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by Jack&KatiesMommy
Fri Feb 15, 2019 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another NED question: PUMP v. NO PUMP?
Replies: 23
Views: 593

Re: Another NED question: PUMP v. NO PUMP?

I think something to remember is that a lot of the people who had pumps were people who were not resectable initially. Many of these patients were the harder cases that were told that surgery wasn't an option and that they would be on chemo for life. So many of these people (like me) would not be he...
by Jack&KatiesMommy
Thu Feb 14, 2019 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets: ablation vs. surgery, pros? cons?
Replies: 8
Views: 196

Re: Liver mets: ablation vs. surgery, pros? cons?

Surgery is the gold standard. The best chance for a possible cure is with resection. But if that is not possible, ablation has been producing excellent results.
Cynthia
by Jack&KatiesMommy
Wed Feb 13, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just how bad is it?
Replies: 6
Views: 505

Re: Just how bad is it?

You know my story by now. But I had dozens and dozens of tiny tumors throughout every lobe of my liver that could not be seen on CT scan in addition to tumors on every lobe of my liver that were visible on CT Scan.
by Jack&KatiesMommy
Tue Feb 12, 2019 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The pump
Replies: 1
Views: 114

Re: The pump

I had pump placement and resection of colon only (not liver) because I requested that...saying that I was hoping the pump would make my liver resectable and then the colon would be done. Dr. Patty at MSK did that for me. Six months later I had iri (Irreversible electropution--Dr. Solomon) to one met...
by Jack&KatiesMommy
Mon Feb 04, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 26/2019
Replies: 251
Views: 92691

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 26/2019

Oh, CR, I just finally read through the last few of your updates on this thread. I am so sorry. Atticus was obviously very very loved. He was so lucky to have you and your family. So many pups never know love and care like you gave Atticus. From one animals are my life person to another ..... my hea...
by Jack&KatiesMommy
Sat Feb 02, 2019 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple reoccurrence survival stories
Replies: 5
Views: 671

Re: Multiple reoccurrence survival stories

Me! I was diagnosed Stage IV in August 2011 and I have had a number or recurrences (lungs and then lymph nodes). Happily NED with immunotherapy!
Cynthia
by Jack&KatiesMommy
Sat Feb 02, 2019 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED maybe. Stage 4, after 10 years Free. FOLFIRi?
Replies: 9
Views: 766

Re: NED maybe. Stage 4, after 10 years Free. FOLFIRi?

Cured:
I don't know anyone with metastatic colon/rectal cancer who was cured with chemo alone. I think an rfa to the lung spot or a wedge resection after chemo would be your best shot at NED.
Cynthia
by Jack&KatiesMommy
Thu Jan 31, 2019 3:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 53
Views: 15320

Re: Keytruda....Working for MSS....Mutation Burden is the Key

mpbser wrote:I came back to this thread and double checked my husband's TMB. I was off earlier. It's 7.605. I have no idea if that's considered low or intermediate/moderate.


I am not sure about that.
by Jack&KatiesMommy
Thu Jan 31, 2019 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 13
Views: 909

Re: Keytruda

Meatie:
I am on it with minimal side effects. I am MSS with a moderate mutation burden (12 mutations) and it is working for me when Folfuri and folfox no longer did. You can search a long post about all of this: "Keytruda Mutation Burden is Key"
by Jack&KatiesMommy
Wed Jan 30, 2019 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 53
Views: 15320

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Keytruda side effects? At least the ones you saw? Sorry! I just saw your post. The only side effects I have had vary each treatment that I have. (I have had 12 treatments so far) and some treatment cycles I noticed nothing! Other treatment cycles I had some pretty bad fatigue (I work 40+ hours a we...
by Jack&KatiesMommy
Sun Jan 27, 2019 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain Mets
Replies: 4
Views: 509

Re: Brain Mets

A possible path: Have Foundation One testing done on your tumor....and if you have a moderate tumor burden you could respond to Keytruda despite the fact that you are MSS. It may be worth a try....
by Jack&KatiesMommy
Tue Jan 22, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 67
Views: 25805

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment ...
by Jack&KatiesMommy
Mon Jan 21, 2019 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 16
Views: 877

Re: Another anniversary

Thank you for the encouragement Ron! To 21 more years!
by Jack&KatiesMommy
Thu Jan 17, 2019 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1002

Re: What to do after immunotherapy works

Since the use of immunotherapy (in any significant way) has only been ongoing for a few years....and since it has been used since @2011 in melanoma, lymphoma, lung cancer.....you may get more valid information from people with those cancers since many of them (unlike colon cancer patients) may have ...

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