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by Nick
Fri May 18, 2018 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 4251

Re: How can I help my family watch me die?

Wow, what an amazing spirit you have! You sound like an incredible person to me. All I know is from my personal experience - and yes, at the time I was have done anything to not face it - but looking back as my wife was in hospice, it was a privilege to care for her. I was there for her, and I bet y...
by Nick
Fri May 18, 2018 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5.5 years stage IV, now one year NED
Replies: 12
Views: 1331

Re: 5.5 years stage IV, now one year NED

Outstanding! Awesome news. Keep up the posting, it's good to hear things like this, gives people hope.
Nick
by Nick
Wed Jul 26, 2017 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 319
Views: 92397

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

I think 'moving forward' is great, but don't rush it. Whatever pace you go is fine. I still cry over my Angie for any or no reason and it's been over four years. Didn't know Frenchie, but I'd bet he'd have liked you wrapping that shirt around you. You're going to be ok. It may not feel like it all t...
by Nick
Wed Jun 14, 2017 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 cured
Replies: 18
Views: 4980

Re: Stage 4 cured

Awesome news!
by Nick
Mon Nov 16, 2015 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregivers
Replies: 25
Views: 2339

Re: Caregivers

Being frustrated is normal. In fact, ANY way you feel at any time is normal, since it's you. And it's ok to be frustrated, or mad, or sad. You need to feel whatever and do whatever you need to handle things. And I know it's hard, since you have no time, but try to make a little time for yourself, ma...
by Nick
Tue Jan 06, 2015 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 319
Views: 92397

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

Hello Everyone, This January 26th will be two years since my wife Angie passed away. I think of her every day. I do have an overwhelming sense of gratitude that I was able to meet her, that of all the people in the world she loved me, that I loved her, that we have 3 beautiful kids who seem healthy ...
by Nick
Mon Dec 22, 2014 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recently Diagnosed at 23
Replies: 21
Views: 4139

Re: Recently Diagnosed at 23

Hi Abby, Welcome to the club nobody want to be in. Haven't posted in a long time but was moved by your situation. Don't get sucked into all the analysis and charts you'll see on the internet, it'll be discouraging. Yes, it's serious, but just remember you're not a statistic, you're a person. There a...
by Nick
Wed Feb 20, 2013 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Angie's gone
Replies: 28
Views: 4447

Angie's gone

My lovely wife of 21 years passed away Jan. 26th. Pretty much the last two years of my life have been like a bad dream - but one of the bright spots has been the people on this forum. Lots of good info, lots of nice folks. I'm dropping off, don't have the heart to keep coming back. Maybe that'll cha...
by Nick
Fri Jan 11, 2013 12:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Talking to kids on hospice
Replies: 11
Views: 1795

Talking to kids on hospice

We're going to try regorafenib, but wife is really weak, having lot of pain, I told her I'm fine if she doesn't want to do it, onc has mentioned hospice, think he's trying to get her ready. Got 3 kids, 16, 14, and 13 - any thoughts on best way to tell them? I was thinking to just be truthful, put it...
by Nick
Fri Jan 11, 2013 12:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking g for question to ask
Replies: 5
Views: 990

Re: Looking g for question to ask

Bev's response was full of wisdom - definitely slow down, I'm into my second year and still looking things up. Usually the doc's are great at explaining - I say something like "I don't understand 'poorly differentiated' " and they'll cover it for you. Please understand everyone's response ...
by Nick
Tue Oct 02, 2012 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband just DX stage 4
Replies: 12
Views: 1637

Re: Husband just DX stage 4

Hi Patty, I'm been reading posts off this board for about 1 1/2 years, and like you, I still can't believe it's happening to us. Married 21 years this past August. You'll learn all the acronyms in time (I still have to look some up) as well as more biology and chemistry than you ever wanted. As a ca...
by Nick
Fri Aug 24, 2012 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Final Regorafenib update
Replies: 20
Views: 2357

Re: Final Regorafenib update

Sorry to hear that.

We're just starting FOLFIRINOX as a second line treatment - so it's 5FU, irinotecan, oxaliplatin, etc. Seems to be having some effect (wife coughing less, we've had growth in the lungs)
Nick
by Nick
Tue Aug 07, 2012 3:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Traveling, vacationing while on chemo?
Replies: 20
Views: 3272

Re: Traveling, vacationing while on chemo?

We just planned ahead, worked with onc on big trips (Costa rica - white water rafting, zip lining (but wife did get piece of finger chewed off!), hiking, etc.) On smaller ones (to beach in FL) just went on off chemo weeks - wife slept while I drove.
by Nick
Fri Aug 03, 2012 12:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Normal CEA and Liver tests, Disease Progression
Replies: 2
Views: 647

Re: Normal CEA and Liver tests, Disease Progression

pog 451 is right, quite possible for CEA to not show progression. Or to have elevated CEA and no progression. So our onc follows it, but it's not a smoking gun, when he wants evidence it's a radiological scan.
Sorry to hear about the progression, we're dealing with that also.
Nick
by Nick
Mon May 14, 2012 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafanib, here I come (maybe)
Replies: 18
Views: 1376

Re: Regorafanib, here I come (maybe)

Good for you!

Please post something from time to time about how it goes, hoping we can get on it soon......
Nick

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