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by Jack&KatiesMommy
Tue Oct 13, 2020 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eight years and counting ...
Replies: 12
Views: 1350

Re: Eight years and counting ...

How wonderful!!!!! So happy to see and hear this! Please fill out your signature with your diagnosis and what you have gone through so that others looking for hope can see that this is possible!!!
Cynthia
by Jack&KatiesMommy
Mon Oct 12, 2020 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 2121

Re: Good News!

I would call hospitals now to see what you need to do to get a second opinion there. I have been to MD Anderson, and a local cancer center (in Columbus Ohio where I live) and Memorial Sloan Kettering. I highly suggest contacting MSK....to get the ball rolling now.....the sooner you can get that othe...
by Jack&KatiesMommy
Mon Oct 12, 2020 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After a year of FOLFOX, switching to FOLFIRI - hope to get to resecting liver
Replies: 14
Views: 1621

Re: After a year of FOLFOX, switching to FOLFIRI - hope to get to resecting liver

Matt
Where are you being treated? Can you get a second opinion at Memorial Sloan Kettering if you aren’t already seen there?

Cynthia
by Jack&KatiesMommy
Mon Oct 12, 2020 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total Pelvic Exenteration
Replies: 11
Views: 1873

Re: Total Pelvic Exenteration

Shaina You are an amazing person to go through this (as a Mom, I know how your children give you the strength to fight and live beyond what can be imagined.). Thank you for coming here to share your story...honestly. I was told when I was 46 years old with an 8 year old and a 4 year old that I had 1...
by Jack&KatiesMommy
Fri Oct 09, 2020 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got a call to go right to the ER
Replies: 12
Views: 2907

Re: I got a call to go right to the ER

Just wanted to check in and see how you were doing. Been thinking about you and your sweet son.
Cynthia
by Jack&KatiesMommy
Fri Oct 09, 2020 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 2121

Re: Good News!

Paradise....before I relaxed, I would get a second opinion from a board certified colorectal oncologist. I have never heard of anyone being cured through cehemo alone. Generally it is used to shrink the cancer to a controlled level so that the areas of cancer can be surgically removed. I think belie...
by Jack&KatiesMommy
Sat Oct 03, 2020 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got a call to go right to the ER
Replies: 12
Views: 2907

Re: I got a call to go right to the ER

Stay calm...and remember you are a Mama and you will do what it takes to get through this for your son. I did this....many many rounds of chemo, surgery after surgery, recurrences, trying over and over to hang on for my babies. Set small goals...fight through the fear and keep going and pray....God ...
by Jack&KatiesMommy
Sat Sep 12, 2020 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on Stivagra plus Opdivo?
Replies: 1
Views: 707

Re: Anyone on Stivagra plus Opdivo?

Good to see you back, Butt! I am not on Stiverga or Opdivo....but I have been on Keytruda for over two years. My oncologist told me that Keytruda and Optivo act very similarly and produce similar side effects. I have had very few side effects at all. I do sometimes have fatigue...and twice int he tw...
by Jack&KatiesMommy
Mon Aug 17, 2020 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2918

Re: another HAI pump question and a short rant...

I contacted Dr. Kemeny's office...told them my story and sent all fo my records in to her for review and consideration. Several weeks later they called and said that Dr. Kemeny had agreed to take my case and that I needed to come in for an appointment about a week later. I flew in to NYC and met wit...
by Jack&KatiesMommy
Thu Aug 13, 2020 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Remission!?!
Replies: 11
Views: 2696

Re: Remission!?!

This is such great news!!!!!!! I am so happy to read your post! Keep us updated as you move toward a long life!!!

Cynthia
by Jack&KatiesMommy
Mon Aug 10, 2020 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2918

Re: another HAI pump question and a short rant...

Gina is right. I had dozens and dozens of tumors in every section of my liver. I got my HAI pump at MSK after my local oncologist said chemo was my only option. Within 6 months my liver was clear enough to do a resection of one side (the other side was clear) and 6 months later my liver was clear......
by Jack&KatiesMommy
Mon Jun 29, 2020 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 12
Views: 2222

Re: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

This is great news. My Onc mentioned something about FDA approved something, not sure if it was Keytruda, but will talk to him. My TMB is 8, but I want him to do a new test from my last surgery, will talk to him about it. So when you say your Cancer free, are you not doing any regimen at the moment...
by Jack&KatiesMommy
Mon Jun 29, 2020 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 12
Views: 2222

FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

The FDA has approved the immunotherapy Keytruda for solid tumors with a tumor mutation burden of 10 or greater. This means that CRC patients with MSS tumors (with TMB of 10+) are able to get insurance coverage for the use of Keytruda! My oncologist had to petition and appeal to get my insurance to c...
by Jack&KatiesMommy
Sun Jun 07, 2020 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220288

Re: TIL Immunotherapy at NCI

I was MSS too, Claudine! Don't brush it off. When "they" say immunotherapy doesn't work for MSS, they are talking about infused agents like Keytruda, and Yervoy, etc. Celine I am MSS with a moderate tumor burden identified in my tumor. My local oncologist had seen some new research that i...

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