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by elise
Mon May 23, 2016 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Folfox on Monday
Replies: 48
Views: 3734

Re: Starting Folfox on Monday

I had a hard time with FOLFOX :( Managed 5 rounds before the neuropathy started affecting my legs from the knees down. Some things I remember that I'm glad someone told me ahead of time... 1. after your infusion, my first few bites of food caused a huge cramp in my jaw. really painful. chew and spit...
by elise
Mon May 23, 2016 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 14 year old boy with high grade dysplasia polyp
Replies: 6
Views: 858

Re: 14 year old boy with high grade dysplasia polyp

With the size of my tumours, it would have made sense that I had polyps starting between 16-18. I'm so glad he's had it removed. Personally I'd scope every year or two until there are a few clean then spread out to 3 years.

Elise
by elise
Thu May 19, 2016 6:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here and have diet questions
Replies: 6
Views: 784

Re: New here and have diet questions

You can for sure but start with only a few new ingredients at once and in small quantities. I eat huge amounts of veggies everyday :)
by elise
Thu May 19, 2016 6:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laparoscopic or open surgery for colon cancer
Replies: 38
Views: 3071

Re: Laporascopic or open surgery for colon cancer

I've had both and for sure it was quicker to recover from lap than open. I was up walking quicker and for much longer distances. I returned to exercise much faster.
by elise
Fri May 13, 2016 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Head First?
Replies: 6
Views: 746

Re: PET Scan Head First?

I went in head first to the PET. MRI i've had both ways to help claustrophobia :)

Elise
by elise
Wed May 11, 2016 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It is a recurrence
Replies: 5
Views: 940

Re: It is a recurrence

Hi Annie (from Ottawa ON!) second opinions are tricky in Canada :( Easiest way I've found is to go to your GP and ask them to request it with the person you want to meet. Though I would start chemo while you're waiting. Several people here have had HIPEC and Steph had it in Toronto region. I'll see ...
by elise
Wed May 04, 2016 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port question
Replies: 7
Views: 734

Re: Port question

Seems a little quick but dear dog I'd pull mine out of I could. Onc wants it in for 2 years :(

So JUMP SHIP!!! :roll:

Elise
by elise
Wed May 04, 2016 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with stage IV rectal cancer with spots on the liver
Replies: 6
Views: 1159

Re: 38 with stage IV rectal cancer with spots on the lungs

Hello BJ3 :) I'm different but some of the same :) I was dx with stage 2 at age 30 then a reoccurrence to stage 4 with liver met at age 34. Personally I'd do chemo until you are a surgical candidate. If you don't wind up being a surgical candidate then check out HAI at MSK for sure. BUTT your best c...
by elise
Sat Apr 30, 2016 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member: Stage IV at 25 currently with Dr. K
Replies: 12
Views: 1876

Re: New member: Stage IV at 25 currently with Dr. K

Hey :) Saying hi! I was dx stage 2 at age 30 and stage 4 (liver met) at 32. resected and now NED at 34. I also did a ton of research when I had my reoccurrence. HAI vs surgery. USA vs my home in Canada. There are so many options. Personally I've learned a few things along the way. You've gotta trust...
by elise
Sat Apr 30, 2016 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer spreads to elbow
Replies: 5
Views: 1056

Re: Rectal cancer spreads to elbow

Oh geez :/ if it helps at all, I've had a lot of issues with my bicep at the attachment to the elbow. Looks like its due to (1) all my bloodwork being done on one vein on that side which has created some adhesions. Physio has helped this. (2) my pec is always tight under my port. getting that loosen...
by elise
Tue Apr 26, 2016 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyclical Fatigue
Replies: 16
Views: 1519

Re: Cyclical Fatigue

Jachut wrote: the worst thing about it is the moods - I get cranky and teary exactly like a small child and I just cant take pleasure in anything.


Ahhh YES! I've been known to crumple to my kitchen floor and weep out of sheer exhaustion and inability to function. SUCKS!!!
by elise
Tue Apr 26, 2016 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyclical Fatigue
Replies: 16
Views: 1519

Re: Cyclical Fatigue

I get what you're saying. I do have low iron but even when addressed it doesn't solve the overall fatigue I have. For me, it cycles every day like this: 6:30am get up/shower/eat 9:00am BECOME USEFUL - walk dogs - do paperwork - clean house - go to the gym - run errands 3:00pm HALF USEFUL 4:00pm FADI...
by elise
Tue Apr 26, 2016 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo
Replies: 22
Views: 2084

Re: Tattoo

Do it BB!

I can tell you that once mine comes out, I'm getting that scar inked up!

Elise
by elise
Mon Apr 25, 2016 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Like I'm not dealing with enough - kidney stone?
Replies: 17
Views: 1966

Re: Like I'm not dealing with enough - kidney stone?

I've got them too :) Even tried surgery to get them out but failed. :roll:

Chin up :)

Elise

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