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by Maia
Sat Aug 12, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 33
Views: 3842

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Roscoe, I of course wish you wouldn't be going through all this but... what a great 'team' you have formed with Dr Yang. I love that you found this out of the box strategy. Keep going!! I'd dare to suggest you might want to explore immunotherapy, in trials or off label, if you can --might be the 'so...
by Maia
Wed Aug 09, 2017 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a little hope
Replies: 44
Views: 4991

Re: I need a little hope

Sorry to hear the MD Anderson visit went like that. I would consult any of the clinical trials centers in TX that are not the MD Anderson, for them to check if some immunotherapy-based trial is available for your case. Texas Oncology, P.A. - Austin Recruiting Austin, Texas, United States, 78705 Prin...
by Maia
Mon Aug 07, 2017 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Path report back
Replies: 2
Views: 417

Re: Path report back

Good, the best news :) You might benefit by looking into chemopreventive benefit of nonsteroidal anti-inflammatory drugs. In plain English: aspirin, low dose, might help you to prevent recurrence of those polips. You might want to ask your doctor about it. https://www.ncbi.nlm.nih.gov/pubmed/28325827
by Maia
Sat Aug 05, 2017 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Omentum mets? Youth seeking input please
Replies: 2
Views: 333

Re: Omentum mets? Youth seeking input please

Is an omentum metastasis a peritoneal metastasis? Yes, the omentum is part of the peritoneum. It is a fatty tissue between the stomach and the colon --that's probably why the doctor talked to you first about 'stomach cancer cells', as you said in your other thread; but the tumor is inside the perit...
by Maia
Sat Aug 05, 2017 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Rectal Cancer being treated with Keytruda
Replies: 15
Views: 835

Re: Stage IV Rectal Cancer being treated with Keytruda

The best news, veckon. I felt the emotion myself when I read this so I only can imagine yours.
I so love reading this, thank you for sharing. Immunotherapy really is changing... life already, for those MSI-high, something that was not 'here' at all two, maybe one, years ago.
by Maia
Wed Aug 02, 2017 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 6
Views: 321

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

the difference between this drug and keytruda? Looks like both are pd-1 inhibitors. I wonder if you stop responding to one, another might work depending on what exactly differentiates this drug. Keytruda (pembrolizumab) and Opdivo (nivolumab) are both anti PD-1. They are too similar. Even drugs tha...
by Maia
Tue Aug 01, 2017 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Journal -- just had the surgery this morning.
Replies: 57
Views: 1329

Re: Reversal Journal -- just had the surgery this morning.

Congrats, Maellous!!
Keep chewing gum; chewing gum is to get your guts moving faster again. Just try to not chew with your mouth open, so you don't get extra air in the system.
Not kidding, just search this forum.
Smooth recovery wishes to you!
by Maia
Tue Aug 01, 2017 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib) for Stage IV, starting 11/7/2017
Replies: 24
Views: 2570

Re: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib) for Stage IV, starting 11/7/2017

LMighty, I'm glad to hear that the ascites are slowing down again and that she's taking a break for a week. Immunotherapy works slowly, often, and acts long after administered --months, sometimes. So if this is going to work, she's probably covered. BUT she needs to recover and just regain some stre...
by Maia
Tue Aug 01, 2017 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 6
Views: 321

BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

FDA Approves Nivolumab for MSI-H or dMMR Colorectal Cancer Tuesday, Aug 01, 2017 The FDA has granted an accelerated approval to nivolumab (Opdivo) for the treatment of adult and pediatric patients with microsatellite instability-high (MSI-H) or mismatch repair deficient (dMMR) metastatic colorectal...
by Maia
Mon Jul 31, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robotic Surgery
Replies: 46
Views: 1265

Re: Robotic Surgery

Go get it, Basil!! I wish you that everything goes well and you have a smooth recovery.
by Maia
Mon Jul 31, 2017 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV for 4.5 years.....NED again!!
Replies: 12
Views: 646

Re: Stage IV for 4.5 years.....NED again!!

So so happy for you!!

I didn't realize you're adding bevacizumab to XCEL. That prevents it from being a total oral regimen. Is your onc's idea? It is interesting to know that he's OK with the combination of bevacizumab with celecoxib.

Many good wishes, Steve!
by Maia
Sun Jul 30, 2017 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 rectal cancer with single lung met
Replies: 6
Views: 574

Re: Stage 4 rectal cancer with single lung met

My husband has been diagnosed 3 weeks ago with stage 4 rectal tumour and a single lung met. So far we have had MRI and CT scan and he had the PET CT yesterday so is awaiting the results. My question is my husbands rectal tumour is large 11cm by 5cm, and the lung met is 4cm. I can not seem to find a...
by Maia
Sun Jul 30, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very discouraged with this cancer business
Replies: 12
Views: 819

Re: very discouraged with this cancer business

I will only add that my Oncologist explained non approved drugs such as keytruda can be obtained through the BCCA outside of a trial. Your oncologist essentially presents a case to the provincial board with evidence of clinical benefit. The board reviews and if they agree forward the recommendation...
by Maia
Sat Jul 29, 2017 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caring bridge site
Replies: 5
Views: 1673

Re: Caring bridge site

ocstacy wrote:Should you ask permission of the person you want to write about?


YES.

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