my Mayo surgeon ...
by Ehut
Mon Oct 02, 2017 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 years NED, stage 4
Replies: 26
Views: 2527

Re: 7 years NED, stage 4

Congrats! I'm at 5 years NED, stage IV myself.

Just curious, does your insurance keep covering scans beyond 5 years?
by Ehut
Mon Jul 10, 2017 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year cancerversary TODAY!
Replies: 38
Views: 4654

Re: 5 year cancerversary TODAY!

My chest/abdomen/pelvis CT's have been annual since last year. My local oncologist didn't think I needed any more after last year. My Mayo surgeon said I should continue for at least the next 2 years (7 years post treatment). I think I'll go with the Mayo doctor's advice.
by Ehut
Sun Jul 09, 2017 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year cancerversary TODAY!
Replies: 38
Views: 4654

Re: 5 year cancerversary TODAY!

Quick update... I had my 5 year CT scan and colonoscopy this week at Mayo Clinic, and both were clear of everything, no polyps even. My surgeon (who also did this colonoscopy) recommends getting a CT scan for each of the next 2 years even though insurance may not cover it. He recommended another col...
by Ehut
Thu Apr 06, 2017 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal or keep ileostomy?
Replies: 9
Views: 2864

Re: Reversal or keep ileostomy?

I read all the horror stories about ileo reversal before having mine reversed, but decided to go forward anyway. I am extremely grateful that I did, as I did have some ileo issues with prolapse and occasional leaking, and not being able to comfortably sleep on my side. Post reversal, it took several...
by Ehut
Sun Dec 04, 2016 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: J pouch??
Replies: 3
Views: 433

Re: J pouch??

I think it largely depends on how high or low the cancer is in the rectum. For me, about half of the rectum was spared, which allows decent performance with a straight connect.
by Ehut
Thu Dec 01, 2016 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year cancerversary TODAY!
Replies: 38
Views: 4654

5 year cancerversary TODAY!

Hi everyone, I haven't been posting much lately as I visit the board less and less frequently. Just thought I would share that I am officially a long term stage IV survivor today (12/1/16). I have seen many people join the site and leave us over that period, and hopefully this gives some of you opti...
by Ehut
Fri Oct 28, 2016 2:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adding a baby to stage iv cancer life: Looking for real-life experiences
Replies: 13
Views: 2289

Re: Adding a baby to stage iv cancer life: Looking for real-life experiences

Congrats on being NED! My wife and I faced a similar situation after my stage IV treatment (radiation, surgery, and Folfox/Folfiri) was completed 4 years ago. I had banked a sample before treatment in case my fertility was permanently compromised, but we later decided that IVF was not for us anyway....
by Ehut
Tue Jul 12, 2016 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post treatment male infertility - my story
Replies: 16
Views: 1609

Re: Post treatment male infertility - my story

Awesome news! Congrats! Question for you. Did you have a ton of lymph node involvement at diagnosis? I had 2 out of 45 nodes test positive, so not major involvement. Studies have shown no increase in birth defect occurrence when conceiving at least 2 years post-chemo. That is not to say less than 2...

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