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by Maia
Fri Jun 23, 2017 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eleven years ago!
Replies: 14
Views: 340

Re: Eleven years ago!

Jaynee, so happy that, today, the right time to say that phrase is the past time. You had cancer and you are today healthy and living life.
Happy for you!!
by Maia
Fri Jun 23, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This could be LONG ... very long !
Replies: 17
Views: 534

Re: This could be LONG ... very long !

Sending lots of love to that old Viking lady!
And you, do what you have to, but take care of you too, mister. <3
by Maia
Thu Jun 22, 2017 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy trial for those NED
Replies: 16
Views: 1298

Re: Immunotherapy trial for those NED

Oh, you're so kind!
I hope with all my heart that it works. You really wanted 'something else', when taking chemo was not possible because the DPD deficiency. This seems a remarkable opportunity :)
by Maia
Thu Jun 22, 2017 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial at NIH for G12V KRAS mutant
Replies: 6
Views: 231

Re: Trial at NIH for G12V KRAS mutant

Maybe this is not as Interesting as the Trial you posted but it sounds as any Kras mutant is ok here https://clinicaltrials.gov/ct2/show/NCT03101839 That IS a very interesting trial, aimed to the KRAS mutation, LPL :) In a similar line, with a similar agent, there is Study of Irinotecan and AZD1775...
by Maia
Tue Jun 20, 2017 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Likely reactive- Shouldn't I be concerned?
Replies: 3
Views: 244

Re: Likely reactive- Shouldn't I be concerned?

In radiologists jargon, 'likely reactive' means 'likely trying to fight off an infection', 'no worrisome'.
by Maia
Tue Jun 20, 2017 12:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS-CRC Immuno CLINICAL TRIAL -Personalized Vaccine
Replies: 6
Views: 369

Re: MSS-CRC Immuno CLINICAL TRIAL -Personalized Vaccine

When I first read it my thoughts were : " POG meets Coley's toxins ! " kind of approach. That is a very good characterization of this approach!! Coley used Streptococcus erysipelas and Bacillus prodigiosus. I would like him to be alive to see immunotherapy finally becoming the main stream...
by Maia
Tue Jun 20, 2017 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been a while / updates / clnical trial
Replies: 4
Views: 277

Re: Been a while / updates / clnical trial

Hey, you won't take a seat for anyone, those planes have many empty seats : ) The one I am doing is the INO-1500. I am in arm 6 (which I hoped for) I guess is this one https://clinicaltrials.gov/ct2/show/NCT02960594 , even if the number is INO-1400..? Anyway, with the electroporation, is great. So s...
by Maia
Tue Jun 20, 2017 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been a while / updates / clnical trial
Replies: 4
Views: 277

Re: Been a while / updates / clnical trial

Maelleous, so happy to hear from you! I have been wondering how you're doing. I do remember the heart scare, and the impossibility of having chemo. I'm so, so glad to hear that you are getting that vaccine at Pittsburgh!!! Is it the MUC1 vaccine? The financially breaking part is because of the trave...
by Maia
Mon Jun 19, 2017 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial at NIH for G12V KRAS mutant
Replies: 6
Views: 231

Re: Trial at NIH for G12V KRAS mutant

The HLA-A1101 is a tissue matching test you can order from any hospital, but for those interested in the trial, they probably will run it at the NIH, as part of the screening. This is the NIH page for it https://clinicalstudies.info.nih.gov/cgi/detail.cgi?B_2017-C-0113.html By the way: this trial is...
by Maia
Mon Jun 19, 2017 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met treatment experience
Replies: 6
Views: 383

Re: Lung met treatment experience

I don't know if this helps but just came across today with an immuno trial, combination with Avastin and Folfox. It is for just diagnosed metastatic CRC BUT allows also those who had chemo more than one year ago. * New trial. * NCT03176264 * Anti PD-1 (immunotherapy)+ Avastin + Folfox as FIRST LINE ...
by Maia
Mon Jun 19, 2017 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 299
Views: 41207

Re: Calling ALL Colorectal CANUCKS !

My husband is stage 1V with 9 tumors in his liver. He did 6 rounds of Folfox with good results and we have an appointment with the liver specialist at Sunnybrook in Toronto on Monday. Lins, you wouldn't be in a better place than Sunnybrook, if dealing with liver mets, because they have there the HA...
by Maia
Mon Jun 19, 2017 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 299
Views: 41207

Re: Calling ALL Colorectal CANUCKS !

An update on a trial with several Canadian locations. It was a double combo, now it is a triplet of immunotherapies: An update on protocol for trial NCT02658890. It used to be anti PD-1 (Nivolumab, Opdivo) + IDO1 inhibitor (BMS-986205). Now Ipilimumab (Yervoy, anti anti-CTLA- 4) has been added. http...
by Maia
Mon Jun 19, 2017 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial at NIH for G12V KRAS mutant
Replies: 6
Views: 231

Trial at NIH for G12V KRAS mutant

* New trial, the 'Kite' trial * Immunotherapy, personalized Adoptive T cell therapy * For G12V Kras mutants, HLA-A 1101 positive. * AT NIH in Maryland ------------- * NCT03190941 * New cancer therapy that involves taking white blood cells from a person, growing them in the lab, genetically modifying...
by Maia
Sun Jun 18, 2017 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 14
Views: 1000

Re: PET Scan Results - More Cancer???

Hoping for the same, just inflammation --which, not being chronic but as in this case, part of the reaction to surgery, it is a very good thing, something immunogenic! Edited to add, just in case someone is looking for this in the future: Eur J Nucl Med Mol Imaging. 2008 Jan;35(1):95-9. Epub 2007 Se...

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