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by Jack&KatiesMommy
Tue Mar 17, 2020 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 998

Re: Clear scans!

Such wonderful news!!!!!! So happy for you!!!!

Cynthia
by Jack&KatiesMommy
Mon Feb 24, 2020 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 67
Views: 4538

Re: Cea on the rise

Yikes....I understand how upset you both must be...it sounds like some mistakes were made. However, you may want to think long and hard before removing the HAI pump. Maybe you could consult with MSK before you make a decision. It sounds like your husband has a high tumor burden in his liver....and t...
by Jack&KatiesMommy
Wed Feb 12, 2020 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery on main valve?
Replies: 3
Views: 499

Re: Surgery on main valve?

Dr. Solomon (an interventional radiologist) at Memorial Sloan Kettering did an Irreversible electroporation (nonthermal ablative technology that uses high-voltage, low-energy DC current pulses to induce cell death) on a tumor in my liver that was too close to the portal vein to attempt standard abla...
by Jack&KatiesMommy
Mon Jan 06, 2020 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 1724

Re: RFA -Lung Tumour

It may sound funny, but I am not sure how many tumors I had RFA'd. Sometimes, it was questionable whether we were ablating a new tumor or re-ablating one that had been done before. I would guess that I had 8 or so distinct tumors that were ablated over the years.
by Jack&KatiesMommy
Sun Jan 05, 2020 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 1724

Re: RFA -Lung Tumour

You are under general anesthesia for the RFA procedures. I had multiple mets in both lungs. They will only do one lung at a time (as occasionally, a lung will collapse during the procedure and you need at least one lung working properly). I am not sure how many mets is too many...but because the RFA...
by Jack&KatiesMommy
Thu Jan 02, 2020 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 1724

Re: RFA -Lung Tumour

I have actually had 10 rfas to my lung mets over a period of 3 years. They are very simple procedures (one night in hospital...maybe none if you aren't flying home.) . However, what you have to remember is that RFAs do not always work the first time. The Interventional Radiologist is using a 2-dimen...
by Jack&KatiesMommy
Tue Dec 10, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1470

Re: Memorial Sloan Kettering Hotel Option Question

I stay at the POD on 53rd St. also. It is really very plain (like a dorm with shared bathrooms) but I almost always get a room for under $200.

Cynthia
by Jack&KatiesMommy
Wed Nov 27, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foundation One Testing, How Long?
Replies: 3
Views: 614

Re: Foundation One Testing, How Long?

I hope the Testing provides options for her!
Cynthia
by Jack&KatiesMommy
Tue Nov 26, 2019 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foundation One Testing, How Long?
Replies: 3
Views: 614

Re: Foundation One Testing, How Long?

I don't remember how long it took, Meatie. But I am thinking it was several weeks before the doctor gave me my results.

Cynthia
by Jack&KatiesMommy
Thu Nov 14, 2019 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4061

Re: 10 Years and Counting

Thank you, Fletch. I remember you so well and hoped that you were doing well. Thank you for the inspiration.
Cynthia
by Jack&KatiesMommy
Wed Nov 13, 2019 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 25
Views: 1874

Re: Surgery here, and done.

So happy for you both! Hoping for only good news for you in the future!

Cynthia
by Jack&KatiesMommy
Tue Sep 17, 2019 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance denied husband’s genomic testing
Replies: 14
Views: 1030

Re: Insurance denied husband’s genomic testing

My insurer denied the Foundation1 Testing that my oncologist ordered, stating that it was still experimental. My oncologist appealed (it was denied) and I appealed with lots of research and my appeal was likewise denied. However, my insurance DID approve off-label treatment with Keytruda even though...
by Jack&KatiesMommy
Thu Sep 05, 2019 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best clinical trial(s) - stage 4 w liver mets
Replies: 9
Views: 976

Re: Best clinical trial(s) - stage 4 w liver mets

Have you considered an HAI pump at Memorial Sloan Kettering yet? It saved my life....and got me to resection when systemic chemo alone could not. That would be my first step if I was starting over with liver mets.

Cynthia

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