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by hart2hart
Fri Jan 19, 2024 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chance of cancer coming back over time
Replies: 18
Views: 6750

Re: Chance of cancer coming back over time

Plus yearly BW to check CEA!
Cheers to you!

Julie and Pete
by hart2hart
Fri Jan 19, 2024 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PETE’S 10 Year Anniversary
Replies: 2
Views: 1054

PETE’S 10 Year Anniversary

Pete just had a scan, BW and is 10 year NED. Thank you to Sloan and Dr. Kemeny who just retired. Pete is have an issue again with being in the bathroom a lot again. Appreciate any tips as now he’s 71…… started this jorney at 59. Grateful to CC and miss all tge lovely people we lost . Tips please. Th...
by hart2hart
Tue Aug 18, 2020 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 4056

Re: another HAI pump question and a short rant...

My husband Pete would not be here today if not for the Hai Pump, Dr. Kemeny and MSK. Local Doctors almost killed him. That was 10 years ago! Life is good, so happy that we found Dr. Kemeny, MSK and The Colon Club! Pete had the Pump removed not too long ago and now has been promoted to yearly scans! ...
by hart2hart
Sat Jul 18, 2020 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 19
Views: 6861

Re: 10 years since diagnosed

Yay to Ray! Thanks for all you did for us!
Pete had his HAI out this year, beginning of the year.
2011 looked very bleak.....but we found this group, Dr Kemeny, Dr D’Angelica and asked ALOT of questions! Here’s to you Ray and all who are still in the fight. Don’t ever give up!!


Julie and Pete
by hart2hart
Sat Jun 13, 2020 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Graduating To Yearly Scans!
Replies: 3
Views: 1535

Graduating To Yearly Scans!

My Pete who sees Dr. Kemeny at Sloan has graduated to yearly scans. Port and Hai are out and life is great except for the pandemic, etc. We are so grateful for this his wonderful support group......first one I met was Janie (many conversations,etc) JulieJ, Kathy B, Brownbagger (Miss him dearly), Lis...
by hart2hart
Wed Jan 22, 2020 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OLD HAI PUMP RETURNING - SLOAN
Replies: 3
Views: 1220

OLD HAI PUMP RETURNING - SLOAN

Success for Pete last night at Sloan. Pump and Port removed! Tidbit: A well-off man who had great success with the Codman Hai is buying all the rights etc to bring back the pump! Hooray! He isn’t interested in making money..... just make enough to pay his staff! This is Wonderful news for all! It wa...
by hart2hart
Tue Jan 21, 2020 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP OUT TODAY!
Replies: 3
Views: 1542

HAI PUMP OUT TODAY!

At Sloan now as Pete is having his Hai Pump and Port out. We asked Dr D’Angelica’s surgical assistant if we can have the pump! Hope so. This is a very exciting day for us as 2011 looked bleak. Our message to all is keep fighting, ask tons of questions and get more than one opinion. We are so gratefu...
by hart2hart
Tue Dec 24, 2019 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP REMOVED
Replies: 5
Views: 1463

HAI PUMP REMOVED

Pete just had his 5 year clear (hooray!) scan. Dr Kemeny is talking about removing his Hai Pump and Port. What’s involved in these procedures? A day visit? Would love for all to let us know your experience. A message for all fighting this dreadful disease........ Keep fighting and know that Pete and...
by hart2hart
Wed Jun 05, 2019 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE ON PETE
Replies: 9
Views: 3075

Re: UPDATE ON PETE

Dr James MCClane, the younger brother of Steven Is the head of Gastro Surgery at Norwalk Hospital in Connecticut. He is my forever hero and my nickname For him is Ace McDreamy. He gets cookies for life! Pete’s journey after Doc MCClane was that he developed a liver met 18 months after diagnosis. The...
by hart2hart
Tue Jun 04, 2019 11:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE ON PETE
Replies: 9
Views: 3075

UPDATE ON PETE

Pete has been in remission since January 1,2015. A HUGE shout/out to all at MSK. From the sweet doorman, check-in, pump nurses, Dr D’Angelica, Dr Kemeny and her Fabulous nurses, Trish and Sandy. We Love and Thank you from the bottom of our hearts. Pete is thriving, were living life to the fullest. O...
by hart2hart
Thu May 16, 2019 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 8 year cancerversary today AND clean scan
Replies: 17
Views: 3795

Re: Stage IV 8 year cancerversary today AND clean scan

Hi Lisa and Mom! FANTASTIC News! Pete is right behind you! November 2011.....It was a very tough journey as you know but WOW! Looking forward to seeing ya’al’ in September for honoring Dr Kemeny for all she’s done with her pump research! See you at the Walk/Festival! Can’t wait to see Kathy/George f...
by hart2hart
Thu May 16, 2019 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 3355

Re: APR surgery for low rectal tumor

My Pete had VLR Tumor 11/11. We had 4 opinions. 2 said 80/20 we can save the sphincters, one said 50/50 and said APR. We went with one fantastic, ace-surgeon who spent almost 4 hours hand-sewing the connection since a stapler would not have worked. My hero. Pete is doing great.....so anyone who has ...
by hart2hart
Sat Mar 17, 2018 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Pete
Replies: 9
Views: 2416

Update Pete

Pete saw Dr Kemeny Wednesday. Clear scan, Cea normal. He has just graduated now to 6 month scans. Pump hopefully removed In December. So grateful for ALL at Sloan.....including the doorman! Our lives are full and very optimistic for the future. The biggest advice we received was to get several opini...
by hart2hart
Thu Mar 01, 2018 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GABAPENTIN
Replies: 6
Views: 1986

Re: GABAPENTIN

No side effects. Started with one x day, increased to four a day gradually over a weeks time and now just 3 in the AM. Prescribed for low back nerve pain and Surprise! It has helped the neuropathy in the feet. Interesting because not one Doc (diagnosis 2011) even suggested it to us. Yes, not all peo...

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