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by Bob_Weiss
Sun Aug 05, 2018 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD OIL
Replies: 9
Views: 599

Re: CBD OIL

I tried 1000mg HEMP OIL (Manitoba) one morning and developed loose stools which kept me running to the bathroom for the remainder of the day. I may try it once more to see if this is my normal reaction to hemp. Nonetheless, when pot becomes legal in New York, which is supposed to be in about 2 month...
by Bob_Weiss
Fri Jun 08, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MEMBERS IN BROOKLYN
Replies: 0
Views: 213

MEMBERS IN BROOKLYN

Any members in Brooklyn, NYC who get together occasionally to discuss problems, solutions, and general issues relating to CRC treatment, post-treatment, etc??
by Bob_Weiss
Mon Jun 04, 2018 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: olive oil as laxative
Replies: 1
Views: 220

olive oil as laxative

I was having sudden urgent diarrhea for 5+ years after an ileostomy reversal, and as a result I feared going more than 4-5 blocks away from my house. If I had to travel, I would eat minimally the day before, and would only drink some tea. Finally I discovered that this problem occurred after eating ...
by Bob_Weiss
Mon May 21, 2018 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homeopathic Remedies for Fragmented Stools
Replies: 15
Views: 681

Re: Homeopathic Remedies for Fragmented Stools

Carefully charting my diet and how individual foods help or hurt my bowel problems has been very helpful; along with use of OTC medicines, such as Imodium and Benadryl.
I'm dubious about homeopathic remedies - the evidence for their effectiveness seems lacking.
by Bob_Weiss
Sun Feb 04, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 2779

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

I received what was the standard of care for calendar 2009, the year I was diagnosed (See below). Since then I've had no recurrence, but my bowel movements have changed over the years. For the first 5+ years, I would have frequent bouts of constipation for 5 to 7 days, followed by urgent diarrhea. M...
by Bob_Weiss
Thu Aug 03, 2017 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 117
Views: 25134

Re: BrownBagger ....... I don't know what to say

HORRIBLE! We joined this site about the same time (2010), and although we never met, he did respond to a few of my e-mails with helpful advice. Since he was alive much longer than would be expected, I assumed he would be living a normal life span with occasional bumps in the road. I will remember hi...
by Bob_Weiss
Fri Jun 23, 2017 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eleven years ago!
Replies: 19
Views: 4433

Re: Eleven years ago!

Apparently patients with Stage I to Stage III cases will always survive-providing they do not progress to Stage IV. Makes me think of whether I would still be alive if I had waited awhile before going to the doctor. My Stage III tumor was large, and according to the doctor it had been around for a f...
by Bob_Weiss
Sat May 06, 2017 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea after ileostomy: IBS-D or LAR syndrome
Replies: 2
Views: 628

Diarrhea after ileostomy: IBS-D or LAR syndrome

I have periodic bouts of diarrhea followed by constipation, which is now controlled most of the time by diet, Metamucil and Imodium. The medical literature refers to this problem as LAR syndrome, which apparently is experienced by 90% of people getting a temporary ileostomy. However, my primary doct...
by Bob_Weiss
Fri Apr 21, 2017 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years ago today
Replies: 17
Views: 2461

Re: 10 years ago today

Congratulations. For me, it has been 7+ years. I still get occasional periods of constipation followed by diarrhea. But what the hell! Tis better to be alive with bowel problems than deceased free of problems.
by Bob_Weiss
Fri Mar 31, 2017 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Citrucel Instructions
Replies: 11
Views: 1480

Re: Citrucel Instructions

Instead of putting Metamucil into liquid, I mix it into the food with each meal- about 1/2 teaspoon each time. I never have any choking or other unpleasant reaction in the years I have been doing this. I also usually drink 2+ glasses of water or tea during the day to minimize the gas. If I have loos...
by Bob_Weiss
Tue Mar 28, 2017 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any CC Groups that meet in Brooklyn, NY?
Replies: 0
Views: 2870

Any CC Groups that meet in Brooklyn, NY?

I have been visiting this site since 2010 and, although I have been NED for awhile, I still get lingering bowel problems. It would be interesting to speak with others in a similar situation in Brooklyn (I'm at Kings Highway & Ocean Ave). The local hospitals near me* do not seem to have a relevan...
by Bob_Weiss
Mon Mar 27, 2017 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice from long time survivors re when to stop scans
Replies: 21
Views: 2290

Re: Need advice from long time survivors re when to stop scans

I stopped after I completed my last follow-up visit to the oncologist, who was the doctor ordering the scans.. My gastroenterologist said I should phone him 5 years after my last colonoscopy. If I have no suspicious symptoms at that time, he will recommend that I suspend colon exams. I am 70+ years,...
by Bob_Weiss
Mon Mar 13, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biofeedback and PT for LARS
Replies: 18
Views: 3674

Re: Biofeedback and PT for LARS

After 6 years of LARS which was not improving with time (contrary to medical guidance), I began to add Metamucil to all meals and snacks. This led to tremendous improvement, although it increased my gas output -- both belching and farting. To me, this was a satisfactory trade. I no longer hesitate t...
by Bob_Weiss
Mon Feb 20, 2017 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Now in year 10 after Stage IIIb diagnosis
Replies: 8
Views: 1269

Re: Now in year 10 after Stage IIIb diagnosis

I was diagnosed 7 1/2 years ago, and last saw my oncologist a few years ago. He indicated the chance of a recurrence are remote. Apparently,there is a big difference between rectal cancer that is local vs. metastatic. Local cases are going to survive; the metastatic cases have a much more difficult ...

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