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by chrisca
Mon Nov 26, 2018 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robotic surgery and LAR syndrome
Replies: 10
Views: 340

Robotic surgery and LAR syndrome

At a recent GI appointment my specialist mentioned that the growing popularity of robotic procedures for rectal resection will likely increase the incidence of LAR syndrome. He said, "It's likely in the future you're going to have a lot of company." The reasons are that the robotic procedu...
by chrisca
Wed Nov 21, 2018 11:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Migraines and LAR syndrome
Replies: 1
Views: 174

Migraines and LAR syndrome

I get mild migraines fairly infrequently, about two or three times a month. I've noticed that after I see the aura, a few hours later there will be a nasty BM that acts like dumping syndrome where everything tries to empty out, causing a long time on the toilet and some pain. When I checked online a...
by chrisca
Wed Nov 21, 2018 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal issues after colorectal cancer stage 4
Replies: 6
Views: 252

Re: Ileostomy reversal issues after colorectal cancer stage 4

There are a few things that might help. Look into some of the IBS medications, which can reduce bowel contractions and improve continence. Pentasa is one of these and it helped me, especially at low doses (about 125 mg per day). Physical therapy might also help to strengthen pelvic floor muscles. Th...
by chrisca
Wed Nov 21, 2018 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 5
Views: 883

Re: Pentasa for LAR Syndrome

... If anyone has tried it or plans to, please post back here with your findings ... I saw my GP today and asked about a Pentasa prescription. He recommended against it, citing the co-morbitities that I currently have. He claimed that, in my case, it may do me more harm than good. Well, darn... The...
by chrisca
Sun Feb 18, 2018 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 5
Views: 883

Re: Pentasa for LAR Syndrome

Since my last post, I've been taking the 125 mg dose once a day after dinner. No nausea, and I'd say there is about a 20 to 30% improvement in stool caliber and length, meaning there is less effort required to "finish up" the BM. For anyone trying to start the drug, I'd say to give it a we...
by chrisca
Thu Feb 15, 2018 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OTC Suggestions for Nausea from Oxaliplatin
Replies: 25
Views: 3105

Re: OTC Suggestions for Nausea from Oxaliplatin

CBD oil can be helpful. You can also look at Marinol (prescription THC from cannabis) which comes in pill form. Unlike CBD, it can produce a high at larger doses. Tincture of cannabis is also helpful if it's legal in your state or available through friends. For Marinol and tincture, you'll fail a dr...
by chrisca
Sun Feb 11, 2018 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about bowel obstruction
Replies: 6
Views: 840

Re: Question about bowel obstruction

Small bowel obstruction can happen for many reasons during cancer treatment. If it's temporary, look at diet. I found that whole grain foods would cause symptoms that would spontaneously resolve in a day. After a lot of research, I found that glyphosate ("Roundup") is in the food supply at...
by chrisca
Sun Feb 11, 2018 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fatigue/Nausea after finishing up with radiation and Xeloda
Replies: 8
Views: 811

Re: Fatigue/Nausea after finishing up with radiation and Xeloda

After chemoradiation, you'll heal but recovery can take a month or more to feel significantly better. But your body is healing now that the punishment is over, even if you can't feel it. Nutrition and exercise as you can tolerate it will help a lot. Try cannabis to reduce nausea and improve appetite...
by chrisca
Thu Feb 08, 2018 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 5
Views: 883

Re: Pentasa for LAR Syndrome

...If anyone has tried it or plans to, please post back here with your findings. There seems to be no literature on it for this use. . This appears to be a prescription drug designed specifically for Chron's disease. There's quite a lot of information about its use with Chron's disease, but not muc...
by chrisca
Tue Feb 06, 2018 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 5
Views: 883

Pentasa for LAR Syndrome

I've done a lot of experimenting with drugs to treat LAR syndrome. After quite a long search, I'm finding that Pentasa has some promise. It's an extended-release capsule with mesalamine as the active drug. Lower doses seem to work better. I've tried 800 mg generic coated caplets and it was too stron...
by chrisca
Mon Jan 08, 2018 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Early age onset colorectal cancer survey: Your responses needed!
Replies: 8
Views: 1433

Early age onset colorectal cancer survey: Your responses needed!

Diagnosed with colorectal cancer under age 50? Your thoughts are needed in this survey:
https://docs.google.com/forms/d/e/1FAIp ... g/viewform

Results will be presented at the Early Age Colorectal Cancer Symposium in April.

-Chris.
by chrisca
Mon Jan 08, 2018 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal hemorrhoids bleed alot?
Replies: 1
Views: 424

Re: Internal hemorrhoids bleed alot?

Rectal bleeding can happen after rectal resection, but lots of bright red blood is concerning. If hemorrhoid cream resolves it and symptoms don't return, that could be all it is. It shouldn't be much risk to try it and see if things resolve in a couple of weeks. But if they don't, get an exam, pront...
by chrisca
Sat Dec 02, 2017 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keto diet?
Replies: 8
Views: 1596

Re: Keto diet?

To my knowledge, there is no clinical evidence the ketogenic diet reduces cancer risk. What has been proven to reduce risk are the following: Avoid processed foods Avoid red meat Eat whole grains, especially organically grown Eat more fruits and vegetables Stop smoking Reduce alcohol consumption, bu...
by chrisca
Tue Nov 21, 2017 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here- full colectomy recommended by surgeon- any advice?
Replies: 5
Views: 745

Re: New here- full colectomy recommended by surgeon- any advice?

Second opinion definitely called for. Surgeons can neglect long-term quality of life consequences when they don't consider the individual patient's situation carefully. If you feel like you're being treated like a statistic, find a doctor who treats the person, not the disease.
by chrisca
Mon Nov 20, 2017 4:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 26
Views: 6213

Re: Just found out I have cancer

Some good news: Descending colon is one of the better places for a tumor to be. If caught early, you may have little to no long-term consequences. Get baseline testosterone checked so you know if you'll need supplementation post-chemoradiation. Also if the radiation field is close to the testes, ask...

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