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by Jack&KatiesMommy
Mon Jan 06, 2020 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 13
Views: 788

Re: RFA -Lung Tumour

It may sound funny, but I am not sure how many tumors I had RFA'd. Sometimes, it was questionable whether we were ablating a new tumor or re-ablating one that had been done before. I would guess that I had 8 or so distinct tumors that were ablated over the years.
by Jack&KatiesMommy
Sun Jan 05, 2020 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 13
Views: 788

Re: RFA -Lung Tumour

You are under general anesthesia for the RFA procedures. I had multiple mets in both lungs. They will only do one lung at a time (as occasionally, a lung will collapse during the procedure and you need at least one lung working properly). I am not sure how many mets is too many...but because the RFA...
by Jack&KatiesMommy
Thu Jan 02, 2020 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 13
Views: 788

Re: RFA -Lung Tumour

I have actually had 10 rfas to my lung mets over a period of 3 years. They are very simple procedures (one night in hospital...maybe none if you aren't flying home.) . However, what you have to remember is that RFAs do not always work the first time. The Interventional Radiologist is using a 2-dimen...
by Jack&KatiesMommy
Tue Dec 10, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1151

Re: Memorial Sloan Kettering Hotel Option Question

I stay at the POD on 53rd St. also. It is really very plain (like a dorm with shared bathrooms) but I almost always get a room for under $200.

Cynthia
by Jack&KatiesMommy
Wed Nov 27, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foundation One Testing, How Long?
Replies: 3
Views: 400

Re: Foundation One Testing, How Long?

I hope the Testing provides options for her!
Cynthia
by Jack&KatiesMommy
Tue Nov 26, 2019 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foundation One Testing, How Long?
Replies: 3
Views: 400

Re: Foundation One Testing, How Long?

I don't remember how long it took, Meatie. But I am thinking it was several weeks before the doctor gave me my results.

Cynthia
by Jack&KatiesMommy
Thu Nov 14, 2019 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 3274

Re: 10 Years and Counting

Thank you, Fletch. I remember you so well and hoped that you were doing well. Thank you for the inspiration.
Cynthia
by Jack&KatiesMommy
Wed Nov 13, 2019 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 25
Views: 1302

Re: Surgery here, and done.

So happy for you both! Hoping for only good news for you in the future!

Cynthia
by Jack&KatiesMommy
Tue Sep 17, 2019 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance denied husband’s genomic testing
Replies: 14
Views: 862

Re: Insurance denied husband’s genomic testing

My insurer denied the Foundation1 Testing that my oncologist ordered, stating that it was still experimental. My oncologist appealed (it was denied) and I appealed with lots of research and my appeal was likewise denied. However, my insurance DID approve off-label treatment with Keytruda even though...
by Jack&KatiesMommy
Thu Sep 05, 2019 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best clinical trial(s) - stage 4 w liver mets
Replies: 9
Views: 826

Re: Best clinical trial(s) - stage 4 w liver mets

Have you considered an HAI pump at Memorial Sloan Kettering yet? It saved my life....and got me to resection when systemic chemo alone could not. That would be my first step if I was starting over with liver mets.

Cynthia
by Jack&KatiesMommy
Tue Sep 03, 2019 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 1226

Re: O/T : I wish Brownbagger were here

I miss him too. Thanks for the reflection, CR Guy.
by Jack&KatiesMommy
Wed Aug 28, 2019 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 1378

Sad News About Arizona Mom

With a heavy heart, I wanted to share some sad news with everyone. I just heard from Lara's husband, Byon, this morning. Lara (arizona mom) passed away on July 23 in her sleep at their home. Lara was a strong kind woman who loved her family dearly and who did everything possible to stay with them. M...
by Jack&KatiesMommy
Tue Aug 27, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just DX. looking for info.
Replies: 8
Views: 1014

Re: Just DX. looking for info.

I went on a Disney Cruise 4 months into my chemotherapy...I didn't have any issues...and my oncologist never suggested that I couldn't or shouldn't go or otherwise live my life. (I had little kids (4 & 8 years old and if they aren't a cesspool of germs...not sure what is.) :)

Cynthia
by Jack&KatiesMommy
Wed Aug 21, 2019 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 19
Views: 5607

Re: Phuong is the new ColonClub President !

Congratulations, Phuong!!!!!! Welcome to your new role...and thank you!!!
Cynthia

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