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by SMR
Tue Jun 14, 2016 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Paid survey for patient/caregiver BOSTON
Replies: 1
Views: 499

Paid survey for patient/caregiver BOSTON

Hello all. I haven't been around Colon Club in a long while, but I was pretty active when my husband was a patient. Actually I'd say this place was my lifeline for a good long while. Anyhow, I was contacted about a paid study for a patient and caregiver pair in the Boston area. The patient must eith...
by SMR
Sat Oct 03, 2015 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hipec
Replies: 8
Views: 2405

Re: hipec

I know of at least one CC member who has passed 5 years NED after HIPEC. A lot depends on how extensive the peritoneal malignancy is. It is common to "sandwich" the surgery in between chemo - meaning 3-4 months chemo, then HIPEC, then return to chemo. There are others here who've obtained ...
by SMR
Sun Aug 02, 2015 7:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 112949

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

I read on Helen's FB page that the surgery went well. She had six inches of colon removed, and pathology should be in early this coming week. I know we all will keep her in our thoughts. Hopefully she will feel up to posting an update for us too.
by SMR
Mon Jul 20, 2015 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 112949

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

I feel the same... If someone should find their way into my life, so be it... But I just can't go looking. It doesn't feel right and I cringe just thinking of it. It is so hard thinking that anyone could understand me, and all I've been through, and what I may need. I'm 38 which should be young, but...
by SMR
Sun Jul 19, 2015 6:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 112949

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

It has been so long since I've visited this forum, but after catching up a bit on this thread, I can say that I plan to come back more often. The conversation is so so so.... Well, just feels like tearing a page out of my own book. I go back and forth between not having any desire to ever date, and ...
by SMR
Fri May 29, 2015 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RayM is Resting in Peace
Replies: 66
Views: 10041

Re: RayM is Resting in Peace

Ray and my husband walked a similar path, so we spoke quite a bit before my husband passed. I'm so sorry for his family. I'll raise a glass to you Ray.
by SMR
Sat May 02, 2015 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To do what the docs suggest, or not?
Replies: 53
Views: 6257

Re: To do what the docs suggest, or not?

Sky, It has been a long while since my last visit to the boards. Im sorry to hear about the decisions you are currently facing. You are of course on of the names I recognize and look forward to seeing. Back in the day, my husband was offered an off label use of a drug that has known severe skin side...
by SMR
Sat May 02, 2015 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husbands Ex has stage 4, what about the kids?
Replies: 16
Views: 2138

Re: Husbands Ex has stage 4, what about the kids?

You have gotten some great advice here so far. My story may help you some, but I'm not comfortable discussing those details on the 'net. If you want to PM me I'd be more than happy to share. Anyway, hang in there. Cancer isn't easy on anyone at all.
by SMR
Sat May 02, 2015 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC and QOL
Replies: 5
Views: 1660

Re: HIPEC and QOL

My husband had a very extensive CRS with HIPEC. He was not cured by this procedure, but we were given extra time - and GOOD time together because of the procedure. UPMC is supposed to be one of the best places for hipec, and having an experienced surgeon is key!
by SMR
Sat Feb 28, 2015 11:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Travel insurance
Replies: 15
Views: 2235

Re: Travel insurance

I haven't had a chance to read all of the responses yet, so I'm sorry if I am repeating previous info. We had a big trip planned and we took out travel insurance. What we needed was a note from my husband's oncologist stating that at the time of the purchase of the trip that he was cleared to travel...
by SMR
Wed Feb 25, 2015 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 112949

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

Helen, As you always have, you warm my heart. I feel so very much for you. I am coming up on the one year mark next month and it is just so very hard to believe. I too know that people think I am doing much better than I am. I've been running around like crazy... I've even packed up and moved. I've ...
by SMR
Mon Feb 23, 2015 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 112949

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

Vicki- I'm so happy that you are able to have your daughter with you during this time. I'm going on 11 months since losing my DH and it hasn't gotten easy... I'm quite sure it never will. I've packed up and moved more out of neccesity than desire. While I'm about 20 years your junior, I still know t...
by SMR
Wed Feb 18, 2015 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fruit Fly Study at Mount Sinai (NYC)
Replies: 5
Views: 1351

Re: Fruit Fly Study at Mount Sinai (NYC)

I've heard about it briefly but don't know much. I'll be interested in hearing your perspective after your meeting.
by SMR
Mon Jan 26, 2015 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 112949

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

Lisa, I remember you well indeed and have often thought of you. Since we last were in touch my DH has also passed (3/28/2014) I can scarcely believe it has been ten month in this world without him. Send me a msg if you'd like to connect via Facebook. It was so nice hearing from you.

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