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by Daisymae
Thu Nov 08, 2018 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Pain concern / previous rectal cancer
Replies: 4
Views: 439

Re: Rectal Pain concern / previous rectal cancer

I’ve had pain off and on from scar tissue. lAR - no radiation. Feels like a knife sticking in my rectum. take a pain pill and all good.
by Daisymae
Mon Jul 11, 2016 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool Fragmentation
Replies: 15
Views: 3871

Re: Stool Fragmentation

4.5 years out and my poop still looks like deer poop pellets. Just takes multiple times to get it all out. Not painful, not inconvenient, just how it is. May be better if I took metamucil but I dont.
by Daisymae
Thu Mar 17, 2016 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: repeat rectal adenomas/LAR?
Replies: 13
Views: 1410

Re: repeat rectal adenomas/LAR?

I'm just cutting and pasting a reply I did to a similar post earlier in the week: Hi - I had a 9x6 cm tubulovillous adenoma that was 2 cm in. I had ULAR at MSKCC with an ace surgeon. It have a hand sewn coloanal anastamosis (or as my friends say, a custom recrum :) I had a temp loop ostomy which was...
by Daisymae
Thu Mar 17, 2016 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enlarged nodes on MRI after polyp removal?
Replies: 12
Views: 1454

Re: Enlarged nodes on MRI after polyp removal?

I had an MRI w an enlarged lymph node and the report said consistent w metastatic disease. As it turns out it was inflamed likely from and d&c I had a few weeks prior for a miscarriage. I had all the lymph nodes removed a few weeks later during my ULAR and they all came back negative. So hard to...
by Daisymae
Sun Mar 13, 2016 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Difficult decision: ULAR or APR?
Replies: 15
Views: 2404

Re: Difficult decision: ULAR or APR?

Hi - I had a 9x6 cm tubulovillous adenoma that was 2 cm in. I had ULAR at MSKCC with an ace surgeon. It have a hand sewn coloanal anastamosis (or as my friends say, a custom recrum :) I had a temp loop ostomy which was reversed 3 months later. It was a rough go for a few months but now 4 years out -...
by Daisymae
Sun Jan 17, 2016 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Rectal adenoma high grade dysplasia-lost
Replies: 14
Views: 2099

Re: Low Rectal adenoma high grade dysplasia-lost

Hi - I had a 9x6 xm high grade dysplasia tubulovillous adenoma. I was treated at MSKCC. The doctor told me no one in their right mind would order radiation for someone without a definitive diagnosis of invasive Cancer. On the same note I was told it needed to be completely removed and he would treat...
by Daisymae
Fri Dec 18, 2015 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Myriad my risk hereditary Cancer blood test
Replies: 1
Views: 1960

Myriad my risk hereditary Cancer blood test

Just curious if anyone has done this test? I've had 2 doctors recommend it in last few months. It tests your risk for 8 primary cancers, one of which is colon. I did IHC testing at MSKCC and it was negative/normal so did nothing further. That was almost 4 years ago. Was considering calling them and ...
by Daisymae
Sat Dec 12, 2015 12:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not coping with ileo
Replies: 43
Views: 3904

Re: Not coping with ileo

Ostomy sucked for me.cicknow others are grateful for it but I never felt that way. Everyone is so different. I was told I had a 5 percent chance of ending up with one and of course I did - but it was temporary. I also had a 1 year old at the time. I didn't adjust well. I had skin reactions to the ad...
by Daisymae
Tue Dec 01, 2015 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ultra low anterior resection
Replies: 8
Views: 1908

Re: Ultra low anterior resection

I had a ULAR march 2012 - ostomy reversal may 2012. I get that weird, debilitating rectal pressure/pain you are describing, but only when I ovulate. It's like clockwork every month. Initially it was so bad that I couldn't walk up stairs, had to lie on the floor with my legs in butterfly position bec...
by Daisymae
Fri Sep 25, 2015 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frequent urge to urinate after Open LAR for rectal cancer
Replies: 12
Views: 1046

Re: Frequent urge to urinate after Open LAR for rectal cancer

I had this and went to see a urologist. He said the majority of people who have LAR have nerve damage to bladder because bladder and rectum share same nerves. Mine only gets aggravated when I have surgery or procedures in the pelvic area and always eventually resolves itself. He recommended I do pel...
by Daisymae
Fri Aug 21, 2015 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum, rectal cancer, must make surgery choice -- help!
Replies: 46
Views: 5139

Re: New to forum, rectal cancer, must make surgery choice -- help!

Sorry I did want to add - my quality of life now is great. Truly. I have even had another baby since my surgery and had no problems. As I mentioned I do have a new normal but it in no way has impacted my life negatively. The only thing I did want to add is that I do have an issue w scar tissue. This...
by Daisymae
Fri Aug 21, 2015 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum, rectal cancer, must make surgery choice -- help!
Replies: 46
Views: 5139

Re: New to forum, rectal cancer, must make surgery choice -- help!

I had a 9x6 cm mass which ended up being stage 0 so no chemo/rad. I had surgery at Sloan Kettering and had rectum removed with coloanal anastamosis/temp Ostomy which was reversed 3 months later. My mass was about 2 cm from anal verge. I had some complications in the hospital - was there for 13 days....
by Daisymae
Tue Jul 21, 2015 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal - Urgency & Accidents
Replies: 7
Views: 1104

Re: Ileostomy Reversal - Urgency & Accidents

It took me a good 3 months to feel comfortable leaving the house for long periods of time, and even then, the first thing I looked for when I arrived anywhere was the bathroom. I remember being at the park with my 2 year old, pushing him in the swing and pooping in my pants. But things did get bette...
by Daisymae
Thu May 14, 2015 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Surgery Next Tuesday - update
Replies: 21
Views: 1968

Re: Reversal Surgery Next Tuesday

Hi - wanted to wish you luck. I had a super low mass - hand sewn straight connect coloanal anastamosis. The first 3 months were really hard. I was afraid to leave the house and had some accidents. Always was on the lookout for a bathroom. Burning butt from frequency. But I can honestly say after 3 m...
by Daisymae
Sat May 02, 2015 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very Low RC experiences
Replies: 19
Views: 1536

Re: Very Low RC experiences

I had a 9cm mass which ended up being 2cm in. It was stage 0 or precancerous, which we didn't know until it was completely removed. Because the biopsies did not show Cancer my doctor did not want to do radiation. I ended up with a straight connect, hand sewn coloanal anastamosis. I had a temporary o...

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