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by westie68
Mon Mar 25, 2013 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 5 yrs later now peritoneum spread-head is spinning!
Replies: 11
Views: 2662

Re: Stage IV 5 yrs later now peritoneum spread-head is spinn

Hi: I also have mets to the peritoneum and wasn't and won't be eligible for the peritoneum removal/HIPEC surgery. However, my oncologist put me on folfirinox (oxaliplatin + irenotecan + 5FU pump) and there was some reduction in size in some of the peritoneum mets and no new ones. However, I ended up...
by westie68
Wed Mar 20, 2013 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abdominal Pain Question
Replies: 3
Views: 813

Re: Abdominal Pain Question

Hi: I, too, have been experiencing lots of pain in my abdominal area (see my posted query) following several surgeries for gallbladder cancer and most recently for a permanent colostomy (left side). My pain is mainly at the belly button and on the right side. I had folfirinox up until May 2012 and h...
by westie68
Mon Mar 18, 2013 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Gastro-Intestinal Pain Upon Standing
Replies: 0
Views: 495

Internal Gastro-Intestinal Pain Upon Standing

Hi all: This has probably been covered already in some other discussion in the past but I couldn't find it. In May 2012 I have a perforated bowel and had a colostomy. It took 2 surgeries to do that as in the 2nd surgery the surgeon fixed up a hernia from abdominal surgeries in April 2010. In April 2...
by westie68
Mon Mar 18, 2013 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Banana Skins
Replies: 11
Views: 2140

Re: Banana Skins

Hi: I wish someone would try the banana skins! I agree, it must be the inner white part. I don't see my nurse until next week but I'll get more information then - as someone said, what the heck, it can't hurt! At least the overall shape is right! Re the neuropathy. I used the following supplements f...
by westie68
Fri Mar 08, 2013 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Banana Skins
Replies: 11
Views: 2140

Banana Skins

This is going to sound way out there, but here goes. I remember getting these horrible, painful anus sores when I was on folfirinox and having to apply goopy diaper rash. I may have to go back on folfirinox and was talking to my nurse about it. She said she has a patient on folfox who gets the same ...
by westie68
Fri Feb 01, 2013 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ambient noise machine
Replies: 8
Views: 774

Re: ambient noise machine

Hi: I don't have the alarm clock but do have a radio-like one that plays those sounds all night. I can choose which sound to have (e.g. babbling brook - but makes me want to go to the loo!) and at what volume. I also have lots of relaxation CDs and even DVDs. All help when you can't sleep which is n...
by westie68
Fri Feb 01, 2013 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox shopping list--any suggestions?
Replies: 23
Views: 1868

Re: Folfox shopping list--any suggestions?

Hi: If you want her to try what I did to keep the cold thing at bay, here is my list: (1) L-glutamine powder (5-10grams/day in a smoothie) (2) Vit B6 (1/day) (3) Calcium-Magnesium tablet (1/day) (4) Alpha lipoic acid tablets (3/day) A cancer friend took these medicinals to help her get through the c...
by westie68
Sat Dec 01, 2012 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair color and chemo
Replies: 17
Views: 2424

Re: Hair color and chemo

Hi: I have had 12 treatments on cisplatin-gemcitibine and 14 treatments on folfirinox. In the beginning, I did not lose any hair but that sure changed near the end of my folfirinox treatments and even more after surgery for a perforated bowel - most of my hair fell out/broke off (I had coloured my h...
by westie68
Sat Dec 01, 2012 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 325
Views: 85827

Re: Calling ALL Colorectal CANUCKS !

Hi: I've always have had to wait 2 weeks to go over my CT/MRI scans with my oncologist at the London Regional Cancer Centre. I can get the scans at any of our 3 hospitals and the radiologists compares the recent scan to all others I've had. The appointment with the oncologist is usually 2 weeks late...
by westie68
Wed Nov 21, 2012 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can they treat just the liver?
Replies: 6
Views: 1452

Re: Can they treat just the liver?

Hi: I have mets to the peritoneum and to the liver. Surgery is out because of the multiple mets. However, I just finished high dose radiation to the liver tumour - every 2nd day for 2 weeks. I have a CT scan coming up so we'll see how that worked. I'll keep you posted.
Cheryl
by westie68
Wed Nov 21, 2012 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diverticulitis - result of chemo?
Replies: 5
Views: 2302

Re: Diverticulitis - result of chemo?

Hi: I had 14 treatments of folfirinox (oxaliplatin + irenotecan + 5FU). On May 28, I was enjoying my morning cup of coffee and suddenly I was completely paralyzed with pain through the abdomen. Couldn't even move. Fourteen hours later I was found by friends and rushed to emergency. I was in intensiv...
by westie68
Wed Nov 21, 2012 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A last ride with Blue the convertible
Replies: 21
Views: 2517

Re: A last ride with Blue the convertible

Hi: I am so so sorry about Lauren. We shared the same disease. She was a fighter. It was a beautiful day here in Ontario as well and I was thinking of you, a
mom who fought so hard for her beloved daughter. What a funeral! She must have been grinning all day.
Cheryl
by westie68
Wed Nov 21, 2012 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A toast to Lauren - who in
Replies: 22
Views: 2151

Re: A toast to Lauren - who in

Hi all: I'm in too, Pepsi in hand. Here's to you, Lauren.
Cheryl
by westie68
Mon Nov 05, 2012 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To Janklo - How is Lauren Doing? :)
Replies: 10
Views: 1187

Re: To Janklo - How is Lauren Doing? :)

Hi: I'm so happy that Lauren is home and out of danger. What a relief!
Cheryl
by westie68
Mon Nov 05, 2012 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cold Sensitivity
Replies: 4
Views: 651

Re: Cold Sensitivity

Hi: I had cold sensitivity with the first treatment of folfirinox but after that took supplements (alpha lipoic acid, L-Glutamine, Vit B6, calcium:magnesium) and never had it again even after 14 treatments.
Cheryl

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