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by Cb75
Sun Nov 22, 2015 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From the Netherland; rectalcancer with lung mets
Replies: 17
Views: 2190

Re: From the Netherland; rectalcancer with lung mets

hi, I'm sorry to hear about your situation. I am also stage IV and have lung issues. I travelled to Germany to have surgery with Prof. Axel Rolle to have my lung mets resected. Please search my name on this board for posts about my experience. Although i have recurrence and am not in a great place r...
by Cb75
Sun Nov 08, 2015 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Infection
Replies: 6
Views: 970

Port Infection

Over the past few months, every time my port was accessed I would have a very strange reaction where I would get chills, start shaking and couldn't breath. Often with vomiting. After complying to my oncologist, he said in a very nonshelant way "it happens sometimes". Yeah, right. A few wee...
by Cb75
Sat Nov 07, 2015 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Access to drugs....
Replies: 13
Views: 1743

Re: Access to drugs....

I dont have any experience here but Id love to know how/where/how much it was for your testing. Was it at pmh? Id be interested in doing this too. I hope you are feeling well and having some great days. <3 Hi steph. First I want to apologize for not answering you PM. I've been overwhelmed and can h...
by Cb75
Tue Nov 03, 2015 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on hubby's lung surgery
Replies: 6
Views: 1446

Re: Update on hubby's lung surgery

It's wonderful that you found an aggressive surgeon. Where is your husband being treated? Please keep us posted on how things go. Folfiri worked really well for me.

Cb
by Cb75
Mon Oct 19, 2015 12:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemosaturation therapy
Replies: 6
Views: 1310

Re: Chemosaturation therapy

Hi,

It sounds like you are talking about the HAI pump. It is used in the US and Canada. Some get great results...

I can't help more beyond that. I'm looking into something similar for the lung....

cb <3
by Cb75
Mon Oct 19, 2015 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Access to drugs....
Replies: 13
Views: 1743

Access to drugs....

I had some testing done of a met that was just removed from my ovary. The testing revealed that I am resistant to some drugs like 5fu and oxi. However, I am sensitive to irinotecan (which I have been receiving as part of folfiri) for over a year. Is there anyone here who is only getting the irinotec...
by Cb75
Sun Oct 04, 2015 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shout out to Cb75
Replies: 22
Views: 2792

Re: Shout out to Cb75

Thanks :) I've been around. This surgery has really taken quite a bit out of me. I was left with a Takeoff Cathater in my lung to drain my plural effusion. This has resulted in quite a bit of pain an discomfort well beyond the pain of my ovary removal. I'm at a bit of a loss. I'm concerned that my l...
by Cb75
Sun Sep 27, 2015 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shout out to Cb75
Replies: 22
Views: 2792

Re: Shout out to Cb75

Hi!! Thanks so much for the post :) it really is uplifting when going through this crap. I've had quite the few weeks. After taking a short chemo break my body managed to grow a huge mass offy ovary. Luckily it was surgical and I had it removed Thursday. I was discharged today. All went well. It was...
by Cb75
Fri Sep 18, 2015 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Private Testing/ Champions Oncology
Replies: 6
Views: 1063

Private Testing/ Champions Oncology

Hi, I've had a recurrence in my ovaries. I'm scheduled for surgery next week. I'm looking into some testing of the sample to determine future options. I've come across a company called Champions Oncology. Here is the link https://championsoncology.com. Does anyone have any information on this? Or an...
by Cb75
Thu Sep 17, 2015 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ONC says chemo for life.. really?
Replies: 20
Views: 2043

Re: ONC says chemo for life.. really?

I'm in your boat. Stage IV with lung mets. I had a great response to folfiri and avastin. Everything gone but one spot. After 14 months straight, my oncologist suggested a break. My last scan, two and a half months into the break, I have fluid in my plura that needed to be drained and a large mass g...
by Cb75
Sun Sep 13, 2015 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Lung Surgery in Germany
Replies: 20
Views: 4615

Re: Laser Lung Surgery in Germany

I had bi lateral laser lung resection by Dr. Rolle in Germany. I had my left lung resected in November of 2013 and my right lung resected in Feb 2014. I've had mixed response in that the first surgery went well and all were resected and it remains cancer free, however, my right lung could not be res...
by Cb75
Sun Sep 13, 2015 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T … I hesitate to post this
Replies: 85
Views: 7732

Re: O/T … I hesitate to post this

I've been a member of this forum for quite some time. It was a life line for me of information, hope and knowing that I am not alone with this disease. Since the tone of this forum has changed, I haven't been as involved or responsive as I would typically be. I have always tried to share information...
by Cb75
Mon Aug 31, 2015 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad but true
Replies: 19
Views: 2658

Re: Sad but true

Did someone call? Let me know, I'm free. Xoxoxoxoxoxoxo

Cb <3
by Cb75
Fri Aug 21, 2015 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High blood pressure
Replies: 7
Views: 1101

Re: High blood pressure

Avastin can cause an increase in blood pressure. Over the year and a few months that I have been on it, with FOLFIRI, I have seen my normal/low blood pressure rise to something around 140/90 or so on a regular basis. I've been told it's not an issue. I've also heard that it could be a sign that the ...

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