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by Patricia Ann
Wed Nov 27, 2013 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: swaying poults please! UPDATE
Replies: 38
Views: 2730

Re: swaying poults please! UPDATE

Rob,
I am so happy for you. Congratulations on the good scan, I hope it continues forever and ever. Hope you have a Happy Thanksgiving - you have a lot to be thankful for this year. YEA!!!

God Bless You,
Patti
by Patricia Ann
Tue Nov 26, 2013 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I now have an expiration date - update at end of post
Replies: 32
Views: 4540

Re: I now have an expiration date......

Thank you everyone for the prayers and the comforting words. Not an easy time. @SMR - so sorry to hear that your husband is going through the same thing, I will keep you and your family in my prayers. @eve- I am also sorry to hear about your dad, please know that you and your family will be in my pr...
by Patricia Ann
Sun Nov 17, 2013 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I now have an expiration date - update at end of post
Replies: 32
Views: 4540

I now have an expiration date - update at end of post

I tried to get one last trip in before I wasn’t physically able to. It was to celebrate our 40th anniversary. I rented a house in Destin, Fl. that was big enough for the whole family. Unfortunately it did not turn out the way I had hoped it would. I had just had cyberknife on my right lung in June, ...
by Patricia Ann
Tue Nov 12, 2013 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stomach cramps just won't stop!
Replies: 14
Views: 13651

Re: Stomach cramps just won't stop!

That's exactly the same pain I had when I had a partially obstructed bowel. At first, I had thought it was constipation or gas but it was weird how the cramping just went down the middle of my stomach. The pain started getting so bad that I went to the ER. They did a CT Scan and it showed up on that...
by Patricia Ann
Sat Nov 02, 2013 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy joke on "The View"
Replies: 12
Views: 1891

Re: Colostomy joke on "The View"

I was watching the movie Admission and at the end of the movie, Tina Fey gets a nasty e-mail saying "I hope you get rectal cancer". Why in the world would they think that was funny? Would they have ever said "I hope you get breast cancer"? If they had said that, I bet there would...
by Patricia Ann
Fri Nov 01, 2013 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial obstruction pain UPDATE QUESTIONS on page 2
Replies: 23
Views: 2750

Re: Partial obstruction severe pain

I just had a partial obstruction a couple of months ago. At first I just thought it was gas pains, but then the pain got so intense that my husband took me to the ER. They did a CT scan and saw the obstruction. They gave me dilaudid for pain which helped a lot and put a NG tube down my nose. They ke...
by Patricia Ann
Fri Nov 01, 2013 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 111195

Re: If you want prayer stop in here!

I humbly ask that everyone keep me in your prayers as I will all of you. I am now on Home Hospice and it has been so emotionally hard on my husband and two daughters. I also am having a difficult time accepting it....... May God grant us peace. May he replace despair with hope, doubt with faith, dar...
by Patricia Ann
Fri Nov 01, 2013 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial lung collapse
Replies: 23
Views: 3102

Re: Partial lung collapse

Kathryn, Are you on oxygen? I'm on oxygen 24 hours a day. Do you have a pulse oximeter? Your oxygen reading shouldn't go below 90. Mine has gone down into the 70's and a few times into the 60's. It is so scary not being able to breathe. I am VERY limited to what I can do. Major problems - but I'll s...
by Patricia Ann
Fri Nov 01, 2013 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial lung collapse
Replies: 23
Views: 3102

Re: Partial lung collapse

Hi Rob, I’m so sorry to hear that you’re having problems with your lung. After my first SBRT last September, I had side effects that showed up about three months after the procedure (which sounds about the same as your time frame). It turned out that I had a partially collapsed lung due to damage fr...
by Patricia Ann
Wed Oct 09, 2013 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news, Stivarga/Regorafenib
Replies: 12
Views: 2889

Re: Good news, Stivarga/Regorafenib

Thanks miabella1 for sharing your experience. This drug sounds a lot like Xeloda. And just like Xeloda, it seems to be so toxic at the levels they want you to take. I'll really have to think about this - I'm not even sure it will be an option. I see my onc. on Oct. 23rd and for some reason, I get th...
by Patricia Ann
Tue Oct 08, 2013 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news, Stivarga/Regorafenib
Replies: 12
Views: 2889

Re: Good news, Stivarga/Regorafenib

Congratulations miabella1....Since I'm sure my onc will be suggesting this drug at our next appt., I would just like to ask you a few questions. What were your side effects? How did the change in dosage from 3 pills a day to 4 make things horrible? Your post is the first one I have read that has bee...
by Patricia Ann
Sun Oct 06, 2013 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I was so hopeful.........
Replies: 8
Views: 1326

I was so hopeful.........

I was so hopeful a few months ago. I was starting cyberknife on my second lung and since we were taking it a little slower this time, I thought we would have fewer complications. I was soooooo wrong. About a month after cyberknife, I found a swollen lymph node in my neck. They zapped that with 18 ra...
by Patricia Ann
Mon Sep 23, 2013 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stuck in a Florida Hospital - Update
Replies: 9
Views: 1356

Stuck in a Florida Hospital - Update

I need your suggestions. I’ve been through a lot lately in the last 4 months. Finishing cyberknife on my right lung, 18 radiation sessions on a lymph node they found in my neck and a week in the hospital with a bowel obstruction. All this while desperately planning a renewal ceremony on a Destin Bea...
by Patricia Ann
Mon Jul 08, 2013 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan results
Replies: 20
Views: 1626

Re: Scan results

Eve,

Oh thank God! I am so very happy for you. WOO HOO :D :D

Patti
by Patricia Ann
Wed Jul 03, 2013 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One of the most frightening experiences
Replies: 21
Views: 3656

Re: One of the most frightening experiences - Update

Update: I had my 3rd treatment today. First day, I took 2 lorazepam and slept the rest of the day. The treatment was so short that I decided to take 1 pill the next day and slept just the morning. So today, I decided to forgo the pills and of course they decided to take an x-ray and make adjustments...

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