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by Maia
Sun Nov 05, 2017 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)
Replies: 14
Views: 1466

Re: Peritoneal mets. New, local treatment: PIPAC (Pressurized Intraperitoneal Aerosol Chemotherapy)

I was thinking more in the EPIC part --and that maybe they would take the risk of CRS, surgery, which is always good.
And what about an immunotherapy trial? --see my signature--
by Maia
Wed Nov 01, 2017 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Difficult Year
Replies: 14
Views: 637

Re: A Difficult Year

Kathy, I'm speechless reading what you have been through. I so wish I could ease your pain...
I'm giving you a long heartfelt hug, over the distance, and sending my love and my respect for your fortitude.
by Maia
Wed Oct 25, 2017 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spice Trial
Replies: 11
Views: 1089

Re: Spice Trial

Yes, Pita! Update to the Colon Talk fellows!!! :)
by Maia
Tue Oct 24, 2017 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on DK (Dr. Tom Marsilje)...
Replies: 15
Views: 1363

Re: Update on DK (Dr. Tom Marsilje)...

What a nice words, Miss Molly. You expressed perfectly a good part of my own feelings and thoughts. Tom is hanging in there. Hopefully, the brain mets can be addressed and he can continue with the systemic immunotherapy/ chemo concoction he designed for himself --plus, other great treatments ideas h...
by Maia
Wed Oct 18, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson
Replies: 4
Views: 309

Re: IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson

It looks like the cause of most cancers are Immuno failing of the body to reckognize and fight. Absolutely. So we can keep cutting, poisoning, radiating, taking out the cancer (we need to do that!) but if the (immune) system who failed to stop the misguided cells, in the first place, is not address...
by Maia
Wed Oct 18, 2017 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 672

Re: Keytruda induced pancolitis (help me please!)

Yes, listen to old uncle CRguy and old aunt Maia: get some fire under those doctors asses!!
I so hope you feel better soon.
by Maia
Wed Oct 18, 2017 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 672

Re: Keytruda induced pancolitis (help me please!)

Ahhh, prednisone and its family are nasty stuff --even if needed, sometimes. That could be. What we know from ipilimumab --Yervoy, anti CTL4, other immunotherapy, around since years ago is that ''In clinical trials, rapid corticosteroid tapering resulted in recurrence or worsening symptoms of entero...
by Maia
Wed Oct 18, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 672

Re: Keytruda induced pancolitis (help me please!)

Veckon, I'm so sorry!! I know you are asking for dietary advice but if you are not sleeping because of this, I think that even the dietary part requires an urgent intervention from your MSK palliative team. Be a pain and ask them to give you exact directions about what to do. Maybe they need to add ...
by Maia
Tue Oct 17, 2017 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson
Replies: 4
Views: 309

IMMUNO-combo trial RECTAL CANCER *before* surgery -at MD Anderson

IMMUNO CLINICAL TRIAL FOR RECTAL CANCER, **before surgery**, at MD Anderson: the possibility of receive an IMMUNOTHERAPY just at the start of treatment. Talimogene Laherparepvec [T-VEC, Imlygic, immunotherapy approved for melanoma, given as injection to the tumour ]Capecitabine, and Chemoradiation B...
by Maia
Tue Oct 17, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 310
Views: 55374

Re: Calling ALL Colorectal CANUCKS !

Canadians: the opportunity of receive ''a targeted therapy drug that is specific to an abnormal gene change in their cancer''. A Canadian TAPUR: CAPTUR No locations disclosed but for sure Toronto and Vancouver. NCT03297606 For BRAFV600: BRAF inhibitor + MEK inhibitor. For those with high mutational ...
by Maia
Tue Oct 17, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ECG Report...Can Anyone Help me Understand It?
Replies: 9
Views: 637

Re: ECG Report...Can Anyone Help me Understand It?

Chiming in to say go and see a cardiologist, Cynthia.
KimT wrote: Whoever ordered that ecg study have gotten a cardiologist on board immediately.
Yes.
by Maia
Fri Oct 13, 2017 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 859

Re: Looking for HIPEC Experiences

He'll be at the best hands at MSK Look for Dr Garret Nash 212-639-8668 https://www.mskcc.org/cancer-care/doctors/garrett-nash Even if this is for CRC and appendix, see this trial: ICARuS Post-operative Intraperitoneal Chemotherapy (EPIC) and Hyperthermic Intraperitoneal Chemotherapy (HIPEC) After Op...

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