Good afternoon everyone. I hope than you are all doing well, And I would like like like to present a brief update. This past Tuesday, 8/5, i had one PTC surgery to implant a new, lefter sided catheter to a biliary bag (that one completely came out last week.) The next procedure was to restitich and ...
Good evening everyone, As I described in my other thread, The sun is setting on my saga of suffering, I wish to enter into a hospice setting, after tying up some loose ends. I have UHC-Oxford insurance. Would there be significant out of pocket expenses to be in a lin-in facility? Any suggestions wou...
Good evening everyone, I'm overwhelmed by th expressions of love form al of you; thank you so much. Right now, I'm changing the bile soaked dressings from the left biliary catheter site that pulled out, it's disgusting. On Tuesday I'm scheduled for surgery. The right catheter empties into an ostomy ...
Good morning everyone, Let me begin with a sincere thank you for so many warm and supportive replies. Today was an horrible day. This morning, the left biliary catheter dressing was leaking early in the afternoon. When I attempted to gently clean the bag and lines, the entire catheter slipped out, s...
Good morning everyone, My saga of care seems to be coming to a close. Last Tuesday, 7/22, I had surgery in interventional radiology to address a badly leaking right biliary catheter. A longer, internal catheter to the duodenum was put in place, and the left catheter was capped. I was admitted as an ...
Good evening everyone, This past week was the most painful and demoralizing one of my life. After the internalization of the right drain, (7/15), the plan was to wait 2 to 3 weeks, aand to consider either capping the drains or adding a third one. On Saturday evening, I became extremely constipated, ...
Good morning Cherie, Congratulations about new your job hunting. Remember that the 3 key things an employer considers: Are you compertent? Are you motivated, and will you fit into the corporate culture. As you present your accomplishments, skills, etc, they want to hear about accomplishments, and ho...
Dear Marco, I'm so saddened by your recent medical update, and about the pain. Your opinions have always been very objective and astute, and your heart is always in the right place. My situation is leading me in the direction of palliative care and hospice. May our journeys follow a peaceful and ple...
In my earlier post " 7/15/2014, I received the worst possible news prior to surgery to follow up on the initial biliary drains and bags. The bilirubin was about 7.5, essentially unchanged since I left the hospital after the initial drainage bags were put in. Yesterday, the surgeon found the tha...
Good afternoon everyone, My previous posts described the recent issues encountered with biliary obstuction: 4/2014 Jaundice, ERCP with 2 stents addded. Return of jaundice 6/2014 3rd stend added by ERCP. 7/2014 2 biliary drains and bags surgery by PTC. Yesterday, 7/15/2014, I received the worst possi...
Good afternoon everyone, I confirmed that on this coming Tuesday, 7/15, the 2nd part of my biliary drainage saga (PTC) will take place. I currently have 2 drains, and the right bag continues to collect at least a liter of bile per day. I do not know what will be done, such as divetring the intenral ...
Good afternoon Bev, I greatly admire you as a caregiver, an information resoource, and a person with a tremendous capacity to share encouragement and warmth. Between your challenges with CRC,and your husband's condition, you are truly an incredibly resilient, strong and courageous person. The stress...
Good afternoon Kenny, I'm sorry to hear about your disappointment. I suppose one, somewhat positive part to this is that the change in status was found now, before more significant progression could take hold. As many others in this forum have described, this disease is unpredictable, and can catch ...