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by NedPlease
Thu Mar 21, 2019 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 419

Re: Lung specialist at MSK or MDA? Advice, please.

David R Jones MD, now at MSKCC, is the thoracic surgeon who performed my VATS (at a different cancer center) and a genius, in my opinion.

Best,
N
by NedPlease
Sun Feb 17, 2019 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another NED question: PUMP v. NO PUMP?
Replies: 32
Views: 1543

Re: Another NED question: PUMP v. NO PUMP?

Over seven years NED (11/11) and no pump, although I did consult w Kemeny regarding it.

Best,
N
by NedPlease
Sun Feb 17, 2019 4:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 7335

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

I’ve been NED since 11/11 and I received surgery (liver transplant surgeon) at UVA following a consult with Dr. Kemeny at Sloan.

Best to you,
N
by NedPlease
Sun Feb 03, 2019 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED maybe. Stage 4, after 10 years Free. FOLFIRi?
Replies: 9
Views: 939

Re: NED maybe. Stage 4, after 10 years Free. FOLFIRi?

Hate, hate, hate that you once again have to handle cancer. Your thought process regarding treatment sounds impressively calm and collected and I’m in awe. I have no real treatment guidance (xeloda was used for my lung lesion and that was in 2011) but am curious of any recurrence symptoms since I as...
by NedPlease
Thu Nov 15, 2018 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In canada MSK not option
Replies: 8
Views: 965

Re: In canada MSK not option

Yes, there’s much hope!

I consulted with Dr Kemeny at MSK but ultimately did not choose HAI pump. Instead, I had surgery at another major cancer center in the US. I felt confident in the doctors I chose and have no regrets. NED since 2011.

Best to you,
N
by NedPlease
Thu Oct 11, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy news
Replies: 9
Views: 1299

Re: Happy news

Great news!
N
by NedPlease
Wed Jul 11, 2018 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Second parent diagnosed with stage 4 colon cancer
Replies: 17
Views: 4998

Re: Second parent diagnosed with stage 4 colon cancer

I am so sorry and angry. This is truly a nightmare and tragically unfair. My own diagnosis made way for my thirty-ish year old children to be scoped with the hope of catching any cancer early and sparing their lives. So WTF, how is it that this has happened to your mom? Going forward, I do hope you’...
by NedPlease
Wed Jun 13, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 788

Re: Hand and foot syndrome

Try Vitamin B6 and there are plenty of previous posts to search for more information. It worked for me.
Best,
N
by NedPlease
Tue Jun 12, 2018 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 1166

Re: Stage 4 support?

Stage four since 2010 and still here:) Signature provides details. And I just got results from a CT scan just today and still NED.

Keep fighting
N
by NedPlease
Fri May 25, 2018 7:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years later
Replies: 8
Views: 901

Re: 8 years later

Great news and loving the company.
Eight years for me too!

Continued good health,
N
by NedPlease
Wed May 09, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ten years and I missed it!
Replies: 17
Views: 4531

Re: Ten years and I missed it!

Great to hear this kind of news!
N
by NedPlease
Mon May 07, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeat Performance
Replies: 4
Views: 824

Re: Repeat Performance

Well, this is beyond disturbing news. I hate that this has happened to you after so many years. It is the nightmare we NEDers have. I’m interested in what your surveillance schedule was after the five year mark. CT frequency, in particular. CEA checked? I wish you the best and glad you’re taking adv...

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