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by chrisca
Tue Nov 21, 2017 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here- full colectomy recommended by surgeon- any advice?
Replies: 5
Views: 163

Re: New here- full colectomy recommended by surgeon- any advice?

Second opinion definitely called for. Surgeons can neglect long-term quality of life consequences when they don't consider the individual patient's situation carefully. If you feel like you're being treated like a statistic, find a doctor who treats the person, not the disease.
by chrisca
Mon Nov 20, 2017 4:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 15
Views: 644

Re: Just found out I have cancer

Some good news: Descending colon is one of the better places for a tumor to be. If caught early, you may have little to no long-term consequences. Get baseline testosterone checked so you know if you'll need supplementation post-chemoradiation. Also if the radiation field is close to the testes, ask...
by chrisca
Mon Nov 20, 2017 4:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 32
Views: 2620

Re: Age 30 (M) Recently Diagnosed, Family History

If robotic ULAR is being proposed, ask the surgeon about the plan to tie the inferior mesenteric artery. The location of the tie can greatly affect the risk of LAR syndrome after surgery. If they have to do a "high tie" with the DaVinci, it may be better to opt for open surgery. A mid-rect...
by chrisca
Mon Nov 20, 2017 4:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nails issues after chemo
Replies: 5
Views: 212

Re: Nails issues after chemo

I didn't have blackening, but did have peeling and splitting. The nails are about three months behind, so they will bother you until they grow out. What is at the base is most important. If the bases look bad a month or so after chemo ends, be sure to show them to your doc. Also, consider getting fo...
by chrisca
Mon Nov 20, 2017 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17
Replies: 23
Views: 578

Re: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17

Usually the nurses tell you this, but just in case they didn't. If you feel a sneeze coming on, grab a pillow before you sneeze and firmly hold it over the abdominal incision to reduce strain on the stitches.
by chrisca
Fri Nov 17, 2017 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - Nervous and worried.
Replies: 13
Views: 1013

Re: New here - Nervous and worried.

Get the colonoscopy, if it's negative but symptoms persist, go back in three months and have a different doc do the procedure. There is a 6 to 15% false negative rate for colonoscopies. You need to be sure. Make sure the doc has a high "ADR" or adenoma detection rate. Also, consider eating...
by chrisca
Fri Nov 17, 2017 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 314

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

I did do watch and wait. At my one year scope we (I saw we because I stay awake for the flex sig) saw that something wasn't right. There was more fleshiness.. nodularity in medical terms... next to the scar that hadn't been there before. Biopsy came back as cancer. So, time to go back to the origin...
by chrisca
Thu Nov 16, 2017 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesion surgery for blockages
Replies: 9
Views: 403

Re: Adhesion surgery for blockages

I had adhesion surgery as well two years after my resection. It seemed to work, but then I had more symptoms. The blockages post-surgery were always temporary and would resolve after 12 hours or so. Ultrasound and CT showed nothing wrong. After much research I changed to a diet of only organic grain...
by chrisca
Thu Nov 16, 2017 10:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 314

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

Interesting paper. I was especially interested in the research into the length of the remaining rectal stump and the method of reconnection. Basically the more rectum the better with a minimum of 4cm for best results. Also some sort of reservoir, be it J-Pouch, or Side-End, is significantly better ...
by chrisca
Thu Nov 16, 2017 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17
Replies: 23
Views: 578

Re: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17

Do your walking, as others have suggested. It helped a lot for me. For pain control, consider this strategy. I tried Marinol pills combined with Tylenol. It worked like magic for waking up the bowel, as I'm very opioid sensitive. Marinol is synthetic THC from Cannabis. You may have to be persistent,...
by chrisca
Thu Nov 16, 2017 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 314

LAR Syndrome and laparoscopic surgery, new paper on origins

I just had a visit with my GI doc. A new paper is out on LAR syndrome. While it doesn't provide any treatment breakthroughs, it gives encouraging news that researchers are homing in on the cause. It's at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991969/. A major cause appears to be loss of nerv...
by chrisca
Thu Nov 16, 2017 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 38
Views: 1622

Re: Tom marsilje

He helped so many, was so selfless, and an inspiration. As a survivor, I feel a need to do more.
by chrisca
Fri May 05, 2017 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent LAR & Loop Iliostomy
Replies: 6
Views: 664

Re: Recent LAR & Loop Iliostomy

If you need a dress shirt and tie at work, a tighter fitting t-shirt or tank top underneath will make the bag harder to see. If you can be less formal, loose fitting shirts that aren't tucked in will work even better and are more comfortable. Always have a spare change of clothing in case the bag le...
by chrisca
Wed Mar 15, 2017 2:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cure for chronic fecal impaction
Replies: 5
Views: 1150

Re: Cure for chronic feacal impaction

Perhaps Metamucil with lots of water might help. It improved stool consistency for me though I've got different anatomy. Check with your GI specialist and ask if it might help. The doc might have other recommendations too. Miralax is another possibility that works differently by increasing the water...
by chrisca
Sat Feb 04, 2017 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 53
Views: 4913

Re: Just Diagnosed

Welcome, some thoughts: Your tumor location will spare much of the rectum allowing you reasonably normal function after treatment. If you're male, get your baseline testosterone checked before radiation. If you plan to have more children, ask for gonadal shielding. Radiation can zap the testes and a...

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