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by pukalania
Fri Oct 02, 2015 5:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When to tell children your dying?
Replies: 25
Views: 10517

Re: When to tell children your dying?

Sweet Cherie I'm so sorry :(.. This is the hardest thing... We just went through that couple of months ago ... Our daughter is 5 years old.. She always knew daddy is sick since she was new born .. so it's important to start with how much your daughter knows about your sickness, for us she knew he wa...
by pukalania
Mon Aug 17, 2015 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still in shock I lost the love of my life...
Replies: 35
Views: 5434

Still in shock I lost the love of my life...

Hi sweet friends I haven't visited for awhile but last few weeks have been so hectic ... So the world did become an emptier place and I lost the love of my life on August 2... He was only 39... He fought so bravely for 5.5 years and never ever complained about anything.. His mind was so strong and t...
by pukalania
Sun Jul 26, 2015 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to Bring a piece of heaven to hell...?
Replies: 7
Views: 2004

Re: How to Bring a piece of heaven to hell...?

Thank you Chrissy .,,Vicki's posts are always such inspiration ...

Thank you BS I will ask about that , we have the socks too good idea

Xoxo
by pukalania
Sun Jul 26, 2015 12:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to Bring a piece of heaven to hell...?
Replies: 7
Views: 2004

How to Bring a piece of heaven to hell...?

Aloha sweet friends... I wanted to ask those of you who have gone down this road of end of life... What were the things that helped your loved one ... It's so horrible to watch my hubby suffer and not be able to do anything ... He is not complaining a tiny bit but I know inside he is so worried to l...
by pukalania
Wed Jul 22, 2015 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How do you tell a 5 year old daddy's girl that her daddy is dieing?
Replies: 27
Views: 4173

Re: How do you tell a 5 year old daddy's girl that her daddy is dieing?

Thank you sweethearts for all the love support and heartwarming ideas .. It's so very helpful... As always what a wonderful place this forum is.. Thank you from the bottom of my heart ... It truly helps to hear this as firsthand experience vs psychiatrist ... I'm staying with hubby in the hospital 2...
by pukalania
Sun Jul 19, 2015 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumors pressing on hepatic vein
Replies: 3
Views: 1386

Re: Tumors pressing on hepatic vein

Thank you Rachel and Lee.. Rachel you were spot on... Just went thru it yesterday ... We are from Oahu but I love Pukalani on Maui :)... But we Came to Seattle for treatment and now are stuck here .. So will have to find something here...
Thank you again
Hugs
by pukalania
Sun Jul 19, 2015 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not treating MRSA until it causes trouble?
Replies: 3
Views: 896

Re: Not treating MRSA until it causes trouble?

Thank you CRguy as always you have the right words to say... We are heading south so MRSA is the least of our worries...

Liver is causing most troubles now... So trying to contain that for some quality of life that is left..

Thanks again
Hugs
by pukalania
Sun Jul 19, 2015 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How do you tell a 5 year old daddy's girl that her daddy is dieing?
Replies: 27
Views: 4173

How do you tell a 5 year old daddy's girl that her daddy is dieing?

So we are there ... No more treatment .. Trying to treat the symptoms to keep A quality of life for whatever time is left ... Heartbreaking ... Awful ... Many of you have been there ... So one of the biggest struggles is how to best tell our five year old girl ... I was pregnant with her when my lov...
by pukalania
Sat Jul 18, 2015 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not treating MRSA until it causes trouble?
Replies: 3
Views: 896

Not treating MRSA until it causes trouble?

This journey just keeps getting worse..so after 10 days in hospital doc said hubby got MRSA today... He is admitted for inflamed pancreas ... He has significant disease progression ... His tummy and feet are all swollen ... There is some liquid around his heart and lungs ... So this MRSA is really s...
by pukalania
Sat Jul 18, 2015 1:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumors pressing on hepatic vein
Replies: 3
Views: 1386

Tumors pressing on hepatic vein

Hi friends, Wondering if anyone has experienced this and what was the solution. Hubby is currently hospitalized due to inflamed pancreas caused by EcRP ( bile duct stent)... He hasn't had any treatment for a month and in that timeframe disease has spread to Omentum, almost all liver covered with met...
by pukalania
Fri Jul 17, 2015 11:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 900 pt CEA jump after 1 cycle of trial TAS-102
Replies: 3
Views: 1495

Re: 900 pt CEA jump after 1 cycle of trial TAS-102

Hi So sorry about this... My husband had similar jump in CEA after first cycle of tas102 .. From 270 to 1800...his pain was also significantly increased and he lost weight so onc felt we should stop it. 2 weeks later we ended up doing ct scan due to possible bile duct obstruction... Unfortunately ct...
by pukalania
Tue Jul 14, 2015 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not good news.
Replies: 7
Views: 1724

Re: Not good news.

Yes thanks to you guys here we inquired about xilonix with the onc..it's sounds like a perfect match especially due to hubby weight loss...onc hasn't said yet if we should pursue..i think we wants to try stivagra...but suggested starting the full dose so we are worried... Hope your mom tolerates oxi...
by pukalania
Mon Jul 13, 2015 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not good news.
Replies: 7
Views: 1724

Re: Not good news.

Hi smalltownmess, He was on Folfox when he was first diagnosed in 2010 and did 12 rounds..except dropped oxi on the 9th cycle. He went back on f5FU + oxali + avastin summer 2014..i read on the forum somewhere that as long as you have a 6 months break from it you may be able to re-introduce. Currentl...
by pukalania
Mon Jul 13, 2015 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not good news.
Replies: 7
Views: 1724

Re: Not good news.

Hi !!
So sorry to hear ! My hubby went back to oxali and it had shrinkage for 6 months but it was getting too toxic for him so has to stop!

Hope this works for your mom
Xoxo

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