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by SoConfused
Fri Dec 11, 2020 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 in 2011 still NED in 2020
Replies: 15
Views: 3128

Re: Stage 4 in 2011 still NED in 2020

So happy to see your update ... remember starting this journey together almost at the same time.
by SoConfused
Fri Dec 11, 2020 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2011 Stage IV Survivor - NED
Replies: 8
Views: 1437

2011 Stage IV Survivor - NED

Hi everyone, It has been a couple of years since I last checked in but this forum and my old "colon club" friends are always in my heart. I found so much information, hope and encouragement here to get through some of the darkest and most challenging days of my life, and truth be told, if ...
by SoConfused
Wed May 09, 2018 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 7909

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am at a loss for words adequate for what you are going through. My only comment/recommendation would be to use a multi-disciplinary practice/institution whose various experts (oncologist, radiologists, surgeons, nutritiinist, counselor, social worker, etc.) can work together closely and in a timel...
by SoConfused
Wed May 09, 2018 12:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 2139

Re: New to forum - CEA trending up while on adjuvant chemo

CEA spikes during chemo treatments are normal and may be caused by tumor death and/or inflammatory process in the body.
by SoConfused
Wed May 09, 2018 12:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to hospital for ascites
Replies: 11
Views: 2207

Re: Back to hospital for ascites

I am very sorry for what your wife is going through ... is targeted, intrabdominal chemo (similar to HIPEC w/0 the jnvase surgery) an option for your wife to at least get her peritoneal disease under control since that is what is causing the ascites? I remember someone on this board had this done at...
by SoConfused
Wed May 09, 2018 12:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Déjà vu
Replies: 11
Views: 2522

Re: Déjà vu

I wanted to provide an update on my situation in case it may be a helpful reference to someone else in the future ... I am always looking for and finding answers in others’ stories ... quick recap: stage IV diagnosed in June 2011 with a liver met, currently in remission. My last set of quarterly sca...
by SoConfused
Thu May 03, 2018 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please need prayers
Replies: 23
Views: 6368

Re: Please need prayers

praying for peace of mind and a good outcome. Each scan has s specific strength ... CT scan is the standard modality for surveillance and follow up monitoring with great accuracy.
by SoConfused
Thu May 03, 2018 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: She’s gone...
Replies: 15
Views: 5846

Re: She’s gone...

I am verry saddened and sorry for your loss - not sure what to say, simply praying for your peace during this difficult time.
by SoConfused
Tue May 01, 2018 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Déjà vu
Replies: 11
Views: 2522

Re: Déjà vu

I was wondering if you could expand you signature a little so that we can better understand how your 6+ year journey has unfolded... You earlier shared partial information about your original surgery (see below), but I think it might help to have a more complete picture of your past treatment histo...
by SoConfused
Mon Apr 30, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Déjà vu
Replies: 11
Views: 2522

Déjà vu

well ... was hoping colonoscopy last week would provide a definitive answer (better yet relief) to the case of the 13 mm nodular density noted on my latest CT scan at the suture line of my prior anastomosis. Colorectal surgeon missed the spot initially but as he was concluding the colonoscopy, he no...
by SoConfused
Sun Apr 22, 2018 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan result
Replies: 8
Views: 2731

Re: PET scan result

Hello SoConfused, So sorry to hear that you are dealing with a possible recurrence, especially so far out from the original diagnosis. I was diagnosed in 2011, so it is a bit jolting to see that recurrence is still possible when things are going well for so long. Hopefully your situation turns out ...
by SoConfused
Thu Apr 19, 2018 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 15608

Re: Scanxiety: Anyone else having testing now?

My CEA last month was normal. What are the chances this is something other than a recurrences? what are some of the other possibilities? if not a new tumor, what can it be? Im so sorry that you're facing uncertainty again after so many years. I hope that this new finding can be easily and successfu...
by SoConfused
Mon Apr 16, 2018 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 15608

Re: Scanxiety: Anyone else having testing now?

hi everyone - I had my scans today and have already received a copy of the report ... interesting, I had zero anxiety this time both leading up to and during the scans which was a change for me. Unlike other times, the scans/report have picked up on a concern which requires further follow up by PET ...
by SoConfused
Mon Apr 16, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan result
Replies: 8
Views: 2731

Re: PET scan result

I had the reverse case a few months ago, where the CT showed some ill defined tissue behind the anastomosis, so my surgeon recommended a PET/CT which showed almost no uptake so he wasn't concerned anymore. I suspect a biopsy will be the next step for you. Hi everyone - it has been a long while sinc...

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