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by Jack&KatiesMommy
Sat May 30, 2020 8:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on my situation and advice
Replies: 4
Views: 309

Re: Update on my situation and advice

Rikki I was on Irinotecan + Xeloda for 2 1/2 years then just Xeloda for 2 years before my cancer couldn’t be controlled with maintenance chemo in this way (I also did multiple rfa’s on lung Mets and had surgery to remove affected lymph nodes.). So the chemo got me 4 1/2 years at which time my oncolo...
by Jack&KatiesMommy
Tue May 26, 2020 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 79
Views: 16362

Re: Please help, input needed

I am so sorry you are going throguh this. I wish there was something that I could od to help you get through this pain and agony. All that I can do is share my experience to give you some hope. I have been fighting this battle for 9 years this August. I am in a really good place now (I am NED as far...
by Jack&KatiesMommy
Tue May 05, 2020 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK friendly lodging in NYC
Replies: 8
Views: 904

Re: MSK friendly lodging in NYC

I always stay at the Pod (on 55th). It is walking distance to Dr. Kemeny's on 53rd and you can take a shuttle from the MSK 53rd office to the hospital. Very convenient. It is always one of the lowest priced options. However, it is very very basic. Think dorm room type accommodations. Very clean but ...
by Jack&KatiesMommy
Tue Mar 17, 2020 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 1781

Re: Clear scans!

Such wonderful news!!!!!! So happy for you!!!!

Cynthia
by Jack&KatiesMommy
Mon Feb 24, 2020 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 9616

Re: Cea on the rise

Yikes....I understand how upset you both must be...it sounds like some mistakes were made. However, you may want to think long and hard before removing the HAI pump. Maybe you could consult with MSK before you make a decision. It sounds like your husband has a high tumor burden in his liver....and t...
by Jack&KatiesMommy
Wed Feb 12, 2020 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery on main valve?
Replies: 3
Views: 670

Re: Surgery on main valve?

Dr. Solomon (an interventional radiologist) at Memorial Sloan Kettering did an Irreversible electroporation (nonthermal ablative technology that uses high-voltage, low-energy DC current pulses to induce cell death) on a tumor in my liver that was too close to the portal vein to attempt standard abla...
by Jack&KatiesMommy
Mon Jan 06, 2020 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 2004

Re: RFA -Lung Tumour

It may sound funny, but I am not sure how many tumors I had RFA'd. Sometimes, it was questionable whether we were ablating a new tumor or re-ablating one that had been done before. I would guess that I had 8 or so distinct tumors that were ablated over the years.
by Jack&KatiesMommy
Sun Jan 05, 2020 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 2004

Re: RFA -Lung Tumour

You are under general anesthesia for the RFA procedures. I had multiple mets in both lungs. They will only do one lung at a time (as occasionally, a lung will collapse during the procedure and you need at least one lung working properly). I am not sure how many mets is too many...but because the RFA...
by Jack&KatiesMommy
Thu Jan 02, 2020 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 2004

Re: RFA -Lung Tumour

I have actually had 10 rfas to my lung mets over a period of 3 years. They are very simple procedures (one night in hospital...maybe none if you aren't flying home.) . However, what you have to remember is that RFAs do not always work the first time. The Interventional Radiologist is using a 2-dimen...
by Jack&KatiesMommy
Tue Dec 10, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1567

Re: Memorial Sloan Kettering Hotel Option Question

I stay at the POD on 53rd St. also. It is really very plain (like a dorm with shared bathrooms) but I almost always get a room for under $200.

Cynthia
by Jack&KatiesMommy
Wed Nov 27, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foundation One Testing, How Long?
Replies: 3
Views: 674

Re: Foundation One Testing, How Long?

I hope the Testing provides options for her!
Cynthia
by Jack&KatiesMommy
Tue Nov 26, 2019 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foundation One Testing, How Long?
Replies: 3
Views: 674

Re: Foundation One Testing, How Long?

I don't remember how long it took, Meatie. But I am thinking it was several weeks before the doctor gave me my results.

Cynthia
by Jack&KatiesMommy
Thu Nov 14, 2019 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4257

Re: 10 Years and Counting

Thank you, Fletch. I remember you so well and hoped that you were doing well. Thank you for the inspiration.
Cynthia

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