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by radnyc
Thu Jan 07, 2021 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24277

Re: Covid 19 vaccine

I’m part of the AstraZeneca vaccine trial. I asked my oncologist at MSK if there was any problem with this and he said no, and gave me the go ahead. Had the first shot, had some mild side effects the first 24 hours and that was it. Will be going for the second shot next week. Hopefully I got the vac...
by radnyc
Sun Jan 03, 2021 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24277

Re: Covid 19 vaccine

I’ve been on and off this board for 10 years, and it has been very helpful and comforting to share our journeys, but this thread contains some of the worst comments I’ve ever seen. To question the integrity of Dr. Fauci and the racist China virus comment?! Ignorance and stupidity in full display.
by radnyc
Sat Oct 10, 2020 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does your Medtronic pump TICK?
Replies: 10
Views: 3273

Re: Does your Medtronic pump TICK?

I had the old school Codman pump, made no noise. I believe the later Medtronic has more gears and things. As long as it’s pumping the chemo you should be good!
by radnyc
Thu Jul 23, 2020 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 16 year birthday/cancerversary to me.
Replies: 12
Views: 1358

Re: Happy 16 year birthday/cancerversary to me.

Congrats! Your journey gave me hope 10 years ago and still does, keep posting it!
by radnyc
Tue Jul 14, 2020 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 19
Views: 5599

Re: 10 years since diagnosed

Hi JC, pretty much this was my approach: In my research there are only three things readily available that have shown to be effective in keeping from recurring. VITAMIN D, ASPIRIN and PHYSICAL EXERCISE. This can be checked by doing a PUBMED or google scholar database search. Vitamin D blood levels h...
by radnyc
Mon Jul 06, 2020 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Girlfriend wants to come to appointments
Replies: 13
Views: 2112

Re: Girlfriend wants to come to appointments

Do not feel guilty if you tell her not to come. You need to do YOU at this time in your life. My experience was that I did not want ANYONE around me during, treatments or after surgeries. It helped me and them in my opinion.
by radnyc
Thu Jul 02, 2020 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 2844

Re: Update (treatments & CEA)

Please look at Jack&Katies mommy’s post above. Keytruda might be a life-saving option for your case! I would DEMAND my oncologist look into it: “The FDA has approved the immunotherapy Keytruda for solid tumors with a tumor mutation burden of 10 or greater. This means that CRC patients with MSS t...
by radnyc
Thu Mar 19, 2020 5:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 2606

Re: Clear scans!

Fantastic!! Congratulations!
by radnyc
Wed Feb 26, 2020 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11343

Re: Cea on the rise

This is why I refused to let my significant other or family get too involved in my treatment, I felt that as the person undergoing the rigors of cancer I was not going to dump on them more than they already have to deal with. I did my own research, found the medical facility and treatment that I wan...
by radnyc
Mon Feb 24, 2020 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11343

Re: Cea on the rise

Sounds like it's time to go straight to MSK and find out what the hell is going on. Far from an expert here, but I had the impression that the pump with FUDR is supposed to work in tandem with systemic chemo, and for some reason your H was left off of systemic chemo for months, and his HAI pump has...
by radnyc
Mon Feb 24, 2020 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11343

Re: Cea on the rise

Think hard about removing the pump at this point, remember once it’s out it CAN NOT BE PUT BACK AGAIN, ever.
by radnyc
Mon Feb 24, 2020 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11343

Re: Cea on the rise

Darn! Sorry to hear this, sounds like the team at OSU weren't up to speed. Any chance you two can go to MSK to address these issues? I'm sure they'll know what to do fast.
by radnyc
Sat Feb 15, 2020 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11343

Re: Cea on the rise

Try not too be too stressed about this. Seems that no one knows yet exactly what is causing the CEA rise. It’s possible that it’s temporary and not cancer related. I would concentrate on recovery, stress relief and healthy eating. Do the PET scan, take it from there. it’s a bit early to panic in my ...
by radnyc
Fri Feb 07, 2020 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP its grown. Please I'm sick I can't breath
Replies: 18
Views: 2992

Re: HELP its grown. Please I'm sick I can't breath

I feel your pain, be strong. Are you been seen at a well regarded cancer hospital? If not try to find one. There are various treatments and therapies that your local clinic or oncologist does not have access to. Don’t give up hope.

Peace
Al
by radnyc
Sun Feb 02, 2020 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Versatile race-car driver John Andretti dies at 56
Replies: 2
Views: 1424

Re: Versatile race-car driver John Andretti dies at 56

Just pointing out that anal cancer is different from colorectal cancer. Anal cancer is of different cellular origin, cause and treatment, and more fatal

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