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by sandrichelle
Mon Dec 09, 2013 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PD-1 Clinical Trial
Replies: 3
Views: 1028

PD-1 Clinical Trial

Hello All, It's been a while since I have posted but I do come on at least a couple times a week and pray everyday for all of us! I have just recently had my tumor tested with the following results back: "This patient's adenocarcinoma is diffusely, weakly to moderately positive for PD-1. Greate...
by sandrichelle
Mon Sep 16, 2013 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: JulieG .... another beautiful person gone too soon.
Replies: 18
Views: 3686

Re: JulieG .... another beautiful person gone too soon.

I am at a loss for words missing Julie. Her and I were chemo buds! I met Julie back in the spring of 2013 when I started my chemo. We hit it off right away and even re-arranged our schedules to have treatment the same time so that we could chat. We exchanged good news and bad, cried and laughed toge...
by sandrichelle
Mon Sep 16, 2013 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: good news for stage 4
Replies: 20
Views: 2203

Re: good news for stage 4

Thank you for posting...it does give me so much hope to read this, not to mention the gigantic sense of happiness I feel for you and your family! Congrats!!!
by sandrichelle
Tue Sep 03, 2013 8:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR ALL ON CLINICAL TRIALS (edited name)
Replies: 373
Views: 64762

Re: FOR ALL ON CLINICAL TRIALS (edited name)

Hi all I am really far too early to know if this is working or not. The only thing we have to go by is my bloodwork. Day 15 showed a significant decrease in my cea with a lot of inflammation. Day 30 showed a significant rise back up and even higher than base but got a phone call from my doctor telli...
by sandrichelle
Thu Aug 08, 2013 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving forward with a clinical trial
Replies: 16
Views: 3327

Re: Moving forward with a clinical trial

Hi guys, Just wanted to stop in and give you a quick update on my treatment. Not much to tell at this point except my cea did drop from 415 to 290 which is significant and promising. The procedure itself was realativly easy, only issue being pain control post surgery as I have been on so much medica...
by sandrichelle
Tue Aug 06, 2013 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why Am I Dying?
Replies: 51
Views: 9876

Re: Why Am I Dying?

I am so sorry to hear of your loss. Not a day will go by that you won't think of her but hopefully in time those thoughts will be happy positive ones that bring a smile to your face as I know that is probably how she would have wanted it to be. As the cancer patient myself, my biggest fear in this w...
by sandrichelle
Sat Jul 13, 2013 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial NCT01040000
Replies: 8
Views: 1674

Re: Trial NCT01040000

It looks like a dose escalation trail so important to ask the doctors what dose you will be getting and what does do they anticipate will be the appropriate dose to be efficient. I guess what I am saying is you don't want to jump on too early as that does may be so minimal that it's likely not to ha...
by sandrichelle
Wed Jul 10, 2013 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR ALL ON CLINICAL TRIALS (edited name)
Replies: 373
Views: 64762

Re: FOR ALL ON CLINICAL TRIALS (edited name)

Hi Diane, I can't express how happy it makes me that you have been chemo free for so long. I wish I had an absolute "I would do this" advice for you but I don't. I think that taking a break is for your bodies sake is always a good idea However with that said, is there a chance that IF you ...
by sandrichelle
Sat Jul 06, 2013 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR ALL ON CLINICAL TRIALS (edited name)
Replies: 373
Views: 64762

Re: FOR ALL ON CLINICAL TRIALS (edited name)

Hi Sky,

Which protein is it? Just curious. Thanks
Michelle
by sandrichelle
Thu Jul 04, 2013 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR ALL ON CLINICAL TRIALS (edited name)
Replies: 373
Views: 64762

Re: FOR ALL ON CLINICAL TRIALS (edited name)

Thanks Sky...yes I do and if you don't mind me asking, are you in a trial currently? If so, which one and how is it going?
by sandrichelle
Thu Jul 04, 2013 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving forward with a clinical trial
Replies: 16
Views: 3327

Re: Moving forward with a clinical trial

Skypup,

Some I have, some I have not and some I just really don't understand :)

Thanks!!! Much appreciated!
by sandrichelle
Thu Jul 04, 2013 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR ALL ON CLINICAL TRIALS (edited name)
Replies: 373
Views: 64762

Re: FOR ALL ON CLINICAL TRIALS (edited name)

Hello all, I posted this as a sep post but thought may be more beneficial here :) This is the trial I will, hopefully be starting in the very near future: Open-Label Phase 2 Efficacy Trial of Cancer Macrobeads in Patients With Treatment-Resistant Pancreatic or Colorectal Cancer http://ClinicalTrials...
by sandrichelle
Thu Jul 04, 2013 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving forward with a clinical trial
Replies: 16
Views: 3327

Re: Moving forward with a clinical trial

The beads are placed in the abdomen via laproscopic surgery.
by sandrichelle
Wed Jul 03, 2013 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving forward with a clinical trial
Replies: 16
Views: 3327

Re: Moving forward with a clinical trial

Thanks guys, I have my consult and screening on Monday! I will keep you posted
by sandrichelle
Wed Jul 03, 2013 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone looked into this clinical trial ?
Replies: 9
Views: 1911

Re: Has anyone looked into this clinical trial ?

I thought this trial was not enrolling anymore. All my wonderful surgeons are at Sloan and I had two appointments with the oncologist conducting this trial. I found him to be the coldest, most uncaring doctor ever. If you are considering a trial I would like to mention the one I have enrolled in. I...

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