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by Badass
Mon May 20, 2019 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 799

Re: Levsin (Hyoscyamine) for LARS

Thank you so much for all the research, CRG! I didn't realize it is an anit-cholinergic, as is immodium-- I wanted off of those, which is why I went the enema route. So, I guess I will continue with my drug-free, hydro lifestyle! Sorry for the delayed response. Spring finally arrived in Rochester, N...
by Badass
Wed Apr 17, 2019 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 799

Levsin (Hyoscyamine) for LARS

Has anyone tried this? Interested to hear about experience.

Thanks,
Jane
by Badass
Mon Feb 18, 2019 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1343

Re: Happy Post- Rectal Metastatic to Liver, now cured

Heider33,
So glad you found your way to HAI pump and having good results! Wonderful that this is available to us liver-folks! Wishing you permanent Ned-ville!

Jane
by Badass
Mon Feb 18, 2019 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1343

Re: Happy Post- Rectal Metastatic to Liver, now cured

Hi Ginabeewell,
MSKCC is a wonderful place! Are you working with Dr. Kemeny? I had Dr. Jarnigan as a surgeon-- fantastic doctor and human being.
Wishing you all the best. Feel free to PM me anytime!
by Badass
Mon Feb 18, 2019 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 1231

Re: Is a ileostomy reversal worth it for a 60 year old guy?

I had a reversal and then LARS so now I do daily tap water enema and now have no LARS symptoms at all. Everyone has their own preference but I feel my lifestyle is about as close to pre-cancer as I can get.
by Badass
Tue Jan 29, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1343

Happy Post- Rectal Metastatic to Liver, now cured

Hi, This is the post I would have loved to read six years ago. I had Stage 2 rectal dx in 2011, LAR, radiation and chemo, and a year-and-a-half later metastasis to liver. I went to see Dr. Kemeny at Sloan-Kettering (thanks to the wonderful users of this site) and had liver resection and hepatic pump...
by Badass
Sun Dec 30, 2018 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1812

Re: Did Daily Enema Users consult Doctors?

I have been using daily tap water enemas for almost two years. LIFE CHANGING! No drugs, no dietary concerns. My internist, my two oncologists and my surgeon all approve and are thrilled along with me in the improvement in quality of life.

Jane
by Badass
Sun Sep 16, 2018 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 51
Views: 20930

Re: Bev G

Wow, I am so very sad to read this. Bev was such a fixture on this board. She was a good writer and I loved her sense of humor. She was so responsive. Also, she was very dedicated to her husband, moving to Vermont to support his medical care-- and shared openly, and at times humorously, her struggle...
by Badass
Tue Aug 15, 2017 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 125
Views: 36446

Re: BrownBagger ....... I don't know what to say

I am in shock... just saw this thread! I have been away from the board for too long. Eric was my upstate NY and MSKCC buddy. He was really inspirational in his Zen approach to living joyfully with the unknown. We haven't been in touch for a while...what a loss! Bike on, Eric! You continue to inspire...
by Badass
Fri Apr 07, 2017 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enema experts
Replies: 10
Views: 2309

Re: Enema experts

For reducing/ eliminating gas, my suggestions are: 1. Once you have filled up the bag with water, open the valve and let the water run a bit. Usually there is a hiccup or two before it runs smoothly because you are releasing some air from the tube which would otherwise go into your colon. 2. Let the...
by Badass
Fri Apr 07, 2017 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Surgery and Syndrome
Replies: 8
Views: 1789

Re: LAR Surgery and Syndrome

I had an LAR and had the syndrome for a few years. Was manageable but didn't want to have to think about what I ate or drank and worry about gas and running to the toilet unexpectedly. Just too much thinking about poop! I tried the tap water enema and it changed my life. I do it every day or two and...
by Badass
Thu Apr 06, 2017 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enema experts
Replies: 10
Views: 2309

Re: Enema experts

Hi Sam I Am-- Sorry, I just saw your question. Are you still having gas issues with the enema? I would be happy to help if I can.

Jane
by Badass
Thu Apr 06, 2017 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant - colon vs rectal cancer
Replies: 34
Views: 7170

Re: Rant - colon vs rectal cancer

FWIW-- the rectum is part of the colon. It is the last section-- so technically your surgeon's office is correct. However, I also agree that our treatment experience is so different from those who have NRCC (non-rectal colon cancer-- a term I just coined) that it is an important distinction. I used ...
by Badass
Sun Dec 18, 2016 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a stupid test
Replies: 23
Views: 5933

Re: CEA is a stupid test

CEA may have saved my life as well. Its slight spike signaled my liver met three years ago and I am so glad it was found early!

Jane

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