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by Jack&KatiesMommy
Sat Jul 06, 2019 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 5
Views: 574

Re: Liver met near artery and bile duct

In February 2013 I had Irreversible electroporation (I think it is now called Nanaoknife) at Memorial Sloan Kettering Cancer Center on a tumor in my liver that was too close to my arterial artery to remove it or even to do RFA since the blood in the artery would cool the RFA too much for it to be ef...
by Jack&KatiesMommy
Thu Jun 27, 2019 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 7
Views: 598

Re: Keytruda Side Effects: bad joint pain

I (thankfully) have not experienced any sort of joint pain or really any pain at all on Keytruda in the year I have been on it. I have had a few weeks where I ached all over (as if I were getting a cold/flu) but that only lasted 5-6 days here and there. I am sorry that you are experiencing this. Cyn...
by Jack&KatiesMommy
Fri Jun 21, 2019 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 481

Re: Low platelets before chemo

My platelets haven't been above 90 for 4 years. I have done Irinotecan and Xeloda with platelet counts in the 80's. Liver treatment and damage can cause an enlarged spleen and chronic low platelet counts I have been told. no one seems to worry about mine.
Cynthia
by Jack&KatiesMommy
Thu Jun 20, 2019 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 2770

Re: Currently in the ER...woo.

So glad to hear you are feeling okay this morning. Have been praying for you, Amy.
Cynthia
by Jack&KatiesMommy
Mon Jun 17, 2019 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 19
Views: 1738

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

This is great, Pyro! Please keep us updated on any new developments! This is exactly the kind of thing that could turn into a game changer for so many of us!
Cynthia
by Jack&KatiesMommy
Tue Jun 11, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 1454

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint.

Cynthia
by Jack&KatiesMommy
Fri May 24, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32804

Re: Keytruda....Working for MSS....Mutation Burden is the Key

I'm so sorry Boswind & Pyro. I always kept going thinking that the longer I stuck around the more new treatments would be available....I have been fighting this disease for 8 years in August and I have seen 3 new breakthroughs and I think there are more just on the horizon.
Cynthia
by Jack&KatiesMommy
Thu May 02, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri after Folfox fails
Replies: 8
Views: 988

Re: Folfiri after Folfox fails

I was on Irinotecan first (for over a year) (with Xeloda) and then was switched to Oxi w/ Xeloda to try to knock out some lung mets that were stable but not shrinking. The Oxi never worked...I went back on Fofiri and we used rfa procedures to knock down the lung mets. Irinotecan was much more effect...
by Jack&KatiesMommy
Sat Apr 27, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32804

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Boswind...I am praying that it is just taking a little time to kick in and that your scans will be good.

Cynthia
by Jack&KatiesMommy
Wed Apr 17, 2019 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32804

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Cynthia, If I might add, I think it is amazing kindness and compassion that you reach out to members and educate them about this. Even I spoke with my onc about your posting. I am low mutation unfortunately, but many are not. Thank you BUT....my oncologist said that if they had tested my original t...
by Jack&KatiesMommy
Mon Apr 15, 2019 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32804

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Pyro: It maybe on the downswing.....Mine did that a few times....it started to go up then stayed the same then went down. We thought that maybe it had continued to go up a bit then was coming down and we caught it on the downswing. Next cycle will be telling. (Maybe you could ask your oncologist if ...
by Jack&KatiesMommy
Mon Apr 15, 2019 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 16
Views: 1774

Re: Finally reached the 'forgot I had cancer' spot!

Congratulations, Diane....you look beautiful and I am so happy that you are here to share in their lives and live yours without thinking about cancer all fo the time!!!
Cynthia
by Jack&KatiesMommy
Tue Apr 09, 2019 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T3cN2a, refusing chemotherapy?
Replies: 80
Views: 25026

Re: T3cN2a, refusing chemotherapy?

I did 3 years of Folfiri and 6 months of Oxiplaintin....I have no permanent damage. And I am still here today (8 years later.)

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