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by Coppercent
Fri Sep 22, 2017 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 125
Views: 46751

Re: BrownBagger ....... I don't know what to say

Oh, wow! I do not get on a lot but this just hits the gut! He was so supportive and really was such an inspiration. I just don't have words. :( :x
by Coppercent
Sat Jan 30, 2016 7:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Medsape -Timing of ColoRectal surgery after chemo and rad
Replies: 7
Views: 1394

Re: Medsape -Timing of ColoRectal surgery after chemo and rad

The link worked fine for me. No log in or password. Informative article.
by Coppercent
Sat Dec 26, 2015 5:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Which one to choose. J-Pouch or direct rectum join ?
Replies: 19
Views: 3788

Re: Which one to choose. J-Pouch or direct rectum join ?

I have a very successful straight connect. I always forgot to ask my surgeon why he chose that for me. He is well known in the area for j- pouches. It worked well for me but someday I may ask why. Good luck.
by Coppercent
Sat Oct 31, 2015 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT-ish: How many ER visits...
Replies: 17
Views: 2359

Re: OT-ish: How many ER visits...

I only had four visits to the ER. Two visits I ended up in ICU and two I ended up with a week stay on a regular floor. A fifth time was when I made an appointment with my surgeon with issues. When I called for an appointment he told me to come right in. As soon as I got there he called an ambulance ...
by Coppercent
Thu Feb 26, 2015 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are NED and Remission the same thing?
Replies: 35
Views: 3772

Re: Are NED and Remission the same thing?

From my understanding PET scans are not the first option or recommended do to the extra poisons that are put unnecessarily into your body. Plus CT scans for the most part will show the recurrence although some people will disagree with that since experiences are different for everyone. I had a CT sc...
by Coppercent
Thu Feb 26, 2015 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newy diagnosed
Replies: 4
Views: 1339

Re: Newy diagnosed

Good luck to your cousin and your family. The severity of the side effects from chemo/radiation using Xeloda are all over the place depending on the person. I did the radiation and Xeloda prior to my LAR and did not have any issues with it and worked. I would schedule my radiation at the end of the ...
by Coppercent
Thu Feb 26, 2015 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are NED and Remission the same thing?
Replies: 35
Views: 3772

Re: Are NED and Remission the same thing?

The verbiage depends on your physicians. Complete remission is that there is no evidence of cancer. So NED is used interchangeably. There is also partial remission where the cancer is decreasing or only something small is found and they are watching it. To me its all good and they can call it what t...
by Coppercent
Tue Feb 17, 2015 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 841
Views: 416232

Re: For Stage III's: NED for how long now?

I was diagnosed July 2011. Was NED from Dec. 2011 through May 2013 when cancer revisited me. Had surgery at that time and have been NED since then. Just had a PET last week and so far all is good. My scans are always marked as stable since I have another condition that lights up just like my cancer....
by Coppercent
Mon Feb 16, 2015 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Denied, again.
Replies: 35
Views: 4000

Re: Denied, again.

Sorry to hear you were denied. We should not have to work so hard for treatment.

Can't believe they did not cover it! My insurance covered my "baking soda lemon peel pineapple cure treatment plan". Sorry! Could not resist that treatment to cure me!
by Coppercent
Thu Jan 01, 2015 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How often do you flush your port?
Replies: 21
Views: 3840

Re: How often do you flush your port?

I have mine flushed every three months when I go in for my three month check ups. I have been doing that for two years now.
by Coppercent
Sun Dec 14, 2014 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Incontinence
Replies: 22
Views: 4308

Re: Incontinence

Have you tried talking with your surgeon? I have a straight connect and not a j-pouch but my surgeon was great at walking me through the adjustment period. Although he was a little different and had me avoid all drugs and supplements for the first month or so to allow my body to adjust naturally. Go...
by Coppercent
Sun Dec 14, 2014 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sleeping well
Replies: 13
Views: 2072

Re: Not sleeping well

Have you tried walking? Maybe some more activity through the day will help with sleep at night.
by Coppercent
Sat Nov 29, 2014 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What am I doing wrong?
Replies: 15
Views: 3526

Re: What am I doing wrong?

I am not sure there is one right answer for everyone. You have to listen to your body to see what works. I know for me I have to walk run regularly to stay regular. The activity is very helpful. I have learned different foods to slow me down such as carbs or protein. And foods that will usually alwa...
by Coppercent
Wed Nov 26, 2014 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: help get the new job
Replies: 2
Views: 947

Re: help get the new job

For me it would depend where I am at in the cancer journey. If I were still in treatment or waiting on having a surgery I would be honest because I would need to be asking for time off ahead of time. My rule of thumb is if you will need time off in your first year that needs to be discussed pre-hire...
by Coppercent
Wed Nov 26, 2014 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for those who have had radiation for rectal cancer
Replies: 12
Views: 1965

Re: Question for those who have had radiation for rectal can

I am similar to everyone else. They removed my whole rectum along with the tumor. But I had radiation pre-surgery. Drink a lot of lemon juice to prevent burning on radiation at the end. Sounds crazy but it really works.

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