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by Badass
Wed Dec 02, 2020 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colovesical fistula (CVF) aka bladder to bowel fistua
Replies: 3
Views: 1424

Re: Colovesical fistula (CVF) aka bladder to bowel fistua

Hi CRGuy, How are you? Yes, I do go back a ways on ColonTalk and very glad to know you are still moderating- very comforting! I try to pop on once in a while but mostly lurk. Hopefully, I don’t have this but being worked up and I like to do my homework before I am in the thick of things and more anx...
by Badass
Tue Dec 01, 2020 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colovesical fistula (CVF) aka bladder to bowel fistua
Replies: 3
Views: 1424

Colovesical fistula (CVF) aka bladder to bowel fistua

Hi, I am a long-term survivor of metastatic rectal cancer and owe many debts of gratitude to this Board for the emotional support and life-saving medical advice I received here. I was referred to Sloan Kettering when I developed a liver met a year after my original resection and have been NED since ...
by Badass
Tue Dec 01, 2020 8:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeon Recs for colovesical fistula with radiated tissue
Replies: 5
Views: 2894

Re: Surgeon Recs for colovesical fistula with radiated tissue

Hi There,
I may have a colovesical fistula and wondered where your father ended up having surgery. I hope he is doing well and had a successful surgery.

Thank you
by Badass
Mon May 20, 2019 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 1405

Re: Levsin (Hyoscyamine) for LARS

Thank you so much for all the research, CRG! I didn't realize it is an anit-cholinergic, as is immodium-- I wanted off of those, which is why I went the enema route. So, I guess I will continue with my drug-free, hydro lifestyle! Sorry for the delayed response. Spring finally arrived in Rochester, N...
by Badass
Wed Apr 17, 2019 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 1405

Levsin (Hyoscyamine) for LARS

Has anyone tried this? Interested to hear about experience.

Thanks,
Jane
by Badass
Mon Feb 18, 2019 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1987

Re: Happy Post- Rectal Metastatic to Liver, now cured

Heider33,
So glad you found your way to HAI pump and having good results! Wonderful that this is available to us liver-folks! Wishing you permanent Ned-ville!

Jane
by Badass
Mon Feb 18, 2019 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1987

Re: Happy Post- Rectal Metastatic to Liver, now cured

Hi Ginabeewell,
MSKCC is a wonderful place! Are you working with Dr. Kemeny? I had Dr. Jarnigan as a surgeon-- fantastic doctor and human being.
Wishing you all the best. Feel free to PM me anytime!
by Badass
Mon Feb 18, 2019 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 1991

Re: Is a ileostomy reversal worth it for a 60 year old guy?

I had a reversal and then LARS so now I do daily tap water enema and now have no LARS symptoms at all. Everyone has their own preference but I feel my lifestyle is about as close to pre-cancer as I can get.
by Badass
Tue Jan 29, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1987

Happy Post- Rectal Metastatic to Liver, now cured

Hi, This is the post I would have loved to read six years ago. I had Stage 2 rectal dx in 2011, LAR, radiation and chemo, and a year-and-a-half later metastasis to liver. I went to see Dr. Kemeny at Sloan-Kettering (thanks to the wonderful users of this site) and had liver resection and hepatic pump...
by Badass
Sun Dec 30, 2018 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 2588

Re: Did Daily Enema Users consult Doctors?

I have been using daily tap water enemas for almost two years. LIFE CHANGING! No drugs, no dietary concerns. My internist, my two oncologists and my surgeon all approve and are thrilled along with me in the improvement in quality of life.

Jane
by Badass
Sun Sep 16, 2018 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 51
Views: 23493

Re: Bev G

Wow, I am so very sad to read this. Bev was such a fixture on this board. She was a good writer and I loved her sense of humor. She was so responsive. Also, she was very dedicated to her husband, moving to Vermont to support his medical care-- and shared openly, and at times humorously, her struggle...
by Badass
Tue Aug 15, 2017 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 125
Views: 41804

Re: BrownBagger ....... I don't know what to say

I am in shock... just saw this thread! I have been away from the board for too long. Eric was my upstate NY and MSKCC buddy. He was really inspirational in his Zen approach to living joyfully with the unknown. We haven't been in touch for a while...what a loss! Bike on, Eric! You continue to inspire...

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