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by JerseyGirl
Fri Jul 12, 2013 1:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Predictors for Brain Mets
Replies: 3
Views: 1015

Re: Possible Predictors for Brain Mets

Well, so much for the sleep I thought I was going to get tonight! :roll:
by JerseyGirl
Thu Jun 27, 2013 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mad Men - Cancer Quote
Replies: 5
Views: 1586

Mad Men - Cancer Quote

I was just watching one of my favorite shows - Mad Men. Any fans out there? Every since I went on long term disability, Netflix has become one of my best friends! And I love the show because it really gets my mind off of the whole cancer thing...except today that is. Anyway, I'm on Season 5, Episode...
by JerseyGirl
Mon May 20, 2013 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: seeing Dr. Kemeny
Replies: 17
Views: 2251

Re: seeing Dr. Kemeny

So sorry to read this but glad you in the best hands Debbi.
by JerseyGirl
Mon May 20, 2013 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newnew story
Replies: 6
Views: 1539

Re: newnew story

I agree with janklo! I am very close to my little brother (age 28) and I told him to get screened. He came back with having a pre cancerous polyp that the doc said would certainly turn into cancer a few years down the line. As you can read in my signature I'm a stage 4 as well. Although I will never...
by JerseyGirl
Mon May 20, 2013 11:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Orgain
Replies: 0
Views: 1119

Orgain

Hi All, I thought this may be helpful to those who are looking for an alternative to Ensure and other meal replacements that are too sweet (for my liking anyway.) My friend who has kidney cancer told me about it this meal replacement drink called Orgain, in which her nutritionist recommended to her....
by JerseyGirl
Thu May 16, 2013 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux Rash & Irrotecan Allergy?
Replies: 16
Views: 2686

Re: Erbitux Rash & Irrotecan Allergy?

Yep, same for me. I think once the swelling of the throat and marble mouth get involved it no joke and they completely remove it. Just sucks having less options. But I can handle 25 doses of Oxali! Go figure :roll:
by JerseyGirl
Wed May 08, 2013 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux Rash & Irrotecan Allergy?
Replies: 16
Views: 2686

Re: Erbitux Rash & Irrotecan Allergy?

I never read any one else who had the same reaction as me! I have the Irronitican allergy. It was very scary to say the least. It was during my first infusion, and never again! Well, they gave it to me the second time around bc I was getting Oxali as well and the nurses kept telling me that ppl usua...
by JerseyGirl
Wed May 08, 2013 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: help last option regorafenib
Replies: 21
Views: 4098

Re: help last option regorafenib

I agree with Ray, I know it may come to that for me but all I read about here is how bad it is and seems like not a lot of people have great success. But when I bring it up to my Onc, and I told him about what I read here, he was telling me he has had a lot of success with it, and the side effects h...
by JerseyGirl
Thu May 02, 2013 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care Misunderstandings
Replies: 39
Views: 4932

Re: Palliative Care Misunderstandings

I would like to also state that I used to be a lucky stage 4 with resectable mets, so I had more of a reason to believe. People like JulieJ, Bev and SkiFletch all gave me hope that I needed in the beginning and I am so happy for them on their continued NED status! It's just that I am inoperable now ...
by JerseyGirl
Thu May 02, 2013 11:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care Misunderstandings
Replies: 39
Views: 4932

Re: Palliative Care Misunderstandings

I agree...great topic! It's also kind of crazy from reading these posts, I realized I did some growing ever since diagnosis from the understanding and acceptance aspect. I remember my first post here made a lot of references like, I will beat this, I am not a statistic, blah blah. I remember a few p...
by JerseyGirl
Tue Apr 30, 2013 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A (long winded) Question for the "Incurable"
Replies: 12
Views: 1982

Re: A (long winded) Question for the "Incurable"

Wow!I just read every single post here and they are truly amazing stories. And I def don't mind hearing from anyone who is cured or in remission, it only added great insight to the topic! It was kind of a warning i put out there to not upset anyone. Ashlee, I totally get it with the kid thing. I hav...
by JerseyGirl
Mon Apr 29, 2013 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A (long winded) Question for the "Incurable"
Replies: 12
Views: 1982

A (long winded) Question for the "Incurable"

The purpose of my title was not to make it so exclusive, just didn't want to upset anyone who is on the other side of this cancer thing wether in remission, cured, ect.. but if you had similar feelings that something like a fight was in your future it would be great to hear from you. And just as ano...
by JerseyGirl
Sat Mar 30, 2013 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the journey
Replies: 17
Views: 2522

Re: New to the journey

That's crazy Debbi! Yes, he is so wonderful. When I was diagnosed and my head was spinning, not only did he talk to me on the phone for an hour, but called my mom and husband to answer all their questions :)
by JerseyGirl
Fri Mar 29, 2013 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the journey
Replies: 17
Views: 2522

Re: New to the journey

Welcome! I just want to second what Debbi said. I hope it turns out you do not have cancer, but if you do I must say I LOVE Summit/Overlook for treatment. I have also been to Sloan and Mt. Sinai in NYC which also shared the same opinions so I choose convenience over commuting to the city all the tim...
by JerseyGirl
Mon Feb 25, 2013 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best day since my DX?
Replies: 20
Views: 2612

Re: Best day since my DX?

My wedding to the love of my life, just a few weeks ago :D

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