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by Jack&KatiesMommy
Wed Mar 31, 2021 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 23
Views: 2614

Re: My mum needs prayers

I am praying for your Mom. Prayers do work and I am praying for a miracle for her.
Love,'
Cynthia
by Jack&KatiesMommy
Tue Mar 30, 2021 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 12
Views: 1644

Re: Rising CEA After 2 1/2 Years on Keytruda

Thank you everyone. I so appreciate all of your encouraging thoughts. I have my PET scheduled for this Thursday...I'll let you know after I get the results. ((HUGS))
Cynthia
by Jack&KatiesMommy
Sun Mar 28, 2021 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 year Check In-Stage IV
Replies: 4
Views: 795

Re: 11 year Check In-Stage IV

So very happy to see this update Mattie!!!!
Cynthia
by Jack&KatiesMommy
Sun Mar 28, 2021 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 12
Views: 1644

Re: Rising CEA After 2 1/2 Years on Keytruda

Hi Cynthia, While CEA surges are scary they do not necessarily mean you have progression. CEA can flare up with inflammation. I guess you should get a CT scan as soon as possible to confirm or hopefully discard progression. Have you discussed this CEA increase with your oncologist? For what´s worth...
by Jack&KatiesMommy
Sat Mar 27, 2021 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 12
Views: 1644

Rising CEA After 2 1/2 Years on Keytruda

Well after 2 1/2 years (with minor CEA rises slowly rising to 5.0 or 5.2 over several months and then dropping back down to 1.2 or lower—every year for the last 2 1/2 years during the winter months) my CEA now has now risen to 6.8. So I am so scared that this will be it. For the last 2 1/2 years I h...
by Jack&KatiesMommy
Tue Oct 13, 2020 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eight years and counting ...
Replies: 12
Views: 1710

Re: Eight years and counting ...

How wonderful!!!!! So happy to see and hear this! Please fill out your signature with your diagnosis and what you have gone through so that others looking for hope can see that this is possible!!!
Cynthia
by Jack&KatiesMommy
Mon Oct 12, 2020 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 2345

Re: Good News!

I would call hospitals now to see what you need to do to get a second opinion there. I have been to MD Anderson, and a local cancer center (in Columbus Ohio where I live) and Memorial Sloan Kettering. I highly suggest contacting MSK....to get the ball rolling now.....the sooner you can get that othe...
by Jack&KatiesMommy
Mon Oct 12, 2020 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After a year of FOLFOX, switching to FOLFIRI - hope to get to resecting liver
Replies: 14
Views: 1839

Re: After a year of FOLFOX, switching to FOLFIRI - hope to get to resecting liver

Matt
Where are you being treated? Can you get a second opinion at Memorial Sloan Kettering if you aren’t already seen there?

Cynthia
by Jack&KatiesMommy
Mon Oct 12, 2020 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total Pelvic Exenteration
Replies: 11
Views: 2120

Re: Total Pelvic Exenteration

Shaina You are an amazing person to go through this (as a Mom, I know how your children give you the strength to fight and live beyond what can be imagined.). Thank you for coming here to share your story...honestly. I was told when I was 46 years old with an 8 year old and a 4 year old that I had 1...
by Jack&KatiesMommy
Fri Oct 09, 2020 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got a call to go right to the ER
Replies: 12
Views: 3151

Re: I got a call to go right to the ER

Just wanted to check in and see how you were doing. Been thinking about you and your sweet son.
Cynthia
by Jack&KatiesMommy
Fri Oct 09, 2020 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 2345

Re: Good News!

Paradise....before I relaxed, I would get a second opinion from a board certified colorectal oncologist. I have never heard of anyone being cured through cehemo alone. Generally it is used to shrink the cancer to a controlled level so that the areas of cancer can be surgically removed. I think belie...
by Jack&KatiesMommy
Sat Oct 03, 2020 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got a call to go right to the ER
Replies: 12
Views: 3151

Re: I got a call to go right to the ER

Stay calm...and remember you are a Mama and you will do what it takes to get through this for your son. I did this....many many rounds of chemo, surgery after surgery, recurrences, trying over and over to hang on for my babies. Set small goals...fight through the fear and keep going and pray....God ...
by Jack&KatiesMommy
Sat Sep 12, 2020 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on Stivagra plus Opdivo?
Replies: 1
Views: 825

Re: Anyone on Stivagra plus Opdivo?

Good to see you back, Butt! I am not on Stiverga or Opdivo....but I have been on Keytruda for over two years. My oncologist told me that Keytruda and Optivo act very similarly and produce similar side effects. I have had very few side effects at all. I do sometimes have fatigue...and twice int he tw...
by Jack&KatiesMommy
Mon Aug 17, 2020 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 3103

Re: another HAI pump question and a short rant...

I contacted Dr. Kemeny's office...told them my story and sent all fo my records in to her for review and consideration. Several weeks later they called and said that Dr. Kemeny had agreed to take my case and that I needed to come in for an appointment about a week later. I flew in to NYC and met wit...
by Jack&KatiesMommy
Thu Aug 13, 2020 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Remission!?!
Replies: 11
Views: 2731

Re: Remission!?!

This is such great news!!!!!!! I am so happy to read your post! Keep us updated as you move toward a long life!!!

Cynthia

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