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by NedPlease
Thu Nov 15, 2018 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In canada MSK not option
Replies: 8
Views: 752

Re: In canada MSK not option

Yes, there’s much hope!

I consulted with Dr Kemeny at MSK but ultimately did not choose HAI pump. Instead, I had surgery at another major cancer center in the US. I felt confident in the doctors I chose and have no regrets. NED since 2011.

Best to you,
N
by NedPlease
Thu Oct 11, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy news
Replies: 9
Views: 1155

Re: Happy news

Great news!
N
by NedPlease
Wed Jul 11, 2018 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Second parent diagnosed with stage 4 colon cancer
Replies: 17
Views: 4695

Re: Second parent diagnosed with stage 4 colon cancer

I am so sorry and angry. This is truly a nightmare and tragically unfair. My own diagnosis made way for my thirty-ish year old children to be scoped with the hope of catching any cancer early and sparing their lives. So WTF, how is it that this has happened to your mom? Going forward, I do hope you’...
by NedPlease
Wed Jun 13, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 657

Re: Hand and foot syndrome

Try Vitamin B6 and there are plenty of previous posts to search for more information. It worked for me.
Best,
N
by NedPlease
Tue Jun 12, 2018 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 993

Re: Stage 4 support?

Stage four since 2010 and still here:) Signature provides details. And I just got results from a CT scan just today and still NED.

Keep fighting
N
by NedPlease
Fri May 25, 2018 7:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years later
Replies: 8
Views: 806

Re: 8 years later

Great news and loving the company.
Eight years for me too!

Continued good health,
N
by NedPlease
Wed May 09, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ten years and I missed it!
Replies: 17
Views: 4291

Re: Ten years and I missed it!

Great to hear this kind of news!
N
by NedPlease
Mon May 07, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeat Performance
Replies: 4
Views: 743

Re: Repeat Performance

Well, this is beyond disturbing news. I hate that this has happened to you after so many years. It is the nightmare we NEDers have. I’m interested in what your surveillance schedule was after the five year mark. CT frequency, in particular. CEA checked? I wish you the best and glad you’re taking adv...
by NedPlease
Thu Mar 01, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung and needle biopsy
Replies: 17
Views: 3379

Re: Lung and needle biopsy

I did not have a biopsy as it was so small (7mm) that a radiologist friend told me a biopsy might be inconclusive and a top notch thoracic surgeon was willing to remove it via VATS. I wanted it out rather than watching it. Pathology confirmed it was, indeed, a colon met. That’s just my story. Yours ...
by NedPlease
Tue Feb 27, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 15619

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

Hi Love, I’m still here living a life without thinking about cancer every waking minute. And that took years. Read my signature for treatment details. I live in healthy moderation but always did really. Nothing extreme- an aspirin and Vit D most days, exercise most days, and occasional alcohol and r...
by NedPlease
Thu Dec 07, 2017 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 5301

Re: CT Scan Just came in Liver Met (one)

Riki,

A treatment do-over for me would be to ask for IV fluids because I had much difficulty staying hydrated. It affected my fatigue level and I’m convinced IV fluids could’ve made life much better. Something to think about especially as a parent of young children

N
by NedPlease
Thu Dec 07, 2017 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 5301

Re: CT Scan Just came in Liver Met (one)

Riki,

Both depressing and frightening news for sure but keep the faith because I had two big fat liver mets in 2010 and I’m doing well in 2017. A good outcome is possible.

Best to you,
N

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