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by chrisca
Sun Feb 18, 2018 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 4
Views: 571

Re: Pentasa for LAR Syndrome

Since my last post, I've been taking the 125 mg dose once a day after dinner. No nausea, and I'd say there is about a 20 to 30% improvement in stool caliber and length, meaning there is less effort required to "finish up" the BM. For anyone trying to start the drug, I'd say to give it a we...
by chrisca
Thu Feb 15, 2018 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OTC Suggestions for Nausea from Oxaliplatin
Replies: 25
Views: 1709

Re: OTC Suggestions for Nausea from Oxaliplatin

CBD oil can be helpful. You can also look at Marinol (prescription THC from cannabis) which comes in pill form. Unlike CBD, it can produce a high at larger doses. Tincture of cannabis is also helpful if it's legal in your state or available through friends. For Marinol and tincture, you'll fail a dr...
by chrisca
Sun Feb 11, 2018 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about bowel obstruction
Replies: 6
Views: 659

Re: Question about bowel obstruction

Small bowel obstruction can happen for many reasons during cancer treatment. If it's temporary, look at diet. I found that whole grain foods would cause symptoms that would spontaneously resolve in a day. After a lot of research, I found that glyphosate ("Roundup") is in the food supply at...
by chrisca
Sun Feb 11, 2018 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fatigue/Nausea after finishing up with radiation and Xeloda
Replies: 8
Views: 585

Re: Fatigue/Nausea after finishing up with radiation and Xeloda

After chemoradiation, you'll heal but recovery can take a month or more to feel significantly better. But your body is healing now that the punishment is over, even if you can't feel it. Nutrition and exercise as you can tolerate it will help a lot. Try cannabis to reduce nausea and improve appetite...
by chrisca
Thu Feb 08, 2018 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 4
Views: 571

Re: Pentasa for LAR Syndrome

...If anyone has tried it or plans to, please post back here with your findings. There seems to be no literature on it for this use. . This appears to be a prescription drug designed specifically for Chron's disease. There's quite a lot of information about its use with Chron's disease, but not muc...
by chrisca
Tue Feb 06, 2018 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pentasa for LAR Syndrome
Replies: 4
Views: 571

Pentasa for LAR Syndrome

I've done a lot of experimenting with drugs to treat LAR syndrome. After quite a long search, I'm finding that Pentasa has some promise. It's an extended-release capsule with mesalamine as the active drug. Lower doses seem to work better. I've tried 800 mg generic coated caplets and it was too stron...
by chrisca
Mon Jan 08, 2018 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Early age onset colorectal cancer survey: Your responses needed!
Replies: 8
Views: 1050

Early age onset colorectal cancer survey: Your responses needed!

Diagnosed with colorectal cancer under age 50? Your thoughts are needed in this survey:
https://docs.google.com/forms/d/e/1FAIp ... g/viewform

Results will be presented at the Early Age Colorectal Cancer Symposium in April.

-Chris.
by chrisca
Mon Jan 08, 2018 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal hemorrhoids bleed alot?
Replies: 1
Views: 330

Re: Internal hemorrhoids bleed alot?

Rectal bleeding can happen after rectal resection, but lots of bright red blood is concerning. If hemorrhoid cream resolves it and symptoms don't return, that could be all it is. It shouldn't be much risk to try it and see if things resolve in a couple of weeks. But if they don't, get an exam, pront...
by chrisca
Sat Dec 02, 2017 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keto diet?
Replies: 8
Views: 896

Re: Keto diet?

To my knowledge, there is no clinical evidence the ketogenic diet reduces cancer risk. What has been proven to reduce risk are the following: Avoid processed foods Avoid red meat Eat whole grains, especially organically grown Eat more fruits and vegetables Stop smoking Reduce alcohol consumption, bu...
by chrisca
Tue Nov 21, 2017 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here- full colectomy recommended by surgeon- any advice?
Replies: 5
Views: 559

Re: New here- full colectomy recommended by surgeon- any advice?

Second opinion definitely called for. Surgeons can neglect long-term quality of life consequences when they don't consider the individual patient's situation carefully. If you feel like you're being treated like a statistic, find a doctor who treats the person, not the disease.
by chrisca
Mon Nov 20, 2017 4:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 26
Views: 3267

Re: Just found out I have cancer

Some good news: Descending colon is one of the better places for a tumor to be. If caught early, you may have little to no long-term consequences. Get baseline testosterone checked so you know if you'll need supplementation post-chemoradiation. Also if the radiation field is close to the testes, ask...
by chrisca
Mon Nov 20, 2017 4:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 48
Views: 5630

Re: Age 30 (M) Recently Diagnosed, Family History

If robotic ULAR is being proposed, ask the surgeon about the plan to tie the inferior mesenteric artery. The location of the tie can greatly affect the risk of LAR syndrome after surgery. If they have to do a "high tie" with the DaVinci, it may be better to opt for open surgery. A mid-rect...
by chrisca
Mon Nov 20, 2017 4:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nails issues after chemo
Replies: 6
Views: 624

Re: Nails issues after chemo

I didn't have blackening, but did have peeling and splitting. The nails are about three months behind, so they will bother you until they grow out. What is at the base is most important. If the bases look bad a month or so after chemo ends, be sure to show them to your doc. Also, consider getting fo...
by chrisca
Mon Nov 20, 2017 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17
Replies: 28
Views: 1961

Re: Colorectal cancer surgery 11/09/17- still in hospital 11/15/17

Usually the nurses tell you this, but just in case they didn't. If you feel a sneeze coming on, grab a pillow before you sneeze and firmly hold it over the abdominal incision to reduce strain on the stitches.
by chrisca
Fri Nov 17, 2017 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - Nervous and worried.
Replies: 13
Views: 1578

Re: New here - Nervous and worried.

Get the colonoscopy, if it's negative but symptoms persist, go back in three months and have a different doc do the procedure. There is a 6 to 15% false negative rate for colonoscopies. You need to be sure. Make sure the doc has a high "ADR" or adenoma detection rate. Also, consider eating...

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