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by DanInMN
Wed Jul 05, 2017 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 2647

Re: Time to decide whether to do chemo or just observe

musicluvr wrote:Same here. One spot on one lung. All others shrank with Erbitux. Been on 3 month break, scan at end of July. Can't wait to hear recommendations if everything is still stable!


I hope your scan in July is excellent. Enjoy your break!
by DanInMN
Wed Jul 05, 2017 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 2647

Re: Time to decide whether to do chemo or just observe

TXLiz wrote:How long do they say you should do chemo for, if you choose to take that route?


The standard run for post-op colorectal cancer. 6 months.
by DanInMN
Wed Jul 05, 2017 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 2647

Re: Time to decide whether to do chemo or just observe

If it were me, I would do Xeloda, but that's mainly because I had almost no side effects so it was almost like not doing chemo. If there is even one more met still too small to be seen on a scan, I think it would be worth doing Xeloda. If chemo doesn't do much to circulating tumor cells, why does p...
by DanInMN
Mon Jul 03, 2017 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 2647

Time to decide whether to do chemo or just observe

Four years after resection, and 3.5 years since the completion of Folfox, a small met appeared in my lung. It took 5 years from surgery to get big enough to biopsy. I had it removed in an super-easy lung resection 6 weeks ago. It was 1 cm in size, and the tissue removed had clean margins. My oncolog...
by DanInMN
Wed Jun 28, 2017 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things people say or don't say but it's okay
Replies: 82
Views: 11759

Re: Things people say or don't say but it's okay

In other words, when it is estimated that 47% of colorectal cancers could be prevented by appropriate lifestyles, it stands to reason that CRC could be reversed by extremely healthy lifestyles. If 50% of amputations can be prevented by avoiding heavy machinery, it stands to reason that limbs can be...
by DanInMN
Mon Jun 19, 2017 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met treatment experience
Replies: 6
Views: 807

Re: Lung met treatment experience

Do they know these were cancer and not just benign nodules?
by DanInMN
Fri Jun 16, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 113
Views: 15535

Re: Things Not to Say and the Responses I want to Make (Rant)

I was just talking to a friend, and the subject of how rough chemo can be came up. He went on and on, almost longingly, about how many people come to the realization that getting a few extra months of miserable life through chemo is so much worse than just going and being happy until the end. I just...
by DanInMN
Thu Jun 15, 2017 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 113
Views: 15535

Re: Things Not to Say and the Responses I want to Make (Rant)

Inorganic:

Your post is funny, true, and validates my feelings of rage about these same issues. :lol:
by DanInMN
Thu Jun 15, 2017 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad Scan but no rush? Lung nodule - update
Replies: 13
Views: 1665

Re: Bad Scan but no rush? Lung nodule

Sunwaterandsky, Can I ask where the nodule is located in your lung? Based on my limited experience, I find it strange they are saying you can't fly for a while after a biopsy. Maybe it was because mine nodule was close to the rib cage, but the biopsy was quick and simple. I was partially knocked out...
by DanInMN
Thu Jun 15, 2017 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad Scan but no rush? Lung nodule - update
Replies: 13
Views: 1665

Re: Bad Scan but no rush? Lung nodule

Well, I spoke with my oncologist. As expected, she reiterated that the data is thin for what the best approach is for someone in my position. She is recommending CT's every 3 months for a while, then every 6 months. She has also offered a couple chemo options if we feel the peace of mind is worth th...
by DanInMN
Wed Jun 14, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad Scan but no rush? Lung nodule - update
Replies: 13
Views: 1665

Re: Bad Scan but no rush? Lung nodule

Hi Dan, I am sorry to hear that. I know how we cherish every day that we are cancer free. Can I ask, what is the treatment plan now? I am assuming that mine is definitely cancer - met or new primary, based on the report. I am more concerned about what happens once it is identified. cheers, SWS Good...
by DanInMN
Wed Jun 14, 2017 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you drink during cold sensitivity?
Replies: 15
Views: 1142

Re: What do you drink during cold sensitivity?

I kept a pitcher of water with a fruit holder thing in the middle in the fridge, and a glass of the water on the counter to warm up a bit. The little bit of fruit flavor made a big difference for me. The pitcher was something like this: https://www.amazon.com/dp/B0023UL86A/ref=asc_df_B0023UL86A50300...
by DanInMN
Wed Jun 14, 2017 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 cured
Replies: 18
Views: 3586

Re: Stage 4 cured

Fantastic news. Thank you so much for sharing! :D :!: :D :!:
by DanInMN
Wed Jun 14, 2017 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad Scan but no rush? Lung nodule - update
Replies: 13
Views: 1665

Re: Bad Scan but no rush? Lung nodule

I was recently in a similar situation. Five years out and a growing nodule in my lung. I personally pushed to have the biopsy done quickly. I can't say this mattered medically. The nodule was very slow growing. It was something I personally wanted, as I hate sitting with uncertainty. We have enough ...
by DanInMN
Mon May 15, 2017 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Five years....and lung nodule
Replies: 48
Views: 4565

Re: Five years....and lung nodule

Thinking of you. Figured you've had surgery recently, or about ready to. All the best for a NEDville outcome. Post when you can. Lee Hey, I had my surgery on Friday the 12th. Everything went as best as could be hoped for. They didn't have to take very much lung (less than 5% of total lung capacity)...

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