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by kpjpmom
Sat Feb 27, 2016 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump for pain? MRI vs. C.T. Scan?
Replies: 10
Views: 1735

Re: Pump for pain? MRI vs. C.T. Scan?

I have done my pain trial and had no side effects. I have to wait to see if my insurance will cover placement. I hope so since I have been in constant pain since rhe trial on Feb. 11th.Thanks for all thu excellent information.
Kpjpmom
by kpjpmom
Fri Feb 26, 2016 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump for pain? MRI vs. C.T. Scan?
Replies: 10
Views: 1735

Re: Pump for pain? MRI vs. C.T. Scan?

Thank you for your responses and help. I have decided that I will get the pump. I cannot have the surgery until the Avastin has cleared my body. I am in so much pain. I hope the medication/pump works.

Kpjpmom
by kpjpmom
Tue Feb 23, 2016 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: God news for DH
Replies: 8
Views: 1393

Re: God news for DH

Yeah! Wonderful news.
Kpjkmom :D
by kpjpmom
Tue Feb 23, 2016 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump for pain? MRI vs. C.T. Scan?
Replies: 10
Views: 1735

Pump for pain? MRI vs. C.T. Scan?

Hi everyone, I am exploring the option for a pump to be placed in my abdomen with catheters that would carry the med's to an area in my spine. I have cc in my bone that is in the sacrum. My pain Doctor believes this will help my pain which has ramped up in the last two weeks. I had a C.T. Done that ...
by kpjpmom
Sat Jan 23, 2016 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonesurf
Replies: 6
Views: 2793

Lonesurf

Anyone have any experience with this drug? My oncologist is going to try this drug next as he does not the nueropathy to get worse in my hands and feet. What are the side effects that you have experienced? I am a 3 x cc patient. Current CEA is at 839. I have an inoperable tumor in my spine at the ta...
by kpjpmom
Wed Aug 12, 2015 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rises again
Replies: 3
Views: 938

Re: CEA rises again

Thanks to you !
by kpjpmom
Mon Aug 10, 2015 9:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rises again
Replies: 3
Views: 938

CEA rises again

CEA was 386, then 356 two weeks ago and now it is 583 today. These were taken two weeks apart each time. Scan done in July says tumor in tailbone looks stable, no other spots noted. I continue to have pain in left buttock and down sciatic nerve due to tumor oncologist thinks. He upped my pain patch ...
by kpjpmom
Tue Jul 28, 2015 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pollo65
Replies: 90
Views: 15361

Re: Pollo65

Praying for yo Pollo and family. You are loved and will be missed.
Kpjpmom
by kpjpmom
Wed Jul 22, 2015 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Waiting
Replies: 4
Views: 1169

Waiting

At my last treatment my CEA markers were up to 380. I had a scan today to see what is going on. Waiting for the results. I hope they come in before Friday. I have lab and treatment on Monday. We will have to discuss what treatment to do next. Folfox,folfri with Erbitux done 2 times. 5fu was disconti...
by kpjpmom
Mon Jul 13, 2015 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Rise
Replies: 2
Views: 977

CEA Rise

CEA up to 380 today. Last check two weeks ago was 256. Had treatment today of Ironitican and erbitux. cT scheduled for next week. Increased pain in tailbone and hip. Hoping cancer is not growing too fast.oncologist will talk to me about other options. I do not want to do Folfox again! Have already d...
by kpjpmom
Sat Jul 04, 2015 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy - Metastatic Colon Cancer back after 5 year Clean
Replies: 32
Views: 6379

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

I am so sorry that you are here. Cancer sucks! Hope you get a plan that you are happy with. Will be thinking of you in the days ahead!
Kpjpmom
by kpjpmom
Sat Jul 04, 2015 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying to decide
Replies: 4
Views: 1102

Trying to decide

I need to make a decide if I should go on permanent disability. I have been on short term since March. I have been able to rest up between treatments which has been nice. I would get disability for two years then be eligible to get my retirement. How did you go about deciding? Feel like I am giving ...
by kpjpmom
Thu Jun 04, 2015 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RayM is Resting in Peace
Replies: 66
Views: 10036

Re: RayM is Resting in Peace

I. Hate. This. Disease. Ray and I were diagnosed the same time. I am so sad. Ray you are missed!!!
by kpjpmom
Thu Jun 04, 2015 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5fu/leucovorin bolus
Replies: 16
Views: 1652

Re: 5fu/leucovorin bolus

My oncologist said the bolus was not that effective and removed it after first treatment. I had mouth sores after first infusion. They have now had to take away the 5 fu because they said that was causing the uncontrollable diarrhea that I was having. Last treatment 2 was ago I had no d just nausea....
by kpjpmom
Mon May 18, 2015 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update kpjpmom
Replies: 2
Views: 855

Re: Update kpjpmom

Thanks Skypup
I weigh 160 PDs so I hope this is enough of a reduction to help also. What problems do you have and are they controllable with the Immodium and Lomital? Thanks for the feedback. Do you get the rash? So far I have not with my first treatments.

Kpjpmom

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