Search found 577 matches

Go to advanced search

by Jack&KatiesMommy
Wed Apr 17, 2019 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21709

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Cynthia, If I might add, I think it is amazing kindness and compassion that you reach out to members and educate them about this. Even I spoke with my onc about your posting. I am low mutation unfortunately, but many are not. Thank you BUT....my oncologist said that if they had tested my original t...
by Jack&KatiesMommy
Mon Apr 15, 2019 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21709

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Pyro: It maybe on the downswing.....Mine did that a few times....it started to go up then stayed the same then went down. We thought that maybe it had continued to go up a bit then was coming down and we caught it on the downswing. Next cycle will be telling. (Maybe you could ask your oncologist if ...
by Jack&KatiesMommy
Mon Apr 15, 2019 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 12
Views: 574

Re: Finally reached the 'forgot I had cancer' spot!

Congratulations, Diane....you look beautiful and I am so happy that you are here to share in their lives and live yours without thinking about cancer all fo the time!!!
Cynthia
by Jack&KatiesMommy
Tue Apr 09, 2019 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T3cN2a, refusing chemotherapy?
Replies: 80
Views: 23772

Re: T3cN2a, refusing chemotherapy?

I did 3 years of Folfiri and 6 months of Oxiplaintin....I have no permanent damage. And I am still here today (8 years later.)
by Jack&KatiesMommy
Mon Apr 08, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy Questions
Replies: 5
Views: 447

Re: Immunotherapy Questions

Immunotherapy has not been used long enough on CRC to have been on it for the recommended period (24 months) and off it long enough to answer your questions. MY oncologist, who has used the Keytruda since its FDA approval in 2015, said that in other types of cancer after stopping the drug, in some c...
by Jack&KatiesMommy
Mon Apr 01, 2019 3:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oncolytic virus trials
Replies: 2
Views: 240

Re: oncolytic virus trials

Tim:
Are you MSI or MSS? Do you know your mutation burden? Keytruda has been working for me after 7 years of fighting my cancer back. I am MSS but have a moderate mutation burden so it is working for me. It may be an option for you.
by Jack&KatiesMommy
Sun Mar 31, 2019 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21709

Re: Keytruda....Working for MSS....Mutation Burden is the Key

After my first treatment my CEA went from 39.6 to 66.4. Then 3 weeks later it went back to 39.2...and then it continued down after that.

Praying for both of you!

Cynthia
by Jack&KatiesMommy
Thu Mar 21, 2019 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 772

Re: Lung specialist at MSK or MDA? Advice, please.

Have you had your Tumor Mutation Burden tested? I won't go into the whole story here but I am MSS also and because I had my tumor tested at Foundation One they also determined my Tumor Mutation Burden. I had 12 mutations which was a lot for an MSS tumor. So because of that my oncologist got permissi...
by Jack&KatiesMommy
Wed Mar 20, 2019 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bayer found guilty on Roundup
Replies: 8
Views: 483

Re: Bayer found guilty on Roundup

As a lawyer (for 22 years) I have to agree with UTwo. Juries find what they want to find. "Get the bad guy" often trumps rational logical consideration of facts presented. It is actually quite common. Jury decisions are generally not decisive or instructive.

Cynthia
by Jack&KatiesMommy
Wed Mar 20, 2019 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bayer found guilty on Roundup
Replies: 8
Views: 483

Re: Bayer found guilty on Roundup

Ahhh...read the Forbes article...it looks like the "studies" proving the link to cancer may be very flawed.
by Jack&KatiesMommy
Tue Mar 12, 2019 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21709

Re: Keytruda....Working for MSS....Mutation Burden is the Key

KCT: I am so happy to read that Dr. VanDeusen is working with your Mom and that she has a treatment plan. Obviously, no one can say what treatments will or wont work for any given person....but because the FDA and insurance companies basically made a determination that immunotherapies did NOT work f...
by Jack&KatiesMommy
Tue Mar 12, 2019 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 80
Views: 7098

Re: CEA Levels

Rickimaroo: So sorry that you are in this situation. I don't have a lot of advice as my cancer was located only in my liver and lungs but I wanted to correct your idea that immunotherapy is a last resort treatment. Immunotherapy actually opens the doors to allow your own immune system to find and de...
by Jack&KatiesMommy
Sat Mar 09, 2019 7:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: total pelvic exenteration
Replies: 33
Views: 6284

Re: total pelvic exenteration

It sounds like you have been a good friend to Robin...sensitive to her needs and knowing when to let her have her privacy. I pray that she has a peaceful life and that she knows how much you care about her. Thank you for letting us know about her. Cynthia

Go to advanced search