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by Jack&KatiesMommy
Tue Sep 17, 2019 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance denied husband’s genomic testing
Replies: 14
Views: 657

Re: Insurance denied husband’s genomic testing

My insurer denied the Foundation1 Testing that my oncologist ordered, stating that it was still experimental. My oncologist appealed (it was denied) and I appealed with lots of research and my appeal was likewise denied. However, my insurance DID approve off-label treatment with Keytruda even though...
by Jack&KatiesMommy
Thu Sep 05, 2019 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best clinical trial(s) - stage 4 w liver mets
Replies: 9
Views: 655

Re: Best clinical trial(s) - stage 4 w liver mets

Have you considered an HAI pump at Memorial Sloan Kettering yet? It saved my life....and got me to resection when systemic chemo alone could not. That would be my first step if I was starting over with liver mets.

Cynthia
by Jack&KatiesMommy
Tue Sep 03, 2019 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 989

Re: O/T : I wish Brownbagger were here

I miss him too. Thanks for the reflection, CR Guy.
by Jack&KatiesMommy
Wed Aug 28, 2019 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 1131

Sad News About Arizona Mom

With a heavy heart, I wanted to share some sad news with everyone. I just heard from Lara's husband, Byon, this morning. Lara (arizona mom) passed away on July 23 in her sleep at their home. Lara was a strong kind woman who loved her family dearly and who did everything possible to stay with them. M...
by Jack&KatiesMommy
Tue Aug 27, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just DX. looking for info.
Replies: 8
Views: 841

Re: Just DX. looking for info.

I went on a Disney Cruise 4 months into my chemotherapy...I didn't have any issues...and my oncologist never suggested that I couldn't or shouldn't go or otherwise live my life. (I had little kids (4 & 8 years old and if they aren't a cesspool of germs...not sure what is.) :)

Cynthia
by Jack&KatiesMommy
Wed Aug 21, 2019 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 15
Views: 2463

Re: Phuong is the new ColonClub President !

Congratulations, Phuong!!!!!! Welcome to your new role...and thank you!!!
Cynthia
by Jack&KatiesMommy
Tue Jul 30, 2019 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 77
Views: 33167

Re: Switching back to Pembro

Still on Keytruda...month 15 for me.

Cynthia
by Jack&KatiesMommy
Tue Jul 30, 2019 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2389

Re: Stage 4, over 4 years since diagnosis, still NED

I am so happy for you, Mariane! I remember when your twins were just tots! So glad that you are here with them!
Love,
Cynthia
by Jack&KatiesMommy
Sat Jul 06, 2019 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 7
Views: 1062

Re: Liver met near artery and bile duct

In February 2013 I had Irreversible electroporation (I think it is now called Nanaoknife) at Memorial Sloan Kettering Cancer Center on a tumor in my liver that was too close to my arterial artery to remove it or even to do RFA since the blood in the artery would cool the RFA too much for it to be ef...
by Jack&KatiesMommy
Thu Jun 27, 2019 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 19
Views: 1909

Re: Keytruda Side Effects: bad joint pain

I (thankfully) have not experienced any sort of joint pain or really any pain at all on Keytruda in the year I have been on it. I have had a few weeks where I ached all over (as if I were getting a cold/flu) but that only lasted 5-6 days here and there. I am sorry that you are experiencing this. Cyn...
by Jack&KatiesMommy
Fri Jun 21, 2019 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 804

Re: Low platelets before chemo

My platelets haven't been above 90 for 4 years. I have done Irinotecan and Xeloda with platelet counts in the 80's. Liver treatment and damage can cause an enlarged spleen and chronic low platelet counts I have been told. no one seems to worry about mine.
Cynthia
by Jack&KatiesMommy
Thu Jun 20, 2019 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 4013

Re: Currently in the ER...woo.

So glad to hear you are feeling okay this morning. Have been praying for you, Amy.
Cynthia
by Jack&KatiesMommy
Mon Jun 17, 2019 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 43
Views: 7952

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

This is great, Pyro! Please keep us updated on any new developments! This is exactly the kind of thing that could turn into a game changer for so many of us!
Cynthia
by Jack&KatiesMommy
Tue Jun 11, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 2067

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint.

Cynthia

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