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by IceGal
Sat Aug 04, 2012 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver involvement or bone questions
Replies: 15
Views: 3743

Re: Liver involvement or bone questions

Hi Kathryn! I can't speak about liver or bone mets, but all of your symptoms, with the exception of the right shoulder pain, sound like what I went through when I had severe pancreatitis a few years back (my gallbladder started it and then whacked out my pancreas). A week in hospital on IV antibioti...
by IceGal
Sat Jun 30, 2012 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm in Intensive Care- UPDATE
Replies: 79
Views: 4181

Re: I'm in Intensive Care- UPDATE

Sheesh, hun, I go offline for a day and you go and stick yourself in hospital! I am so very, very relieved that you are feeling better and are back home again. You should be proud of more than just how your body responded - you are doing an incredible job of dealing with everything and should just p...
by IceGal
Sun Jun 24, 2012 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: alarming CT result
Replies: 82
Views: 7416

Re: alarming CT result

I am so very glad that you are looking at getting biopsies, as there are so very many things that can show up odd in the lungs and can impact our lymphatic systems at the same time. The two that I would be looking for would be either aspergillis or blastomycosis. These are common fungi in the soil w...
by IceGal
Fri Jun 22, 2012 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: alarming CT result
Replies: 82
Views: 7416

Re: alarming CT result

Oh man, this really sucks. I sooo feel for you, having so recently having a not-so-happy scan myself. A couple of days of total breakdown (hysteria can be entertaining!) really helped for me - let me get all of the panic out so that I could breathe and think again. The others are right about taking ...
by IceGal
Tue Jun 12, 2012 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Am I missing something?
Replies: 2
Views: 633

Re: Am I missing something?

Thanks, lohidoc! I think you might have just hit the nail on the head --- I don't have my post chemo CEA or CA19-9 results yet (will get when I see the onc on Thursday). I think that just might be the "puzzle piece" that was missing from the plan in my head! Much appreciate your reply - al...
by IceGal
Tue Jun 12, 2012 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Am I missing something?
Replies: 2
Views: 633

Am I missing something?

Good afternoon, all! I’m hoping to be able to pick the collective brain here today. I had a not-so-happy post-chemo CT scan, which led to a not-so-happy PET scan. There are follow-up plans in place, but I have an odd, nagging feeling that there is something that my docs and I are missing. I can’t pu...
by IceGal
Tue Jun 12, 2012 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety--1st time UPDATE
Replies: 51
Views: 2539

Re: Scanxiety--1st time

Aw, sheesh, Bev - waiting sucks! Sure am hoping that the news is good, but, if it's not so good, there is more than one option still out there. He might even end up on GemOx, which includes our very own favorite - oxaliplatin! (Then he'll REALLY know what you went through on chemo!) A couple of folk...
by IceGal
Sat Jun 02, 2012 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda side effects
Replies: 22
Views: 3272

Re: Xeloda side effects

Hi Elise! I just finished 8 rounds of Xeloda (dropped the Oxy after 2nd round due to pulmonary emboli) and can totally relate to what you're saying! Exhaustion - check (I was getting around 10 - 12 hours sleep per night and didn't allow myself to nap) Energy Level at Zero - check (it sometimes took ...
by IceGal
Sat May 12, 2012 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: extreme fatigue
Replies: 73
Views: 6079

Re: extreme fatigue

Everyone else has covered almost everything, but there is one thing that I would like to add as a suggestion: could you maybe just sit down and talk with your wife and flat out ASK her how she wants you to help her deal with her cancer? I was caregiver to my late husband (who died of lymphoma) and a...
by IceGal
Fri May 11, 2012 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can I use a laxative post reversal
Replies: 14
Views: 2914

Re: Can I use a laxative post reversal

I've attached an article that I came across which may be useful for you as a discussion point with your docs. It basically states that the concerns about laxative addiction are anecdotal only and are not science based, so your use of one every few days should not be an issue. Just something to think...
by IceGal
Wed May 09, 2012 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those on Neurontin...Side effects?
Replies: 12
Views: 1175

Re: Those on Neurontin...Side effects?

Good morning, dear Bev! I was on Neurontin for a couple of months for sciatica, and quite honestly I'm not sure how I survived it. I was on 900 per day, and essentially my response was what I would describe as drug-induced extreme ADD (I had the "attention span of a concussed duckling" as ...
by IceGal
Fri Apr 27, 2012 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging question
Replies: 42
Views: 2897

Re: Staging question

Just a whimsical thought that came to me on this subject --- if a met at any time were automatically upstaged to Stage IV, wouldn't that mean that overall survival statistics for Stages I, II, and III be almost 100%? It seems to me that not very many people die of their cancer without it having meta...
by IceGal
Fri Apr 27, 2012 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rough Time - Post Treatment
Replies: 27
Views: 1816

Re: Rough Time - Post Treatment

Oh, wow, I am so very sorry to hear all that you are going through. Just a thought that came into my mind - do you have a rheumatologist as part of your treatment team? They are the experts on the auto-immune diseases and might have some other options up their sleeves on different treatments for you...
by IceGal
Tue Apr 03, 2012 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 321
Views: 62536

Re: Calling ALL Colorectal CANUCKS !

Hi Tricia! I'm wondering why your onc isn't looking at either FOLFIRI or XELIRI, since they are considered standard second line treatment. I can see them thinking that just the Xeloda might not be enough, but it looks from your sig line that you haven't had any treatment with iri in it yet. I'd defi...
by IceGal
Tue Apr 03, 2012 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off topic but does anyone know about osephgus cancer
Replies: 9
Views: 619

Re: Off topic but does anyone know about osephgus cancer

It all depends on the specific type of oesophageal cancer. If it is an adenocarcinoma, then they can use 5-FU on it, although I haven't seen anything of them adding either oxali or iri to it. Since your friend is on a 3-week schedule, it's possible that he's on Xeloda already. If it is another sub-t...

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