Some really good suggestions here. I tried just about everything, too, on the first chemo, and had a really tough time. Finally, my onc recommended acupuncture, and it has worked so well that i have continued going for all of my cancer and chemo problems. I continued to use Emend 3 day pack, Zofran ...

Just a thought for all of us ... remember the saying, 'funerals are for the living' ? I am of two minds about this. I certainly don't want anyone in my middle class family to pay for a funeral, as they would be inclined to do. I am not a Christian, and I would be appalled at the thought of a Christi...

KarMel, I am so so sorry it didn't work for you. I guess I need to find the energy to post my experience with the trial. so far, no reactions to the drug itself, but each day I'm in more pain, so I don't know if it is working for me either ( I really don't want to be negative but it's very hard to b...

Bless your heart, Pam for posting what I HOPE are shared feelings and thoughts of others on this board.AND for actually responding to her request for other people's experiences , not so much their opinion of what she should or shouldn't do. Thank you. Do I feel a firestorm brewing. I would hope that...

I don't know about anyone else but sometimes I just NEED to see what something loos like on the inside:

http://www.gastrolab.net/show.htm



Maybe it has already been posted?

Dear Patti, I, too, sobbed as I read your post, as I believe that you expressed yourself so deeply, and although saying what I'm about to say probably won't make you feel any better, I don't think I've ever read a more poignant and direct to my heart essay about how it is to live with the disease an...

My onc advised against it , just for the damaging effect to already chemically damaged (chemo) hair. I complied. I then spoke with my onc. Nurse Practitioner about it and she laughed and said that everyone does it (dyes their hair anyway) but denies it! I thought that was hilarious. I now have my ha...

To LAS
Here is a very good description of the Regnifenab trial:

http://www.drugs.com/nda/regorafenib_120523.html

Hi Karmel, I have attempted to send two PMs to you in the last 36 hours. Is it possible that you have your member settings to not receive PMs? If so, I respect that. I only wanted to converse with you privately to discuss the clinical trial and questions I have for someone who is four weeks ahead of...

To LAS, The Regnifenab clinical trial is a STAGE IIIC study which means that everyone in this phase of the clinical trial are ALL getting the research drug. This particular trial has a GOAL, I believe they call it, ENDPOINT, to establish the safety of the drug and is usually the last phase required ...

Go in peace, dear Gaelen. If there is 'another side' I truly hope to meet you there and have many spirited and loving conversations. I know you may perceive this as much too intimate from a stranger, but I truly mean it. You are loved by so many

Terri

Just a note -- bit of info from a UPMC surgeon I consulted a few weeks ago re HIPEC (he stated he had done more than a couple hundred of the cytoreduction and HIPEC .... I also have peritoneal mets, but they have Not responded to any of the mCRC chemo regimens. He said the short answer as to whether...

UPDATE: 2nd apt with trial doc"". Like the whole team very much! I had to do blood and urine labs plus EKG. Doc forgot urine sample but I have to return on Monday to retrieve trial meds, Regorafenib. NEWS FLASH? Doc told me that a new trial site has opened in OCALA FL ......northern FL wit...

In my case, due to a previous surgery to remove ruptured ectopic embryo, it left significant adhesion "". Scar tissues internally, so much so that laparscopic surgeries could not be done ... Period. If it were me I would ask surgeon whyit cannot be done ould not be done lap. There could be...

Jorusi63, Like my fluke, openings can occur at any time. What I would do is write an email to the closest clinical trial and see if you can be put on a list. VERY IMPORTANT, write a BRIEF, emphasis added history of your husband's cancer treatment , including his current circumstances. Good Luck! :sh...