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by Maia
Wed Oct 18, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson
Replies: 4
Views: 186

Re: IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson

It looks like the cause of most cancers are Immuno failing of the body to reckognize and fight. Absolutely. So we can keep cutting, poisoning, radiating, taking out the cancer (we need to do that!) but if the (immune) system who failed to stop the misguided cells, in the first place, is not address...
by Maia
Wed Oct 18, 2017 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 12
Views: 359

Re: Keytruda induced pancolitis (help me please!)

Yes, listen to old uncle CRguy and old aunt Maia: get some fire under those doctors asses!!
I so hope you feel better soon.
by Maia
Wed Oct 18, 2017 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 12
Views: 359

Re: Keytruda induced pancolitis (help me please!)

Ahhh, prednisone and its family are nasty stuff --even if needed, sometimes. That could be. What we know from ipilimumab --Yervoy, anti CTL4, other immunotherapy, around since years ago is that ''In clinical trials, rapid corticosteroid tapering resulted in recurrence or worsening symptoms of entero...
by Maia
Wed Oct 18, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 12
Views: 359

Re: Keytruda induced pancolitis (help me please!)

Veckon, I'm so sorry!! I know you are asking for dietary advice but if you are not sleeping because of this, I think that even the dietary part requires an urgent intervention from your MSK palliative team. Be a pain and ask them to give you exact directions about what to do. Maybe they need to add ...
by Maia
Tue Oct 17, 2017 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson
Replies: 4
Views: 186

IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson

IMMUNO CLINICAL TRIAL FOR RECTAL CANCER, **before surgery**, at MD Anderson: the possibility of receive an IMMUNOTHERAPY just at the start of treatment. Talimogene Laherparepvec [T-VEC, Imlygic, immunotherapy approved for melanoma, given as injection to the tumour ]Capecitabine, and Chemoradiation B...
by Maia
Tue Oct 17, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 310
Views: 54224

Re: Calling ALL Colorectal CANUCKS !

Canadians: the opportunity of receive ''a targeted therapy drug that is specific to an abnormal gene change in their cancer''. A Canadian TAPUR: CAPTUR No locations disclosed but for sure Toronto and Vancouver. NCT03297606 For BRAFV600: BRAF inhibitor + MEK inhibitor. For those with high mutational ...
by Maia
Tue Oct 17, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ECG Report...Can Anyone Help me Understand It?
Replies: 9
Views: 482

Re: ECG Report...Can Anyone Help me Understand It?

Chiming in to say go and see a cardiologist, Cynthia.
KimT wrote: Whoever ordered that ecg study have gotten a cardiologist on board immediately.
Yes.
by Maia
Fri Oct 13, 2017 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 682

Re: Looking for HIPEC Experiences

He'll be at the best hands at MSK Look for Dr Garret Nash 212-639-8668 https://www.mskcc.org/cancer-care/doctors/garrett-nash Even if this is for CRC and appendix, see this trial: ICARuS Post-operative Intraperitoneal Chemotherapy (EPIC) and Hyperthermic Intraperitoneal Chemotherapy (HIPEC) After Op...
by Maia
Fri Oct 13, 2017 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)
Replies: 8
Views: 1098

Re: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)

As it says in the main post, Mayo will be the first place, probably. The idea was they were starting this year, at least with a trial.
by Maia
Fri Oct 13, 2017 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 6
Views: 695

Re: Keytruda? What else is new?

Pembrolizumab (Keytruda) and nivolumab (Opdivo) are a type of immunotherapy, both approved some months ago, as monotherapy, for those with CRC whose MS status is MSI-high (about a 10% of the CRC are MSI high). For the majority of the CRC patients, who are MSS, those agents and similar are being test...
by Maia
Fri Oct 13, 2017 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 9
Views: 706

Re: Peri mets, Stage IV --- Need advice

AJQ, so sorry to hear these news. Do you know anything about the mutations/ genetic characteristics of the tumour? Are you in California? You have there many main cancer centers, they surely can help you to get genetic profile and maybe looking for an immunotherapy trial.
by Maia
Fri Oct 13, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)
Replies: 8
Views: 1098

Re: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)

IMPORTANT UPDATE. October 2017 Many locations, not USA: Argentina, Australia, Belgium, Denmark, France, Germany, India, Italy, Poland, Russian Federation, Singapore, Spain, Switzerland International Registry of Patients Treated With Pressurized IntraPeritoneal Aerosol Chemotherapy (PIPAC) (PIPACRegi...
by Maia
Thu Oct 12, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me
Replies: 11
Views: 549

Re: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me

BS, so sorry to hear about your dear friend. Where --area/state-- is she treated? Is she able/ willing to travel for treatment?
by Maia
Tue Oct 10, 2017 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 682

Re: Looking for HIPEC Experiences

SisterinLaw, I do understand the good intentions of his oncologist --some patients pursue HIPEC hoping it will be a cure, for certain cancers... and for most stage IV cancers, when they are not resectable, there is no current cure (only recently, with immunotherapies, doctors start to talk about 'lo...

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