Rob, I am so happy for you. Congratulations on the good scan, I hope it continues forever and ever. Hope you have a Happy Thanksgiving - you have a lot to be thankful for this year. YEA!!!
Thank you everyone for the prayers and the comforting words. Not an easy time. @SMR - so sorry to hear that your husband is going through the same thing, I will keep you and your family in my prayers. @eve- I am also sorry to hear about your dad, please know that you and your family will be in my pr...
I tried to get one last trip in before I wasn’t physically able to. It was to celebrate our 40th anniversary. I rented a house in Destin, Fl. that was big enough for the whole family. Unfortunately it did not turn out the way I had hoped it would. I had just had cyberknife on my right lung in June, ...
That's exactly the same pain I had when I had a partially obstructed bowel. At first, I had thought it was constipation or gas but it was weird how the cramping just went down the middle of my stomach. The pain started getting so bad that I went to the ER. They did a CT Scan and it showed up on that...
I was watching the movie Admission and at the end of the movie, Tina Fey gets a nasty e-mail saying "I hope you get rectal cancer". Why in the world would they think that was funny? Would they have ever said "I hope you get breast cancer"? If they had said that, I bet there would...
I just had a partial obstruction a couple of months ago. At first I just thought it was gas pains, but then the pain got so intense that my husband took me to the ER. They did a CT scan and saw the obstruction. They gave me dilaudid for pain which helped a lot and put a NG tube down my nose. They ke...
I humbly ask that everyone keep me in your prayers as I will all of you. I am now on Home Hospice and it has been so emotionally hard on my husband and two daughters. I also am having a difficult time accepting it....... May God grant us peace. May he replace despair with hope, doubt with faith, dar...
Kathryn, Are you on oxygen? I'm on oxygen 24 hours a day. Do you have a pulse oximeter? Your oxygen reading shouldn't go below 90. Mine has gone down into the 70's and a few times into the 60's. It is so scary not being able to breathe. I am VERY limited to what I can do. Major problems - but I'll s...
Hi Rob, I’m so sorry to hear that you’re having problems with your lung. After my first SBRT last September, I had side effects that showed up about three months after the procedure (which sounds about the same as your time frame). It turned out that I had a partially collapsed lung due to damage fr...
Thanks miabella1 for sharing your experience. This drug sounds a lot like Xeloda. And just like Xeloda, it seems to be so toxic at the levels they want you to take. I'll really have to think about this - I'm not even sure it will be an option. I see my onc. on Oct. 23rd and for some reason, I get th...
Congratulations miabella1....Since I'm sure my onc will be suggesting this drug at our next appt., I would just like to ask you a few questions. What were your side effects? How did the change in dosage from 3 pills a day to 4 make things horrible? Your post is the first one I have read that has bee...
I was so hopeful a few months ago. I was starting cyberknife on my second lung and since we were taking it a little slower this time, I thought we would have fewer complications. I was soooooo wrong. About a month after cyberknife, I found a swollen lymph node in my neck. They zapped that with 18 ra...
I need your suggestions. I’ve been through a lot lately in the last 4 months. Finishing cyberknife on my right lung, 18 radiation sessions on a lymph node they found in my neck and a week in the hospital with a bowel obstruction. All this while desperately planning a renewal ceremony on a Destin Bea...
Update: I had my 3rd treatment today. First day, I took 2 lorazepam and slept the rest of the day. The treatment was so short that I decided to take 1 pill the next day and slept just the morning. So today, I decided to forgo the pills and of course they decided to take an x-ray and make adjustments...